Palliative Care Utilization Among Non-Western Migrants in Europe: A Systematic Review

Shabnam, Jahan; Timm, Helle Ussing; Nielsen, Dorthe Susanne; Raunkiær, Mette

doi:10.1007/s10903-021-01302-8

Cited by 6 publications

(5 citation statements)

References 63 publications

(227 reference statements)

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“…Families are forced to seek ways of living between these tensions. There is a sense of hysteresis or ‘being pulled between’ as families navigate illness and dying when family members live in different places in the world [ 8 , 9 ]. Often it is simply who lives where that determines who makes the decisions.…”

Section: Discussionmentioning

confidence: 99%

Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory

De Souza,

Gillett,

Salifu

et al. 2024

BMC Palliat Care

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Background Ethnic differences influence end-of-life health behaviours and use of palliative care services. Use of formal Advance care planning is not common in minority ethnic heritage communities. Older adults expect and trust their children to be their decision makers at the end of life. The study aim was to construct a theory of the dynamics that underpin end-of-life conversations within families of African and Caribbean heritage. This is a voice not well represented in the current debate on improving end-of-life outcomes. Methods Using Charmaz’s constructivist grounded theory approach, a purposive sample of elders, adult-children, and grandchildren of African and Caribbean Heritage were recruited. In-person and online focus groups were conducted and analysed using an inductive, reflexive comparative analysis process. Initial and axial coding facilitated the creation of categories, these categories were abstracted to constructs and used in theory construction. Results Elders (n = 4), adult-children (n = 14), and adult grandchildren (n = 3) took part in 5 focus groups. A grounded theory of living and dying between cultural traditions in African and Caribbean heritage families was created. The constructs are (a) Preparing for death but not for dying (b) Complexity in traditions crosses oceans (c) Living and dying between cultures and traditions (d) There is culture, gender and there is personality (e) Watching the death of another prompts conversations. (f) An experience of Hysteresis. Discussion African and Caribbean cultures celebrate preparation for after-death processes resulting in early exposure to and opportunities for discussion of these processes. Migration results in reforming of people’s habitus/ world views shaped by a mixing of cultures. Being in different geographical places impacts generational learning-by-watching of the dying process and related decision making. Conclusions Recognising the impact of migration on the roles of different family members and the exposure of those family members to previous dying experiences is important. This can provide a more empathetic and insightful approach to partnership working between health care professionals and patients and families of minority ethic heritage facing serious illness. A public health approach focusing on enabling adult-children to have better end of life conversations with their parents can inform the development of culturally competent palliative care.

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Section: Discussionmentioning

confidence: 99%

Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory

De Souza,

Gillett,

Salifu

et al. 2024

BMC Palliat Care

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“…Inevitably, this has led to migrants dying away from their country of origin (Bray et al, 2018;OECD, 2017). Literature reviews undertaken in this area in the recent past identified communication, culture (Gerber et al, 2020;Kwok et al, 2020;Shabnam et al, 2022), limited knowledge and awareness of health information (Gerber et al, 2020;Shabnam et al, 2022), collectivism (Gerber et al, 2020;Kwok et al, 2020) and lack of focus from migrants' perspective (Kwok et al, 2020) as barriers to utilization of palliative care services by immigrants. Worldwide, there were 272 million international migrants in 2019.…”

Section: Introductionmentioning

confidence: 99%

“…Immigrants from CaLD background in high-income OECD countries have low utilization of palliative and EOL care services. As a result, patients’ family members take up the role of caring, leading to immigrants not fully benefiting from the specialized services that are offered, to alleviate suffering and promote quality of life (Shabnam et al, 2022). The situation has become more pronounced due to the increased rates of movement of people across boarders from low to high-income countries, the final destination for most immigrants (McAuliffe et al, 2022).…”

Section: Introductionmentioning

confidence: 99%

Palliative and End-of-Life Care Access for Immigrants Living in High-income Countries: A Scoping Review

