Parent‐child interactions and children with cerebral palsy: An exploratory study investigating emotional availability, functional ability, and parent distress

Barfoot, Jacqueline; Meredith, Pamela; Ziviani, Jenny; Whittingham, Koa

doi:10.1111/cch.12493

Cited by 38 publications

(29 citation statements)

References 37 publications

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“…In a study that used the same child-reported parenting dimensions, Cohen et al (2008) found that rejecting parenting positively predicted an external locus of control (i.e., the perception of not being able to control one's life) in children and adolescents with CP. A third relevant study found that parents' responsiveness, as observed during interactions with their child (aged between 2 and 12 years), related negatively to child behavioral problems and positively to prosocial child behavior (Barfoot et al, 2017). Further, research showed that childperceived overprotection (i.e., an autonomy-suppressing type of parenting involving excessive protection) related to more anxiety and less happiness (Ho et al, 2008) and to lower self-esteem (Manuel, Balkrishnan, Camacho, Smith, & Koman, 2003) in children, adolescents, and early adults with CP.…”

Section: The Influence Of Parenting On the Development Of Children Wimentioning

confidence: 99%

“…This pathway indicates that daily feelings of pressure, social alienation, and personal failure leave parents vulnerable to relying on pressuring behaviors when interacting with their child. The need-frustrating experiences probably cause feelings of stress and agitation among parents, feelings that, in turn, prompt parents to engage in more dysfunctional parenting behaviors (Barfoot et al, 2017;Dieleman et al, 2018, Van der Kaap-Deeder et al, 2019.…”

Section: Parents' Daily Psychological Needs In Relation To Daily Parementioning

confidence: 99%

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Daily parenting of children with cerebral palsy: The role of daily child behavior, parents’ daily psychological needs, and mindful parenting

et al. 2020

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The purpose of this study was to advance the current understanding of the daily dynamics that are involved in raising a child with Cerebral Palsy (CP). Specifically, we examined the role of mindful parenting and of day-to-day variation in parents’ psychological needs and child behavior in explaining day-to-day variation in parents’ autonomy-supportive, psychologically controlling, and responsive parenting behavior. Parents (N = 58) of children with CP (Mage = 12.68 years) participated in a 7-day diary study. Multilevel analyses indicated that parents’ autonomy-supportive, psychologically controlling, and responsive behaviors fluctuate considerably between days. Further, daily fluctuations in both child behavior and parents’ own psychological needs were found to be associated with this daily variability in parenting. In addition, interindividual differences in mindful parenting were associated positively with parents’ responsiveness and negatively with psychologically controlling parenting across the week. These findings point towards the changeability of parenting behavior among parents of a child with CP and suggest that interventions targeting parenting behavior in the context of CP will be most effective when taking into account both the parents’ and the child's functioning.

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Section: The Influence Of Parenting On the Development Of Children Wimentioning

confidence: 99%

Section: Parents' Daily Psychological Needs In Relation To Daily Parementioning

confidence: 99%

Daily parenting of children with cerebral palsy: The role of daily child behavior, parents’ daily psychological needs, and mindful parenting

et al. 2020

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“…There were links between parent distress and lower levels of emotional availability for parents and their child with CP. In contrast to expectations, Barfood et al [21] found no association between emotional availability and the level of the child's functional status. Results do not always converge, probably as a consequence of the samples' heterogeneity and the methodologies employed in the different studies.…”

Section: Discussionmentioning

confidence: 83%

“…There were conflicting results. Some studies found that depression and anxiety levels of mothers were associated with functional disability levels in children with CP [18,19] and others were not found any assosiation beetween mothers mood and functional level of children with CP [20,21]. There were links between parent distress and lower levels of emotional availability for parents and their child with CP.…”

Section: Discussionmentioning

confidence: 99%

Serebral palsili çocukların klinik özellikleri ile ebeveynlerinin duygudurumları arasındaki ilişki

