Parent self-efficacy for managing pain in seriously ill children and adolescents nearing end of life

Byrne, Mary; Evan, Elana E.; Goshin, Lorie S.; Erlich, Matthew D.; Kim, Jackie H. J.; Saroyan, John M.; Zeltzer, Lonnie K.

doi:10.1017/s1478951511000010

Cited by 16 publications

(15 citation statements)

References 36 publications

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“…The goal of the study was to explore the role of parents' self-efficacy related to pain management for terminally ill children and adolescents. 35 The parents in the study had more negative moods and less vigor than adults in a normative sample as well as higher levels of pain management self-efficacy than previous reports on family caregivers of adult patients. 35 The parents' strain and mood states (mood disturbance, anger, and fatigue) inversely correlated with pain management self-efficacy.…”

Section: Engagement and Communicationmentioning

confidence: 52%

“…35 The parents in the study had more negative moods and less vigor than adults in a normative sample as well as higher levels of pain management self-efficacy than previous reports on family caregivers of adult patients. 35 The parents' strain and mood states (mood disturbance, anger, and fatigue) inversely correlated with pain management self-efficacy. 35 The limitation of this study was that it is a secondary analysis of self-reported data, but the findings will advance future interventions to improve family caregivers' self-efficacy on pain management.…”

Section: Engagement and Communicationmentioning

confidence: 52%

“…35 The parents' strain and mood states (mood disturbance, anger, and fatigue) inversely correlated with pain management self-efficacy. 35 The limitation of this study was that it is a secondary analysis of self-reported data, but the findings will advance future interventions to improve family caregivers' self-efficacy on pain management.…”

Section: Engagement and Communicationmentioning

confidence: 98%

See 2 more Smart Citations

Family Caregivers’ Pain Management in End-of-Life Care: A Systematic Review

Chi

Demiris

2016

Am J Hosp Palliat Care

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Context: Pain management was the most identified burden faced by family caregivers in end-of-life caregiving. Objectives: To synthesize current scientific evidence on family caregivers' experience of pain management in end-of-life care. Methods: A systematic review was conducted using CINAHL, Embase, PubMed, and Cochrane Library electronic databases. Data were extracted from each included paper and organized into tables to synthesize the findings. Results: Fourteen research papers focusing on family caregivers' experience of pain management and strategies in end-of-life care were included. Nine were observational studies, 3 were case studies, and 2 were experimental studies. These studies mainly focused on exploring family caregivers' engagement in pain management and communication with the hospice care team about pain control; family caregivers' knowledge, skills, and self-efficacy in pain management; and family caregivers' concerns and experience of pain management. Conclusion: This review identified themes similar to previous reviews on family caregivers of patients with cancer or in palliative care: inadequate knowledge and assessment skills in pain management, misunderstanding of pain medications, and poor communication with the care team. Future research should design educational programs and material for family caregivers to improve their pain management knowledge and skills, communication, and engagement in care. The scientific knowledge on this topic is scarce, and level of evidence is low; it is therefore imperative to have more exploratory studies to expand the quality and quantity of evidence and increase our understanding of family caregivers' needs and barriers to pain management based on larger and more diverse patient and caregiver samples.

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Section: Engagement and Communicationmentioning

confidence: 52%

Section: Engagement and Communicationmentioning

confidence: 52%

Section: Engagement and Communicationmentioning

confidence: 98%

See 1 more Smart Citation

Family Caregivers’ Pain Management in End-of-Life Care: A Systematic Review

Chi

Demiris

2016

Am J Hosp Palliat Care

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“…Participants rate their degree of certainty on a scale of 10 to 100 (e.g., "How certain are you that you can decrease your pain quite a bit?"). Consistent with literature precedents (e.g., Byrne et al, 2011;Keefe et al, 2003), an average of the three subscales was used to capture all three dimensions of chronic-pain self-efficacy assessed by the CPSS. The CPSS has been found to have strong psychometric properties among older adults living with chronic pain (e.g., Rudy, Weiner, Lieber, Slaboda, & Boston, 2007).…”

Section: Methodsmentioning

confidence: 99%

Predicting adjustment to chronic pain in older adults.

Chan¹,

Hadjistavropoulos²,

Carleton³

et al. 2012

Canadian Journal of Behavioural Science / Revue canadienne des

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Although chronic pain is common among older adults, the role of psychological variables in the adjustment to chronic pain is not well-understood in this population. Based on a cognitive-behavioural conceptualisation, we investigated the role of self-efficacy and coping strategies in the prediction of maladjustment to chronic pain (i.e., depression and pain-related interference with day-to-day life). Responses to psychometrically valid questionnaires were collected from 109 community-dwelling older persons with chronic pain. Regression analyses showed that self-efficacy predicted depression after controlling for number of medical conditions and pain-related interference. Similarly, pain interference was predicted by pain intensity, self-efficacy, and coping strategies after controlling for depression. Health-related variables predicted adjustment; cognitive and behavioural variables accounted for additional variance. These findings represent a replication and extension of work with younger chronic-pain patients, though some differences related to coping strategies are noted. Future studies may further clarify the relationship between pain and adjustment in older persons by assessing the role of cognitions and coping behaviours in a longitudinal fashion.

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“…This research finds that parents’ overall or general sense of self-efficacy is positively associated with their children’s general ability to cope with their illness (Byrne et al, 2011; Sofronoff & Farbotko, 2002; Wanamaker & Glenwick, 1998; Wood, Price, Dake, Telljohann, & Khuder, 2010). …”

Section: Introductionmentioning

confidence: 79%

Parent Caregiver Self-Efficacy and Child Reactions to Pediatric Cancer Treatment Procedures

Peterson

Harper

Albrecht

et al. 2013

J Pediatr Oncol Nurs

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This study examined how parents’ sense of self-efficacy specific to caregiving for their child during cancer treatment procedures affected children’s distress and cooperation during procedures. Potential correlates of caregiver self-efficacy (ie, demographics, child clinical characteristics, parent dispositional attributes, and social support) were also examined. Participants were 119 children undergoing cancer treatment procedures and their parents. Parents’ self-efficacy about 6 procedure-specific caregiver tasks was measured. Parents, children, nurses, and observers rated child distress and parents, nurses and observers rated child cooperation during procedures. Higher parent self-efficacy about keeping children calm during procedures predicted lower child distress and higher child cooperation during procedures. Parent dispositional attributes (eg, enduring positive mood, empathy) and social support predicted self-efficacy. Parent caregiver self-efficacy influences child distress and cooperation during procedures and is associated with certain parent attributes. Findings suggest the utility of identifying parents who would benefit from targeted interventions to increase self-efficacy about caregiving during treatment procedures.

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Parent self-efficacy for managing pain in seriously ill children and adolescents nearing end of life

Abstract: Findings advance knowledge of parent self-efficacy in managing the pain of a child with life-threatening illness. Results can be used to design supportive interventions enhancing parents' caregiving roles during their child's last stages of life.

Cited by 16 publications

References 36 publications

Family Caregivers’ Pain Management in End-of-Life Care: A Systematic Review

Family Caregivers’ Pain Management in End-of-Life Care: A Systematic Review

Predicting adjustment to chronic pain in older adults.

Parent Caregiver Self-Efficacy and Child Reactions to Pediatric Cancer Treatment Procedures

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