Phiri,

Muge-Sugutt,

Porock

2023

Gerontology and Geriatric Medicine

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This scoping review aimed to explore what is known about palliative and End-of-Life (EOL) care access by immigrants with culturally and linguistically diverse (CALD) background living in high-income Organization for Economic Co-operation and Development (OECD) countries. CaLD immigrants have low utilization of palliative care services with patients’ family members taking up the role of caring, leading to immigrants not fully benefiting from the specialized services that are offered to alleviate suffering and promote quality of life. While there is some research in this area mainly in Europe, it cannot be said about all high-income OECD countries. Achieving person-centered care in high-income countries, requires identifying and addressing barriers to care access, especially by immigrants with CaLD background. Five-stage methodological framework by Arksey and O’Malley was used to undertake the review. Immigrants in OECD countries experience challenges in accessing palliative and EOL care services. The review also identified limited literature on the subject and establishes need for more research on the subject.

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“…Ethnic and cultural differences in uence patterns of health behaviours around end of life and in particular the take up of current palliative care services [1,2]. There are a range of factors at play including cultural approaches to advance care planning, end-of-life values, care preferences at the end of life and inequalities in the provision and accessibility of services [3][4][5][6][7][8][9][10].…”

Section: Introductionmentioning

confidence: 99%

Living and Dying between Cultural Traditions in African & Caribbean Heritage Families: A Constructivist Grounded Theory

Souza,

Gillett,

Salifu

et al. 2023

Preprint

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Background Ethnic differences influence end-of-life health behaviours and usage of palliative care. Advance care planning is not widely utilised in minority ethnic heritage communities. Older adults expect and trust their children to be their decision makers at the end of life. The study aim was to construct a theory of the dynamics that underpin end-of-life conversations within families of African and Caribbean heritage, a voice not well represented in the current debate on improving end-of-life outcomes. Methods Using Charmaz’s constructivist grounded theory approach, a purposive sample of elders, adult children, and grandchildren of African and Caribbean Heritage were recruited. In-person and online focus groups were conducted, analysed using an inductive, reflexive comparative analysis process. Initial and axial coding facilitated the creation of categories, these categories were abstracted to constructs and used in theory construction. Results Elders (n = 4), adult children (n = 14), and adult grandchildren (n = 3) took part in 5 focus groups. A grounded theory of living and dying between cultural traditions in African and Caribbean heritage families was created with the following constructs: a) Preparing for death but not for dying b) Complexity in traditions crosses oceans c) Living and dying between cultures and traditions d) There is culture, gender and there is personality e) Watching the death of another prompts conversations. f) An experience of Hysteresis. Discussion Preparation for after-death processes is celebrated in African and Caribbean cultures resulting in early exposure and opportunities for discussion of these processes. Migration results in reforming of people’s habitus/ world views shaped by a mixing of cultures. Being in different geographical places impacts generational learning-by-watching of the dying process and decisions that need to be made. Conclusions Recognising the role of family and the impact of migration on the exposure of those family members to previous dying experiences is important. This can provide a more empathetic and insightful approach to partnership working between health care professionals and patients and families facing serious illness. A public health approach focused on enabling adult children to have better end of life conversations with their parents can inform the development of culturally competent palliative care.

show abstract

Palliative Care Utilization Among Non-Western Migrants in Europe: A Systematic Review

Cited by 6 publications

References 63 publications

Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory

Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory

Palliative and End-of-Life Care Access for Immigrants Living in High-income Countries: A Scoping Review

Living and Dying between Cultural Traditions in African & Caribbean Heritage Families: A Constructivist Grounded Theory

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Palliative Care Utilization Among Non-Western Migrants in Europe: A Systematic Review

Cited by 6 publications

References 63 publications

Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory

Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory

Palliative and End-of-Life Care Access for Immigrants Living in High-income Countries: A Scoping Review

Living and Dying between Cultural Traditions in African &amp; Caribbean Heritage Families: A Constructivist Grounded Theory

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Living and Dying between Cultural Traditions in African & Caribbean Heritage Families: A Constructivist Grounded Theory