Parent Experiences Raising Young People with Type 1 Diabetes and Celiac Disease

Erickson, Kerri Louise; Freeborn, Donna; Roper, Susanne Olsen; Mandleco, Barbara; Anderson, Ashley; Dyches, Tina Taylor

doi:10.1016/j.pedn.2014.09.011

Cited by 22 publications

(40 citation statements)

References 58 publications

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“…The fear of developing other diseases, especially cancer, is also present due to the intake of gluten before the participant was aware he or she suff ered from celiac disease. A recent study corroborates the results found for this category in relation to the diffi culties parents have in managing the complications of both diseases (14) .…”

Section: Diffi Culty Receiving Another Diagnosis Of a Chronic Diseasesupporting

confidence: 85%

“…The only study we found on the experience of parents with children who suff ered from both diseases corroborates the fi ndings of this study in that it reports that the experience of adolescents with CD was more diffi cult due to the gluten-free diet. The parents perceived that their children felt more isolated and suff ered from bullying and jokes due to their diet after the CD diagnosis (14) .…”

Section: It Was Really Tough At Fi Rst I Used To Say That It Was Alrmentioning

confidence: 99%

“…In Brazil, internet access is not available to the entire population, although this tool is widely used by adolescents. A recent study recommends that nurses provide reliable sites that help patients obtain information and share their experiences (14) . In this sense, the nurses must also prepare and carry out educational activities to inform and help the children and adolescents adapt to the disease (11,19) .…”

Section: (A1)mentioning

confidence: 99%

“…In general, the children and adolescents seemed somehow supported by their families, although there were situations in which they did not get any support and felt they were a burden to their friends, as revealed by adolescents in another study. These children tend to isolate themselves from their peers and do not follow the treatment correctly (14)(15) .…”

Section: Not Getting Supportmentioning

confidence: 99%

See 3 more Smart Citations

Crianças e adolescentes que convivem com diabetes e doença celíaca

Brancaglioni

Rodrigues

Damião

et al. 2016

Rev. Gaúcha Enferm.

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Objective To understand the experience of children and adolescents living with type 1 diabetes and celiac disease. Method This is a qualitative exploratory-descriptive study. The participants were 3 children and 2 adolescents. The data were collected by means of semi-structured interviews between January and September 2012 at the participant's residence or at the diabetic outpatient clinic of the Hospital das Clinicas, Faculty of Medicine, University of Sao Paulo in São Paulo, Brazil. The content analysis technique was used to process the data. Results The key aspect of the illness experience of the patients was their diet, but with different meanings. The children had difficulty following the diet, while the adolescents reported that they had greater difficulty coping with the social and affective aspects of their diet. Conclusion The results reinforce the importance of nurses who seek strategies, together with the patients and their families, that help minimize the difficulties of these patients, especially with regard to managing the diet imposed by both diseases.

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Section: Diffi Culty Receiving Another Diagnosis Of a Chronic Diseasesupporting

confidence: 85%

Section: It Was Really Tough At Fi Rst I Used To Say That It Was Alrmentioning

confidence: 99%

Section: (A1)mentioning

confidence: 99%

Section: Not Getting Supportmentioning

confidence: 99%

See 2 more Smart Citations

Crianças e adolescentes que convivem com diabetes e doença celíaca

Brancaglioni

Rodrigues

Damião

et al. 2016

Rev. Gaúcha Enferm.

View full text Add to dashboard Cite

show abstract

“…However, the clinical significance of decreases in pain ratings combined with significant decreases in child and caregiver distress with respect to immunization highlights the utility of the intervention protocol. • A descriptive, qualitative study was conducted to explore parent experiences (N = 30 parents from 26 families) raising children or adolescents with dual diagnosis of type 1 diabetes (T1D) and celiac disease (CD) (Erickson et al, 2015). Thematic analysis revealed six themes focused on parental concerns, including: (a) long/short term health complications of T1D; (b) challenges of managing both diseases every day; (c) financial concerns associated with managing both diseases; (d) child's or adolescent's emotional and mental health; (e) experiences with healthcare providers; and (f) experiences with people outside of the family or people at school.…”

mentioning

confidence: 99%