Parent and Adolescent Distribution of Responsibility for Diabetes Self-care: Links to Health Outcomes

Helgeson, Vicki S.; Reynolds, Kerry; Siminerio, Linda M.; Escobar, Oscar; Becker, Dorothy J.

doi:10.1093/jpepsy/jsm081

Cited by 183 publications

(232 citation statements)

References 23 publications

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“…Caregivers often allow children to assume increasing responsibility for medication adherence as they become older and show signs of maturity, [8][9][10][11] which for some may be an appropriate means of preparing children for self-care during adulthood. Children and adolescents may appreciate the opportunity to control whether or not and when they get their medications, leaving them with less anger and greater regimen-specific self-efficacy, 52 while caregivers may be relieved to relinquish medication responsibilities. 53 Unfortunately, across chronic conditions, data consistently show that for many, adolescence-the time when caregivers are most likely to grant their children greater responsibility-is a time of poor adherence to medical regimens.…”

Section: Said They Used No Strategiesmentioning

confidence: 99%

Family Experiences with Pediatric Antiretroviral Therapy: Responsibilities, Barriers, and Strategies for Remembering Medications

Marhefka

Koenig

Allison

et al. 2008

AIDS Patient Care and STDs

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This study examines the relationship between adherence to pediatric HIV regimens and three family experience factors: (1) regimen responsibility; (2) barriers to adherence; and (3) strategies for remembering to give medications. Caregivers of 127 children ages 2-15 years in the PACTS-HOPE multisite study were interviewed. Seventy-six percent of caregivers reported that their children were adherent (taking Ն 90% of prescribed doses within the prior 6 months). Most caregivers reported taking primary responsibility for medication-related activities (72%-95% across activities); caregivers with primary responsibility for calling to obtain refills (95%) were more likely to have adherent children. More than half of caregivers reported experiencing one or more adherence barriers (59%). Caregivers who reported more barriers were also more likely to report having non-adherent children. Individual barriers associated with nonadherence included forgetting, changes in routine, being too busy, and child refusal. Most reported using one or more memory strategies (86%). Strategy use was not associated with adherence. Using more strategies was associated with a greater likelihood of reporting that forgetting was a barrier. For some families with adherence-related organizational or motivational difficulties, using numerous memory strategies may be insufficient for mastering adherence. More intensive interventions, such as home-based nurse-administered dosing, may be necessary. 637

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Section: Said They Used No Strategiesmentioning

confidence: 99%

Family Experiences with Pediatric Antiretroviral Therapy: Responsibilities, Barriers, and Strategies for Remembering Medications

Marhefka

Koenig

Allison

et al. 2008

AIDS Patient Care and STDs

View full text Add to dashboard Cite

show abstract

“…Based upon research, we do know that keeping parental involvement high through shared responsibility, keeping communications open with the physician, and interventions such as motivational interviews are all contributors to more frequent testing, improved compliance, and tighter metabolic control. [16][17][18] Since 2000, the TATRC has invested in approximately 120 diabetes-related projects. One effort, the Pediatric Diabetes Education Portal, included education, practical management advice, feedback from finger stick A1C tests, and continuous glucose monitoring tools as well as direct physician access.…”

Section: Diabetes Managementmentioning

confidence: 99%

Virtual Reality and Interactive Gaming Technology for Obese and Diabetic Children: Is Military Medical Technology Applicable?

Talbot

2011

J Diabetes Sci Technol

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The Telemedicine and Advanced Technology Research Center has pursued a number of technologies that may have application to the problems of obesity and diabetes management in children. Children are getting fatter because of increased caloric intake and less physical activity. Furthermore, technology advances have failed to significantly improve metabolic control of type 1 diabetes. Behavioral strategies should target video games, mobile phones, and other popular items used by children and seen by them as necessities. Exergaming is considerably more active than traditional video gaming and can be equivalent to moderate-intensity exercise. Diabetes equipment such as continuous glucose monitors and insulin pumps lack integration and live connectivity and suffer from a poor user interface. In contrast, mobile phones offer wireless connectivity, an excellent voice-enabled interface, and cloud connectivity that could possibly serve as a motivational and compliance tool for diabetes patients through text messaging to the patient, parents, and physician. Mobile phones have the potential to motivate and educate obese children as well. Exergaming for obese children could also be integrated into award systems of game consoles and game play time. The key to successful implementation of these strategies depends on the ability to integrate and connect the various technologies.

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“…Parent reported internalizing disorders are believed to be present in approximately 28% of individuals with diabetes [44] [45] and, similar to externalizing disorders, co-morbid presenting internalizing disorders have been associated with a worse prognosis in youth with T1D. [46] As suggested by empirical findings both cross sectionally and longitudinally, [47] reason for this worse prognosis likely stems from poorer adherence and glycemic control as a result of the internalizing symptoms. For example, a youth with depression may struggle to adhere to the recommendations of their primary care physician due to a lack of motivation, feelings of helplessness, and decreased energy.…”

Section: The Challenges Of Type 1 Diabetesmentioning

confidence: 99%

Contributing Factors to Poor Adherence and Glycemic Control in Pediatric Type 1 Diabetes: Facilitating a Move Toward Telehealth

McNamara¹,

Reid²,

Freedland³

et al. 2011

Type 1 Diabetes - Complications, Pathogenesis, and Alternative Treatments

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Parent and Adolescent Distribution of Responsibility for Diabetes Self-care: Links to Health Outcomes

Abstract: These findings highlight the importance of shared responsibility for diabetes self-care through early to middle adolescence.

Cited by 183 publications

References 23 publications

Family Experiences with Pediatric Antiretroviral Therapy: Responsibilities, Barriers, and Strategies for Remembering Medications

Family Experiences with Pediatric Antiretroviral Therapy: Responsibilities, Barriers, and Strategies for Remembering Medications

Virtual Reality and Interactive Gaming Technology for Obese and Diabetic Children: Is Military Medical Technology Applicable?

Contributing Factors to Poor Adherence and Glycemic Control in Pediatric Type 1 Diabetes: Facilitating a Move Toward Telehealth

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