Parent Perspectives of Neonatal Intensive Care at the End-of-Life

Currie, Erin; Christian, Becky J.; Hinds, Pamela S.; Perna, Samuel; Robinson, Cheryl Broadus; Day, Sara W.; Meneses, Karen

doi:10.1016/j.pedn.2016.03.023

Cited by 78 publications

(133 citation statements)

References 44 publications

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“…Line of argument synthesis was used to develop insight into the experience of bearing witness and the association with helplessness—each phenomenon following the other. Grandparents discussed the anguish of seeing the pain in their own children, but feeling powerless to help them; similar findings were reported in parents (Currie et al., ; Van Der Geest et al., ). Comprehension of this was mixed—some grandparents appeared to accept the inevitability of parental pain, accepting it as an unavoidable element of the grieving process; others really struggled in not being able to take away or ‘make better’ the emotional pain of their children.…”

Section: Discussionsupporting

confidence: 59%

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Understanding the bereavement experience of grandparents following the death of a grandchild from a life‐limiting condition: A meta‐ethnography

Tatterton

Walshe

2019

Journal of Advanced Nursing

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Aim To increase understanding of grandparental grief following the death of a grandchild from a life‐limiting condition. Design Meta‐ethnography. Data sources Academic Search Complete CINHAL, Embase, psycINFO, PubMed and Web of Science, supplemented by manual search strategies (in 2015, updated 2018). Review methods Studies were appraised and synthesized using the principles of meta‐ethnography. Findings Three superordinate themes were identified: ‘influence of the relationship with their grandchild’, ‘influence of the relationship with the grandchild's family’ and ‘pain’. The simultaneous, multigenerational position of grandparents meant individuals experience emotional pain from witnessing the experience of family members. Conclusion Many factors that contribute to the bereavement experience of grandparents are outside of their control. The roles, positions, and support needs of grandparents need to be acknowledged to better meet their needs as parents, grandparents, and individuals who have experienced a child death.

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Section: Discussionsupporting

confidence: 59%

“…There are clear similarities in grief responses to childhood death by parents and grandparents (White, ) and those who have experienced perinatal deaths (Black, Howard, & Bakewell‐Sachs, ; Currie et al., ; Mancini, Uthaya, Beardsley, Wood, & Modi, ). However, Ponzetti () found that these were expressed less often by grandparents.…”

Section: Discussionmentioning

confidence: 99%

Understanding the bereavement experience of grandparents following the death of a grandchild from a life‐limiting condition: A meta‐ethnography

Tatterton

Walshe

2019

Journal of Advanced Nursing

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“…In the neonatal intensive care units, nurses are providing specialized and imperative care to little clients who have shaky vital signs as well as those with serious medical conditions that may lead to death. [38] According to Marek, Schaufeli, and Maslach (2017), [39] both psychological and physical health status of caregivers is affected by high work-related pressure and burnout which is proven to have an impact on their accomplishment. In this study, stress recognition in the NICUs was reported by about three quarters of the nurses (see Table 3), who perceive themselves as more inclined to make medical errors in tense or hostile situations.…”

Section: Discussionmentioning

confidence: 99%

Nurses’ perception about patient safety culture in neonatal intensive care units: A comparative study

El-Sayed

2018

JNEP

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Objectives: This study aimed to (1) verify whether the translated short form of the Safety Attitude Questionnaire gives consistent results when used to evaluate safety culture in the neonatal intensive care units; and (2) describe nurses’ perception about patient safety culture, comparing between both governmental and private neonatal intensive care units’ nurses.Methods: Research design: An exploratory, descriptive, comparative. Subjects: A purposive sample of 190 neonatal nurses. Setting: Six, level IV neonatal intensive care units (three private and three governmental) of hospitals affiliated to Mansoura City, and Mansoura University and Ministry of Health and Population, Egypt. Data collection tools were consisted of the demographic characteristics questionnaire sheet and the self-administered 4-type Likert scale Safety Attitude Questionnaire sheet with its six dimensions after it was translated into Arabic language.Results: The respondents' nurses differed in their rating on the Safety Attitude Questionnaire items; as well the percentages of positive and negative responses were showed significant differences among the Safety Attitude Questionnaire dimensions, within and between nurses of the governmental and private neonatal intensive care units. In addition, Cronbach’s total coefficient alpha of the six dimensions is considered strong, with Alpha coefficients were 0.86.Conclusions: The study findings affirmed the psychometric properties of the Arabic form of Safety Attitude Questionnaire and it turned out to be a successful tool to assess safety culture perceptions among neonatal intensive care units' nurses. Moreover, linked with their workplaces, significant variations in the neonatal nurses' responses toward safety culture related dimensions were detected.

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“…O avanço da tecnologia estendeu a vida de muitos recém-nascidos prematuros e de alto risco, criando, assim, dilemas éticos que, consequentemente, exigem cuidados dignos e compassivos para esses pacientes, na UTI Neonatal, e seus familiares, fazendo com que número significativo de recém-nascidos e suas famílias necessitem de cuidados especializados no final da vida (Currie et al, 2016).…”

Section: Introductionunclassified

“…Seu propósito é melhorar a qualidade de vida, tratando os sintomas e minimizando o sofrimento, sendo oferecido concomitantemente com o cuidado curativo ou sendo oferecido no final da vida (Oliveira et al, 2018). E nesses cuidados os enfermeiros estão em uma posição central para influenciar a qualidade das experiências dos cuidados de fim de vida durante a hospitalização de recém-nascidos na UTI Neonatal (Currie et al, 2016).…”

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As crenças dos enfermeiros relacionadas ao cuidado de recém-nascidos que morrem em UTI neonatal

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Parent Perspectives of Neonatal Intensive Care at the End-of-Life

Cited by 78 publications

References 44 publications

Understanding the bereavement experience of grandparents following the death of a grandchild from a life‐limiting condition: A meta‐ethnography

Understanding the bereavement experience of grandparents following the death of a grandchild from a life‐limiting condition: A meta‐ethnography

Nurses’ perception about patient safety culture in neonatal intensive care units: A comparative study

As crenças dos enfermeiros relacionadas ao cuidado de recém-nascidos que morrem em UTI neonatal

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