Abstract:Objetivo: Investigar a vivência de enfermeiros ao cuidar de crianças com câncer sob cuidados paliativos. Método: Estudo exploratório com abordagem qualitativa, realizado com doze enfermeiros através de entrevista semiestruturada e submetido à análise de conteúdo. Resultados: Emergiram três categorias temáticas: Percepção de enfermeiros acerca da assistência a crianças com câncer em Cuidados Paliativos e apoio aos familiares, destacando a assistência voltada ao bem-estar e ao conforto; práticas de cuidado utili… Show more
“…Rapport, trust and understanding of the family dynamics and relationships were essential for nurses to develop strong therapeutic relationships (Chong & Abdullah, 2017; França et al., 2013; Mimmo et al., 2022; Reisinho et al., 2020; Teixeira Fernandes Dos San et al., 2020). Often, children with long‐term conditions were under the care of paediatric nurses far longer than children with acute conditions, which helped to allow a strong relationship to develop, but it could also be a difficult path to navigate whether nurses became emotionally attached to the family:With our chronic kids, I always end up really close to the families, just maybe because they're here for so long and I always have them.…”
Section: Resultsmentioning
confidence: 99%
“…Communication was seen as the most important attribute when developing a therapeutic partnership between nurses, children with long‐term conditions and their families. Nurses felt that transparent, clear verbal and non‐verbal communication was vital to deliver safe patient care (Denis‐Larocque et al., 2017; França et al., 2013; Giambra et al., 2017; Halpin, 2018; Newman et al., 2019; Ringnér et al., 2013; Teixeira Fernandes Dos San et al., 2020).…”
Section: Resultsmentioning
confidence: 99%
“…Parents had their own needs and expectations when it came to their child's care and nurses saw parents almost as an additional patient, who required their own strong relationship, care and support(Aein et al, 2011;Denis-Larocque et al, 2017;Giambra et al, 2017;Hopia & Heino-Tolonen, 2019;Newman et al, 2020).Developing a strong, supportive partnership with all members of the family was imperative for nursing staff when caring for children who have long-term conditions: I think if you can build up a good relationship with the family that certainly anchors everything else in place. (Neilson et al, 2013 page 451) Rapport, trust and understanding of the family dynamics and relationships were essential for nurses to develop strong therapeutic relationships(Chong & Abdullah, 2017;França et al, 2013;Mimmo et al, 2022;Reisinho et al, 2020;Teixeira Fernandes Dos San et al, 2020). Often, children with long-term conditions were under the care of paediatric nurses far longer than children with acute conditions, which helped to allow a strong relationship to develop, but it could also be a difficult path to navigate whether nurses became emotionally attached to the family: With our chronic kids, I always end up really close to the families, just maybe because they're here for so long and I always have them.…”
AimTo explore the experiences of partnership nursing among nurses when caring for children and young people with long‐term conditions, and their families.BackgroundPartnership nursing is promoted as a positive model of care among paediatric nurses, where shared roles and decision‐making, parental participation, mutual trust and respect, communication and negotiation are valued to create positive care experiences and enhance patient outcomes. Little is known about how nurses use partnership with both the patient and the parents in this triad to deliver partnership nursing.DesignA qualitative systematic review followed Joanna Briggs Institute meta‐aggregation approach and has been reported according to PRISMA guidelines.MethodsA comprehensive systematic search was conducted in seven electronic databases. Studies were assessed according to a pre‐determined inclusion criteria. Qualitative findings with illustrative participant quotes were extracted from included studies and grouped into categories to inform overall synthesised findings. Methodological quality assessment was conducted.FindingsA total of 5837 publications were screened, and 41 qualitative studies were included. Three overarching synthesised findings were identified: (1) Using education to promote feelings of safety and support, (2) Partnering to develop a strong therapeutic relationship and (3) Optimising communication underpinned by shared decision‐making principles to deliver individualised care.ConclusionNurses demonstrated successful partnership in their practice, but focused on developing dyadic nurse–parent and dyadic nurse–child partnerships. Future practice development that creates a three‐way triadic partnership may aid therapeutic relationships and shared decision‐making.Implications for clinical practiceClinicians can reflect on how dyadic partnerships (focusing on the child or the parent) may exclude opportunities for coherent care. Further exploration in practice, policy and research as to how nurses determine child competency and child and parent level of engagement in triadic partnership may improve the potential of meaningful shared decision‐making.
