2023
DOI: 10.1001/jamanetworkopen.2023.13503
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Parent Priorities in End-of-Life Care for Children With Cancer

Abstract: ImportanceRobust quality measures to benchmark end-of-life care for children with cancer do not currently exist; 28 candidate patient-centered quality measures were previously developed.ObjectiveTo prioritize quality measures among parents who lost a child to cancer.Design, Setting, and ParticipantsThis survey study was conducted using an electronic, cross-sectional discrete choice experiment (DCE) with maximum difference scaling from January to June 2021 in the US. In each of 21 questions in the DCE, particip… Show more

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References 59 publications
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