Parent-Reported Quality of Life of Children With Cerebral Palsy in Europe

Arnaud, Catherine; White-Koning, Mélanie; Michelsen, Susan Ishøy; Parkes, Jackie; Parkinson, Kathryn; Thyen, Ute; Beckung, Eva; Dickinson, Heather O; Fauconnier, J.; Marcelli, Marco; McManus, Vicki; Colver, Allan

doi:10.1542/peds.2007-0854

Cited by 172 publications

(170 citation statements)

References 63 publications

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“…It was established that the general level of self-evaluation and self-assessment in children with CP is not under direct influence of the level of motor functioning (Schuengel et al, 2006). Neither does the level of impairment show liner correlation with the quality of life of children with CP, at least not in all domains, as corroborated by the study of Arnaud and collaborators, who interviewed 818 children with CP, of chronological age between 8 and 12 years, and based on results concluded that children with milder manifestations in clinical picture scored less for the domains of emotional development and personal perception of social position and acceptance, wile the children with major disabilities had more problems in the domain of physical well-being, independence and keeping social relations with peers (Arnaud et al, 2008).…”

Section: Self-concept Of Individuals With Cpmentioning

confidence: 73%

Self-esteem of individuals with cerebral palsy

Svetlana¹,

Odović²,

Bojan³

2012

II International Scientific Conference Special Education and Rehabilitation - Cerebral Palsy, Book of Proceedings and Summaries

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Section: Self-concept Of Individuals With Cpmentioning

confidence: 73%

Self-esteem of individuals with cerebral palsy

Svetlana¹,

Odović²,

Bojan³

2012

II International Scientific Conference Special Education and Rehabilitation - Cerebral Palsy, Book of Proceedings and Summaries

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“…Other studies have evaluated the quality of life of mothers with sick children and compared results with mothers of healthy children (7,(23)(24)(25). Those studies showed similar results to those from this study, indicating significant differences between quality of life for mothers of children with CP and others.…”

Section: Discussionmentioning

confidence: 99%

Effect of child's cerebral palsy on the mother: a case control study in Ahvaz, Iran

Borzoo¹,

Nickbakht²,

Jalalian³

2014

Acta Facultatis Medicae Naissensis

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S U M M A R YQuality of life (QOL) in families can be affected when a child has cerebral palsy (CP). The aim of this research was to determine the effect of a child's disability on the mother's quality of life by comparing mothers of children with CP and mothers of normal children.Two sample groups were chosen from a total of 42 mothers to answer a short-form health survey (SF-36) questionnaire. The first group included 21 mothers of children with cerebral palsy who were referred to the speech therapy clinic of Jundishapur University of Medical Sciences in Ahvaz. The second group consisted of 21 mothers of normal children living in Ahvaz. T-tests by SPSS were used for statistical analysis.There were significant differences in all domains of QOL between mothers of healthy children and mothers of children with cerebral palsy (p=0.001).This research found that the quality of life of mothers of children with CP was significantly different compared to mothers of healthy children. Therefore, appropriate planning is necessary to improve their quality of life in different domains.

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“…It should be noted that it is better to assess an effect of disease on man by using a measurement that is envisaged for healthy people, since the obtained data will show the differences between the feelings and functioning of a healthy and ill person (Arnaud et al, 2008). Therefore, at present there is no tendency to develop special quality of life instruments for a particular target group with a certain disease.…”

Section: Methodsmentioning

confidence: 99%