Palliative Care Patients’ Quality of Dying and Circumstances of Death—Comparison of Informal Caregivers’ and Health-Care Professionals’ Estimates

Stiel, Stephanie; Heckel, Maria; Wendt, Kim; Weber, M.; Ostgathe, Christoph

doi:10.1177/1049909118756616

Cited by 6 publications

(4 citation statements)

References 30 publications

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“…20 In this sense, PC plays a fundamental role in improving patients' and families' outcomes such as QoD, suffering, and quality of care. 5,11,21,22 This is the first study carried out in Spain in which QoD and its relationship with place of death and quality of care in an advanced cancer population in PC are analyzed. Factors such as the place where the patient is treated at the end of life play an important role in QoD.…”

Section: Discussionmentioning

confidence: 99%

“…In this context, it is not only a matter of preserving life at any price, but also of alleviating suffering as much as possible and trying to preserve the life that, in the patient's opinion, deserves to be lived 20 . In this sense, PC plays a fundamental role in improving patients' and families' outcomes such as QoD, suffering, and quality of care 5,11,21,22 …”

Section: Discussionmentioning

confidence: 99%

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The Quality of Dying and Death of Advanced Cancer Patients in Palliative Care and Its Association With Place of Death and Quality of Care

Sánchez

García

Roselló

et al. 2021

J Hosp Palliat Nurs

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The quality of dying and death is currently considered an objective to achieve at the end of life. The aim of this study is to analyze the quality of dying and death of advanced cancer patients in palliative care and its association with place of death and quality of care from the perspective of family caregivers. This is a cross-sectional study. The study sample included 72 family caregivers of advanced cancer patients in palliative care. For the evaluation of the quality of dying and death, the Spanish version of the Quality of Dying and Death Questionnaire was used. Quality of care was evaluated with the Palliative Care Outcome Scale. The mean (SD) total score on the Spanish version of the Quality of Dying and Death Questionnaire was 64.56 (20.97). The quality of dying and death was higher when the patients died at home, 70.45 (19.70), and it was positively correlated with quality of care (r = 0.61). Palliative care contributes to achieving a satisfactory quality of dying and death in Spanish advanced cancer patients. Further studies that evaluate interventions for improving the quality of dying and death in the advanced cancer population are needed.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The Quality of Dying and Death of Advanced Cancer Patients in Palliative Care and Its Association With Place of Death and Quality of Care

Sánchez

García

Roselló

et al. 2021

J Hosp Palliat Nurs

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“…Overall, the quality of death and dying was regarded as high in both groups, which may be indicative for a ceiling effect 34. In addition, it may reflect the high-quality of end-of-life care in the Netherlands.…”

Section: Discussionmentioning

confidence: 91%

Cluster-randomised trial of a nurse-led advance care planning session in patients with COPD and their loved ones

Houben

Spruit

Luyten

et al. 2019

Thorax

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RationaleAdvance care planning (ACP) is uncommon in patients with chronic obstructive pulmonary disease (COPD).ObjectivesTo assess whether a nurse-led ACP-intervention can improve quality of patient-physician end-of-life care communication in patients with COPD. Furthermore, the influence of an ACP-intervention on symptoms of anxiety and depression in patients and loved ones was studied. Finally, quality of death and dying was assessed in patients who died during 2-year follow-up.MethodsA multicentre cluster randomised-controlled trial in patients with advanced COPD was performed. The intervention group received an 1.5 hours structured nurse-led ACP-session. Outcomes were: quality of patient-physician end-of-life care communication, prevalence of ACP-discussions 6 months after baseline, symptoms of anxiety and depression in patients and loved ones and quality of death and dying.Results165 patients were enrolled (89 intervention; 76 control). The improvement of quality of patient-physician end-of-life care communication was significantly higher in the intervention group compared with the control group (p<0.001). The ACP-intervention was significantly associated with the occurrence of an ACP-discussion with physicians within 6 months (p=0.003). At follow-up, symptoms of anxiety were significantly lower in loved ones in the intervention group compared with the control group (p=0.02). Symptoms of anxiety in patients and symptoms of depression in both patients and loved ones were comparable at follow-up (p>0.05). The quality of death and dying was comparable between both groups (p=0.17).ConclusionOne nurse-led ACP-intervention session improves patient-physician end-of-life care communication without causing psychosocial distress in both patients and loved ones.

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“…Although palliative care is increasingly being provided at home by family members, the majority of patients still die in hospital settings, thus requiring professionals to confront with the challenges posed by the approaching death of dying cancer patients (5). Thus, maintaining healthy and skilled healthcare professionals' staff is essential for the successful functioning of palliative care services (6,7).…”

Section: Introductionmentioning

confidence: 99%

Taking care of dying patients through an ‘interprofessional ecosystem’: a grounded theory study on the experience of an interprofessional team in palliative care

Taffurelli

Barello

Camacho

et al. 2020

Scandinavian Caring Sciences

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Background: The interprofessional approach is part of the philosophy in palliative care, and its benefits are already documented. However, there are no evidence regarding the process through which the interprofessional team faces the process of the patient's end-of-life and how this experience might be of value for the team's development itself. The aim of this study was to analyse and understand the psychosocial processes that occurs when an interprofessional team accompanies patients and their families to death in palliative care, with the ultimate aim to develop a substantive theory to describe this phenomenon. Methods: A Grounded Theory method, as theorized by Strauss and Corbin, was adopted for this study. Data were collected through semi-structured interviews and then independently analysed using constant comparison analysis. Fourteen healthcare professionalsbelonging to different disciplines (doctor, nurse coordinator, nurse, nurse assistant, psychologist)were interviewed in a Northern Italy palliative care facility. Findings: The core category of this study was identified to be the process of accompaniment of the dying patient as an interprofessional ecosystem. Moreover, the results showed four main factors determining the development of the core psychosocial process: from professionals' 'Hidden Amazement' to 'Onerous Happiness' where 'Weaving of Professional Resources' and 'Work Meaning' are the underlying conditions to catalyse the process itself. Conclusion: Interprofessional care appears an essential value, which becomes the source of the team's strength when facing end-of-life experiences. Health policies and organisations should take the importance of the characteristics of the work environment more carefully. The meaning that professionals attribute to their work and to the team itself, indeed, it may have impact on the overall quality of care and contribute to sustain work engagement, even in stressful situations like end-of-life care.

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Palliative Care Patients’ Quality of Dying and Circumstances of Death—Comparison of Informal Caregivers’ and Health-Care Professionals’ Estimates

Cited by 6 publications

References 30 publications

The Quality of Dying and Death of Advanced Cancer Patients in Palliative Care and Its Association With Place of Death and Quality of Care

The Quality of Dying and Death of Advanced Cancer Patients in Palliative Care and Its Association With Place of Death and Quality of Care

Cluster-randomised trial of a nurse-led advance care planning session in patients with COPD and their loved ones

Taking care of dying patients through an ‘interprofessional ecosystem’: a grounded theory study on the experience of an interprofessional team in palliative care

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