Parent centered planning: A new model for working with parents with intellectual and developmental disabilities

Lightfoot, Elizabeth; DeZelar, Sharyn

doi:10.1016/j.childyouth.2020.105047

Cited by 9 publications

(10 citation statements)

References 32 publications

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“…The SCEP was administered as part of a parent-focused planning approach. In line with previous research [48], this program was able to help participants unload their parenting burden by encouraging them to express their emotions and difficulties verbally, thereby sharing their experiences with other parents. The fact that the participants were all caregivers of children with developmental disorders stimulated interactions within the group, providing an outlet for them to share real-life experiences [49], thereby alleviating their parenting burden.…”

Section: Discussionsupporting

confidence: 64%

Effects of a Sociodrama-based Communication Enhancement Program on Mothers of Children with Neurodevelopmental Disorders: A Pilot Study

Jang

Han

Bang

et al. 2022

Asian Nursing Research

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Section: Discussionsupporting

confidence: 64%

Effects of a Sociodrama-based Communication Enhancement Program on Mothers of Children with Neurodevelopmental Disorders: A Pilot Study

Jang

Han

Bang

et al. 2022

Asian Nursing Research

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“…Moreover, due to long lasting prejudices, mothers with disabilities are not only ‘selectively’ visible but even ‘silenced’ (Lourens, 2018) in research, policy and practice. This can lead to families not getting the services they require and lead to the poorer outcomes which propagate the stereotypes in the first place (Lightfoot et al, 2020; Lindblad et al, 2013).…”

Section: Mothering With Disabilitymentioning

confidence: 99%

Still waters run deep: The invisible life of working mothers with disabilities in Lithuania

Gevorgianienė

Šumskienė

Bradley

2022

Qualitative Social Work

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This article explores the challenges faced by women with disabilities in combining the roles of ‘mother’ and ‘worker’ in Lithuania and reflects on the strategies mothers employed to overcome these. Semi-structured interviews were undertaken with twenty women with a variety of (dis)abling conditions and diverse life experiences between 2014 and 2018. In-depth thematic analysis by qualitative research teams revealed a constant tension in women’s aspirations to have a family and work. This revealed women’s enormous personal resources which facilitated them to overcome challenges they faced in motherhood as well as seemingly insurmountable obstacles to employment. However, within the vicious circle of social and economic challenges, they fought their battles with silent compliance, which hid their experiences and potentially denied them opportunities for support. This research reveals a policy response in Lithuania that categorises disability as an individual issue to be overcome rather than a socially constructed experience. The findings indicate the need for reframing understanding at macro, as well as micro-level policy interventions. At the micro-level, sensitive forms of professional support would help mothers with disabilities to choose more pronounced strategies of coping while also maintaining their dignity and privacy. These findings provide insights into the specific situation of women in Lithuania but are also relevant to many other contexts.

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“…In the United Kingdom, for example, this rate was at 48% (Emerson et al, 2005). More recent international data have pointed out that around 20% of all children who are removed by Child Protective Services are from parents with intellectual disabilities (Lightfoot & DeZelar, 2020; Pacheco et al, 2022). The risk of losing the custody of their children is much higher in mothers with intellectual disabilities and the fear that they have of this happening has been consistently underlined by studies in the field (Bachrach, 2023; Lightfoot & DeZelar, 2020; Slayter & Jensen, 2019).…”

Section: Introductionmentioning

confidence: 99%

“…More recent international data have pointed out that around 20% of all children who are removed by Child Protective Services are from parents with intellectual disabilities (Lightfoot & DeZelar, 2020; Pacheco et al, 2022). The risk of losing the custody of their children is much higher in mothers with intellectual disabilities and the fear that they have of this happening has been consistently underlined by studies in the field (Bachrach, 2023; Lightfoot & DeZelar, 2020; Slayter & Jensen, 2019). This fear has been identified as one of the variables explaining women's delay in asking for help, telling others about the pregnancy, and engaging with the support offered to them (Jamieson et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

Motherhood and intellectual disability in Spain: Experienced difficulties and shared desires for change

Rio‐Poncela,

Rojas‐Pernia

2023

Brit J Learn Disabil

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BackgroudDespite the advancements in the rights of persons with disabilities in Western countries, the motherhood of women with intellectual disabilities remains scarcely visible. The approval of the Convention on the Rights of Persons with Disabilities (2006) and its subsequent ratification by the Spanish Government (2008) recalls the obligation to fulfil the rights of persons with disabilities to found a family (art. 23) and to choose who they want to live with (art. 19). While the importance of this legislation is undeniable, the personal experiences of women with intellectual disabilities still demand effective changes.MethodsThis article reports the results of a study entitled Subjectivities and motherhood in women with intellectual disabilities. Reflections in dialogue through an inclusive research project. In this study, we delved into the stories of 13 women, aged between 24 and 72, to learn about their motherhood experiences (before, during and after making the decision of being mothers) and to identify the barriers and supports encountered. Methods for data collection included individual semi‐structured interviews, discussion groups and other narrative and visual resources (images and biograms).FindingsThis study explores in depth the obstacles identified by the participating mothers, which have been organised around six themes: (1) information and guidance on sexuality and family planning, (2) assistance of health services, (3) employment and housing situation, (4) child custody, (5) raising children, and (6) informal support. The participants encountered difficulties in all the above fields related to contextual factors. In other words, these barriers do not derive from individual issues centred on their disability, but from factors that often do not depend on mothers with intellectual disabilities, such as deprivation of socio‐educational opportunities.ConclusionsOur results show the nuanced ways in which these mothers were immersed in a social system that questions them as ‘good mothers’ and violates their rights. As we discussed, the participants' desires and decisions to engage and/or continue with motherhood constitute an exercise of resistance to this system.

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Parent centered planning: A new model for working with parents with intellectual and developmental disabilities

Cited by 9 publications

References 32 publications

Effects of a Sociodrama-based Communication Enhancement Program on Mothers of Children with Neurodevelopmental Disorders: A Pilot Study

Effects of a Sociodrama-based Communication Enhancement Program on Mothers of Children with Neurodevelopmental Disorders: A Pilot Study

Still waters run deep: The invisible life of working mothers with disabilities in Lithuania

Motherhood and intellectual disability in Spain: Experienced difficulties and shared desires for change

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