Sarsan¹

2019

Pamukkale Medical Journal

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Purpose: The aim of this study was to compare the depression and anxiety levels between mothers and fathers of children with ceebral palsy (CP) and to explore the association between the clinical features of children with CP and the moods of their parents. Materials and methods: A total of 95 children with CP and their parents were included in this cross sectional study. The type of CP was identified and their functional levels were assessed with the Gross Motor Functional Classification System and the Bimanual Fine Motor Function. The depression and anxiety levels of parents was evaluated with Hospital Anxiety and Depression Scale. Results: The mothers of children with CP had significantly higher anxiety levels compared to the fathers of children with CP whereas there were no statistically significant difference between depression levels of mothers and fathers. Mother's anxiety and depression levels showed positive correlation with functional status of children with CP. Father's depression level, furthermore a positive correlation between mother's anxiety level and father's anxiety level was demonstrated. Moreover, father's depression and anxiety level exhibited a poor positive correlation with functional status of children with CP. Conclusion: Our findings indicate that mothers of children with CP had significantly higher anxious mood compared to the fathers of them. Identifying which factors are associated with moods of each parents of children with CP may provide benefit in order to determine the active support for family. Key words: Cerebral palsy, moods of parents, depression, anxiety. Sarsan A. The relationship between the clinical features of children with cerebral palsy and the moods of their parents. Pam Med J 2019;12:107-114. ÖzetAmaç: Bu çalışmanın amacı, serebral palsili (SP) çocukların anneleri ve babaları arasındaki depresyon ve anksiyete düzeylerini karşılaştırmak ve SP'li çocukların klinik özellikleri ile ebeveynlerinin duygudurumları arasındaki ilişkiyi araştırmaktı. Gereç ve yöntem: Bu kesitsel çalışmaya, toplamda 95 SP'li çocuk ve onların ebeveynleri dahil edildi. SP'nin tipi tanımlandı ve SP'lilerin fonksiyonel seviyeleri Kaba Motor Fonksiyon Sınıflama Sistemi ve Bimanual Fine Motor Fonksiyon ile değerlendirildi. Ebeveynlerin depresyon ve anksiyete düzeyleri ise Hastane Anksiyete ve Depresyon Ölçeği ile değerlendirildi. Bulgular: SP'li çocukların anneleri ve babalarının depresyon düzeyleri arasında istatistiksel olarak anlamlı bir fark bulunmazken, SP'li çocukların annelerinin anksiyete düzeyleri babalarına göre anlamlı olarak daha yüksek bulunmuştur. Annelerin anksiyete ve depresyon düzeylerinin SP'li çocukların fonksiyonel durumu ve babaların depresyon düzeyi ile pozitif korelasyon gösterdiği, ayrıca annelerin anksiyete düzeyi ile babaların anksiyete düzeyleri arasında pozitif bir ilişki olduğu gösterilmiştir. Diğer taraftan, babaların depresyon ve anksiyete düzeyi, SP'li çocukların fonksiyonel durumları ile zayıf pozitif korelasyon göstermiştir. Sonuç: Elde ettiğimiz bulgular, SP'li çocukl...

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“…Many physical, occupational, and speech and language therapy interventions, however, focus on improving (motor) performance of the child, which often requires a task-oriented approach [4]. Hence, implementation of therapeutic strategies can interfere with the parent-child emotional availability and interaction [6,9]. These potential disadvantageous consequences of collaborative service delivery can lead to an increase of perceived parental stress as a secondary, adverse effect of paramedical therapies (i.e., physical, occupational, and speech and language therapy) [7].…”

Section: Introductionmentioning

confidence: 99%

Therapy-related stress in parents of children with a physical disability: a specific concept within the construct of parental stress

Beckers

Smeets

Burg

2019

Disability and Rehabilitation

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The aim of this article is to conceptualise the phenomenon of therapy-related parental stress in parents of children with a physical disability. Methods: Three models related to parental stress were reviewed, i.e., general parental stress, burden of caregiving in parents of children with physical disabilities, and experiences of these parents with their child's therapy. Results: The proposed definition of therapy-related parental stress is "the subjective stress and subsequent changes of functioning and health experienced by a parent of a child with a physical disability in response to paramedical therapies (i.e., physical, occupational, and/or speech and language therapy)". A theoretical model is proposed to describe the process of therapy-related parental stress. Available questionnaires will most likely not be valid and responsive to capture the (changes in) stress parents experience related to therapy their child receives. Conclusions: This article provides a first definition of therapy-related parental stress and a theoretical model to visualise the processes with regard to this topic. Empirical testing of the presented components and their coherence is needed to confirm or improve the model. A questionnaire that specifically measures the concept of therapy-related parental stress is needed, along with evaluating therapy-related parental stress in clinical practice and research. ä INDICATIONS FOR REHABILITATION It is imperative to recognise paramedical therapies (i.e., physical, occupational, and speech and language therapy) as a potential stressor for parents of children with a physical disability, both in paediatric rehabilitation practice and research. A definition and theoretical model of therapy-related parental stress is proposed and the need for measures to evaluate this phenomenon is argued. The authors provide a starting point for the evidence base of the concept of therapy-related parental stress.

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Parent‐child interactions and children with cerebral palsy: An exploratory study investigating emotional availability, functional ability, and parent distress

Cited by 38 publications

References 37 publications

Daily parenting of children with cerebral palsy: The role of daily child behavior, parents’ daily psychological needs, and mindful parenting

Daily parenting of children with cerebral palsy: The role of daily child behavior, parents’ daily psychological needs, and mindful parenting

Serebral palsili çocukların klinik özellikleri ile ebeveynlerinin duygudurumları arasındaki ilişki

Therapy-related stress in parents of children with a physical disability: a specific concept within the construct of parental stress

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