Palliative Care at Home: Reflections on HIV/AIDS Family Caregiving Experiences

Stajduhar, Kelli; Davies, Betty

doi:10.1177/082585979801400203

Cited by 44 publications

(46 citation statements)

References 35 publications

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“…For example, it is possible that caregivers who experience more role overload subsequently pull away from their social network members, shrinking their social world to focus exclusively on the PLHA. 17 Future studies should seek to follow the changes in reported overload over the course of the caregiving relationship, especially considering that disease progression can increasingly strain the caregiver/PLHA relationship. Also, measurements of disease severity, in terms of symptoms and complications experienced by PLHA and their seropositive caregivers could be important predictors of caregivers’ perceived role overload.…”

Section: Discussionmentioning

confidence: 99%

Caregiver Role Overload and Network Support in a Sample of Predominantly Low-Income, African-American Caregivers of Persons Living with HIV/AIDS: A Structural Equation Modeling Analysis

Mitchell

Knowlton

2011

AIDS Behav

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Research indicates the important role that informal caregivers play in improving the health and well-being of disadvantaged persons living with HIV/AIDS (PLHAs) in the United States. However, additional research is needed to understand how to reduce caregiver role overload that has the potential for distress and cessation of informal care. We used latent profile analysis and structural equation modeling (SEM) to examine the relationships among role overload, level of perceived support by network members, caregiver demographic characteristics, and social network members’ characteristics among a sample of 215 predominantly low-income, African-American informal caregivers. SEM results indicated that caregiver role overload was associated with being in the less supported group, younger age, and limited physical functioning. Interventions are needed to address the support needs of the majority of HIV caregivers, particularly physically impaired female caregivers, to improve their ability to care for themselves and reduce their potential for distress and cessation of care.

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Section: Discussionmentioning

confidence: 99%

Caregiver Role Overload and Network Support in a Sample of Predominantly Low-Income, African-American Caregivers of Persons Living with HIV/AIDS: A Structural Equation Modeling Analysis

Mitchell

Knowlton

2011

AIDS Behav

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“…14,28 For the most part, these caregivers reported that the help received influenced their coping in a positive way. This finding is somewhat contrary to previous research that has exposed some of the problematic issues that home-based caregivers can face with the healthcare system and its providers.…”

Section: The Caregiver's Sense Of Securitymentioning

confidence: 96%

“…26 As more and more of the responsibility for care of the dying is placed on family caregivers, there is growing concern about their ability to cope with the demands of caregiving. 27,28 Some research has examined the strategies that family caregivers of patients with cancer use to cope with such demands. Hull, 29 for example, conducted interviews with 14 family caregivers of cancer patients and found that creating windows of time for themselves, engaging in social comparison, and using cognitive reformulation helped caregivers cope with and minimize the stress of caregiving.…”

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confidence: 99%

Factors Influencing Family Caregivers' Ability to Cope With Providing End-of-Life Cancer Care at Home

et al. 2008

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CancerCoping Dying Family caregivers Home care Qualitative researchDying at home is a goal promoted by many healthcare providers and governments as a way to enhance the dying experience for cancer patients and their family members. A key element to realizing this goal is the availability of a family member who is willing to provide care at home. Little research has been conducted on the factors that influence family caregivers' ability to cope with providing end-of-life cancer care at home. The purpose of this qualitative study was to describe factors influencing family caregivers' ability to cope with providing such care. An interpretive descriptive research design guided this study. Semistructured interviews with 29 active family caregivers were conducted and thematically analyzed. Our findings suggest 5 factors that influenced the caregivers' ability to cope: (1) the caregiver's approach to life, (2) the patient's illness experience, (3) the patient's recognition of the caregivers' contribution to his or her care, (4) the quality of the relationship between the caregiver and the dying person, and (5) the caregiver's sense of security. Findings provide important information to assist in informing health services and policies directed at enhancing family caregivers' coping abilities. O ne of the important social changes of the last quarter century has been a shift in the setting for healthcare delivery away from institutions. There are few issues that embody the meaning of healthcare reform more than the move from facility-based to home-based care. Demographic shifts in the population, changing public expectations, technological and scientific advancements, and burgeoning costs are all factors that are expected to contribute to Caregivers' Ability to Provide End-of-Life Care at Home

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“…Its focus, however, is on adult children and the article is drawn from a US-based study. Another work on HIV/AIDS parenting is that of Stajduhar (1998) that makes reference to mothers' experiences in a study on family caregiving situations. There has, however, been a paucity of similar research done on the African continent.…”

Section: T Meyiwamentioning

confidence: 99%

Constructing an alternative family unit: families living with HIV/AIDS redefine African traditional parenting patterns

Meyiwa

2011

Social Dynamics

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Palliative Care at Home: Reflections on HIV/AIDS Family Caregiving Experiences

Cited by 44 publications

References 35 publications

Caregiver Role Overload and Network Support in a Sample of Predominantly Low-Income, African-American Caregivers of Persons Living with HIV/AIDS: A Structural Equation Modeling Analysis

Caregiver Role Overload and Network Support in a Sample of Predominantly Low-Income, African-American Caregivers of Persons Living with HIV/AIDS: A Structural Equation Modeling Analysis

Factors Influencing Family Caregivers' Ability to Cope With Providing End-of-Life Cancer Care at Home

Constructing an alternative family unit: families living with HIV/AIDS redefine African traditional parenting patterns

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