“…Rapport, trust and understanding of the family dynamics and relationships were essential for nurses to develop strong therapeutic relationships (Chong & Abdullah, 2017; França et al., 2013; Mimmo et al., 2022; Reisinho et al., 2020; Teixeira Fernandes Dos San et al., 2020). Often, children with long‐term conditions were under the care of paediatric nurses far longer than children with acute conditions, which helped to allow a strong relationship to develop, but it could also be a difficult path to navigate whether nurses became emotionally attached to the family:With our chronic kids, I always end up really close to the families, just maybe because they're here for so long and I always have them.…”
Section: Resultsmentioning
confidence: 99%
“…Communication was seen as the most important attribute when developing a therapeutic partnership between nurses, children with long‐term conditions and their families. Nurses felt that transparent, clear verbal and non‐verbal communication was vital to deliver safe patient care (Denis‐Larocque et al., 2017; França et al., 2013; Giambra et al., 2017; Halpin, 2018; Newman et al., 2019; Ringnér et al., 2013; Teixeira Fernandes Dos San et al., 2020).…”
Section: Resultsmentioning
confidence: 99%
“…Parents had their own needs and expectations when it came to their child's care and nurses saw parents almost as an additional patient, who required their own strong relationship, care and support(Aein et al, 2011;Denis-Larocque et al, 2017;Giambra et al, 2017;Hopia & Heino-Tolonen, 2019;Newman et al, 2020).Developing a strong, supportive partnership with all members of the family was imperative for nursing staff when caring for children who have long-term conditions: I think if you can build up a good relationship with the family that certainly anchors everything else in place. (Neilson et al, 2013 page 451) Rapport, trust and understanding of the family dynamics and relationships were essential for nurses to develop strong therapeutic relationships(Chong & Abdullah, 2017;França et al, 2013;Mimmo et al, 2022;Reisinho et al, 2020;Teixeira Fernandes Dos San et al, 2020). Often, children with long-term conditions were under the care of paediatric nurses far longer than children with acute conditions, which helped to allow a strong relationship to develop, but it could also be a difficult path to navigate whether nurses became emotionally attached to the family: With our chronic kids, I always end up really close to the families, just maybe because they're here for so long and I always have them.…”
AimTo explore the experiences of partnership nursing among nurses when caring for children and young people with long‐term conditions, and their families.BackgroundPartnership nursing is promoted as a positive model of care among paediatric nurses, where shared roles and decision‐making, parental participation, mutual trust and respect, communication and negotiation are valued to create positive care experiences and enhance patient outcomes. Little is known about how nurses use partnership with both the patient and the parents in this triad to deliver partnership nursing.DesignA qualitative systematic review followed Joanna Briggs Institute meta‐aggregation approach and has been reported according to PRISMA guidelines.MethodsA comprehensive systematic search was conducted in seven electronic databases. Studies were assessed according to a pre‐determined inclusion criteria. Qualitative findings with illustrative participant quotes were extracted from included studies and grouped into categories to inform overall synthesised findings. Methodological quality assessment was conducted.FindingsA total of 5837 publications were screened, and 41 qualitative studies were included. Three overarching synthesised findings were identified: (1) Using education to promote feelings of safety and support, (2) Partnering to develop a strong therapeutic relationship and (3) Optimising communication underpinned by shared decision‐making principles to deliver individualised care.ConclusionNurses demonstrated successful partnership in their practice, but focused on developing dyadic nurse–parent and dyadic nurse–child partnerships. Future practice development that creates a three‐way triadic partnership may aid therapeutic relationships and shared decision‐making.Implications for clinical practiceClinicians can reflect on how dyadic partnerships (focusing on the child or the parent) may exclude opportunities for coherent care. Further exploration in practice, policy and research as to how nurses determine child competency and child and parent level of engagement in triadic partnership may improve the potential of meaningful shared decision‐making.
“…Nos casos de câncer infanto-juvenil, dentre os tipos mais comum estão as leucemias, os neuroblastomas, tumor de Wilms, retinoplastoma, tumor germinativo, osteorsarcomas e sarcomas. Decorrentes da sua natureza embrionária e por composição de células indiferenciadas, os tratamentos atuais para essa faixa etária geralmente apresentam maior efetividade na grande maioria dos casos (Santos et al, 2020).…”
Os cuidados paliativos (CP) são caracterizados como a assistência ativa que engloba o corpo, mente e questões espirituais. Na pediatria são frequentemente utilizados para pacientes em estados graves de saúde e limitantes a vida como o câncer. Devido à complexidade e o longo período de tratamento os profissionais encontram algumas barreiras para a prestação de uma assistência de qualidade em especifico o enfermeiro por ser o profissional responsável pelo cuidado ao paciente. Objetiva-se por meio do estudo investigar através das evidencias cientificas os desafios da atuação do enfermeiro frente ao paciente oncopediátrico em tratamento paliativo. Foi utilizado o método de pesquisa integrativa, onde 16 artigos disponíveis na integra no período de 2015 a 2020, selecionados na Biblioteca virtual em saúde BVS, integram a amostra analisada. Os resultados demonstraram as principais dificuldades a prestação dos CP, sendo a maioria questões voltadas a educação. Conclui-se que existe grande necessidade do investimento e atualizações na formação e pratica clínica do profissional de enfermagem.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
