Parent Distress and the Decision to Have Another Child After an Infant's Death in the NICU

Keim, Madelaine C.; Fortney, Christine A.; Shultz, Emily L.; Winning, Adrien M; Gerhardt, Cynthia A.; Baughcum, Amy E.

doi:10.1016/j.jogn.2017.01.009

Cited by 14 publications

(37 citation statements)

References 39 publications

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“…Sample sizes ranged from 4 to 122 participants, and fetal or perinatal deaths occurred across a range of gestations. Investigating subsequent pregnancy decisions was the main aim of five studies,19 21 47–49 while 10 studies reported relevant findings from studies where this was not the main focus. Seven studies focused solely on women’s experiences,21 47 48 50–53 seven included both parents15 16 19 49 54–56 and one included wider family members.…”

Section: Resultsmentioning

confidence: 99%

“…Investigating subsequent pregnancy decisions was the main aim of five studies,19 21 47–49 while 10 studies reported relevant findings from studies where this was not the main focus. Seven studies focused solely on women’s experiences,21 47 48 50–53 seven included both parents15 16 19 49 54–56 and one included wider family members. Participants predominantly reported ethnicity as white,15 16 21 49 52 56 relationship status as married or cohabiting15 16 19 21 48–51 53 54 and had completed some form of post-secondary education 16 48 49 54.…”

Section: Resultsmentioning

confidence: 99%

“…Eight studies reported data suggesting that parents form a clear idea about whether or not they wish to try to conceive again soon after the death of their baby 19 21 47 49–51 53 55…”

Section: Resultsmentioning

confidence: 99%

“…Six studies considered the experiences of both parents; four found that parents sometimes disagreed on the decision to try for another baby 16 19 49 54. This was a key observation in one study where fathers were observed to be more reluctant to consider a future pregnancy 19…”

Section: Resultsmentioning

confidence: 99%

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Pregnancy decisions after fetal or perinatal death: systematic review of qualitative research

et al. 2019

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ObjectivesTo synthesise the findings of qualitative research exploring parents’ experiences, views and decisions about becoming pregnant following a perinatal death or fetal loss.DesignSystematic review and meta-synthesis of qualitative research.Data sourcesMedline, Web of Science, CINAHL, PsycINFO, ASSIA, Embase, PUBMED, Scopus and Google Scholar.Eligibility criteriaNine electronic databases were searched using predefined search terms. Articles published in English, in peer-reviewed journals, using qualitative methods to explore the experiences and attitudes of bereaved parents following perinatal or fetal loss, were included.Data extraction and synthesisQualitative data relating to first-order and second-order constructs were extracted and synthesised across studies using a thematic analysis.Results15 studies were included. Four descriptive themes and 10 subthemes were identified. The descriptive themes were: deciding about subsequent pregnancy, diversity of reactions to the event, social network influences, and planning or timing of subsequent pregnancy. The decision to become pregnant after death is complex and varies between individuals and sometimes within couples. Decisions are often made quickly, in the immediate aftermath of a pregnancy loss, but may evolve over time. Bereaved parents may feel isolated from social networks.ConclusionsThere is an opportunity to support parents to prepare for a pregnancy after a fetal or perinatal loss, and conversations may be welcomed at an early stage. Health professionals may play an important role providing support lacking from usual social networks.PROSPERO registration numberCRD42018112839

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

“…Eight studies reported data suggesting that parents form a clear idea about whether or not they wish to try to conceive again soon after the death of their baby 19 21 47 49–51 53 55…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Pregnancy decisions after fetal or perinatal death: systematic review of qualitative research

et al. 2019

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“…These feelings represented a majority of the participants' rocks. Other studies have found that the loss of a child leaves parents struggling to overcome emotional barriers, including anxiety, guilt, and fear (Keim et al, 2017;Rogers et al, 2008).…”

Section: Discussionmentioning

confidence: 99%

Life After Losing an Adult Child to a Drug Overdose: A Kawa Perspective

Weis¹,

Kugel²,

Javaherian-Dysinger³

et al. 2019

The Open Journal of Occupational Therapy

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Background: Limited research is available to occupational therapy practitioners focusing on parents' abilities to cope with the loss of an adult child to a drug overdose. We examined the unique experiences of grieving parents from a Kawa model perspective to identify potential implications for occupational therapy. Methods: We used a qualitative approach in which 11 participants completed Kawa drawings and participated in semi-structured interviews. Results: Following a Kawa model analysis themes emerged: volatile nature of flow, support from inner circle and connection with outer circle, lonely islands, personal attributes of positivity and economics, and enhancing my river's flow. Conclusion: The loss of an adult child to a drug overdose presents health care professionals with a unique set of grieving circumstances, including changes in life roles and abilities to participate in occupations, which can be challenging to address. As a result, this study suggests the Kawa model is an effective assessment tool that should be considered for use when working with those grieving the loss of a child to a drug overdose.

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Complicated Grief After the Loss of a Baby: A Systematic Review About Risk and Protective Factors for Bereaved Women

2022

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This study sought to identify the factors associated with the development and prevention of complicated grief in women who have lost a baby. This is a systematic review of scientific articles in the main mental health databases: MEDLINE (PubMed), EMBASE, Latin American and Caribbean Health Sciences Literature (LILACS), and APA Databases (PsycINFO). The selection and data extraction processes occurred independently and blindly by two authors, considering the eligibility criteria. The analysis included publications from 2013 to 2021 of observational studies with adult women who had experienced losing a baby (during pregnancy up to 2 years of life) and that employed standardized instruments to evaluate grief. From the 8,200 records found, 23 articles were selected for analysis. As risk factors, we identified the presence of mother’s psychopathology, history of gestational loss, and social pressure for a new pregnancy, while as protective factors, we identified the presence of another child other than the deceased one, the quality of specialized healthcare, and the social support provided by either a partner, community, or spiritual activities. Furthermore, the studies pointed to the event of losing a baby as an opportunity for posttraumatic growth. Although complicated grief is often associated with other mental health conditions, such as anxiety, depression, or posttraumatic stress, it is necessary to differentiate it for a clearer understanding of the complicated grief as a singular condition, to enable access to appropriate care for bereaved mothers and families, as well as to promote public policies which provide support to them.

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Parent Distress and the Decision to Have Another Child After an Infant's Death in the NICU

Cited by 14 publications

References 39 publications

Pregnancy decisions after fetal or perinatal death: systematic review of qualitative research

Pregnancy decisions after fetal or perinatal death: systematic review of qualitative research

Life After Losing an Adult Child to a Drug Overdose: A Kawa Perspective

Complicated Grief After the Loss of a Baby: A Systematic Review About Risk and Protective Factors for Bereaved Women

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