Palliative and supportive care: At the frontier of medical omnipotence

Stiefel, F.; Guex, Patrice

doi:10.1093/oxfordjournals.annonc.a010539

Cited by 14 publications

(8 citation statements)

References 18 publications

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“…It causes various physical and mental disorders in patients such as social isolation and spiritual pain 2,3 which affect their daily lives. Accordingly, the need for supportive care is increasing and it is vital to support the patients with cancer.…”

Section: Introductionmentioning

confidence: 99%

Unmet Supportive Care Needs of Iranian Cancer Patients and its Related Factors

Tabrizi¹,

Rahmani²,

Jafarabadi³

et al. 2016

J Caring Sci

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Introduction: Investigation of supportive care needs of cancer patients is important to implement any supportive care programs. There is no relevant studies investigated supportive care needs of Iranian cancer patients and factors affecting such needs. So, the aims of present study were to determine the unmet supportive care needs of Iranian cancer patients and its predictive factors. Methods: In this descriptive- correlational study 274 cancer patients in one referral medical center in North West of Iran participated. For data collection, demographic and cancer related information checklist and Supportive Care Needs Survey (SCNS) was used. Logistic regression was used for data analysis of un-adjusted and adjusted Odds Ratios (ORs) for patients needs and analysis of variables of study based on Backward LR procedure SPSS Ver.13. Results: More than fifty percent of participants reported unmet needs in 18 items of SCNS. Most frequent unmet needs were related to health system and information domains and most meet needs were related to sexuality and psychological domains. The result of logistic regression identified predictors of each domain of supportive care needs. The variable such as sex, age and living situation were most important predictors of unmet needs. Conclusion: The results showed that Iranian cancer patients have many supportive care needs in different domains. In general female cancer patients are at risk of more unmet supportive care needs. So, health care professionals should be more sensitive to fulfillment of supportive care needs of female.

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Section: Introductionmentioning

confidence: 99%

Unmet Supportive Care Needs of Iranian Cancer Patients and its Related Factors

Tabrizi¹,

Rahmani²,

Jafarabadi³

et al. 2016

J Caring Sci

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“…[34] This underpins the need for a wide range of robust supportive care services. [25] Supportive care may be defined as those services designed to help patients, their families, and caregivers with their experiences during the diagnosis, treatment, follow-up, and palliative stages of the cancer journey.…”

Section: Introductionmentioning

confidence: 99%

Supportive care needs of Iranian cancer patients

Rahmani

Ferguson

Jabarzadeh

et al. 2014

Indian J Palliat Care

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Background:A supportive needs assessment is an essential component of any care program. There is no research evidence regarding the supportive care needs of cancer patients in Iran or other Middle Eastern countries.Aims:The aim of this study was to determine the supportive care needs of Iranian cancer patients.Materials and Methods:This descriptive study was conducted in a referral medical center in the northwest of Iran. A total of 274 cancer patients completed the Supportive Care Needs Survey (SCNS-59). Descriptive statistics were used for data analysis.Results:In 18 items of the SCNS, more than 50% of the participants reported that their needs were unmet. Most frequently, unmet needs were related to the health system, information, physical, and daily living domains, and most met needs were related to sexuality, patient care, and support domains.Conclusions:Iranian cancer patients experience many unmet needs and there is an urgent need for establishing additional supportive care services in Iran.

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“…Today there is no generally accepted definition of supportive care. However, it is stated that the concept is concerned with the optimal wellbeing of patients with cancer (Stiefel and Guex, 1996). The National Council for Hospice and Specialist Palliative Care Services (NCHSPCS, 2002) define supportive care as care that 'helps the patient and their family to cope with cancer and treatment of it -from prediagnosis, through the process of diagnosis and treatment, to cure, continuing illness or death and into bereavement.…”

Section: Introductionmentioning

confidence: 99%

Patients' experiences of supportive care from a long-term perspective after oesophageal cancer surgery – A focus group study

Malmström

Klefsgård

Johansson

et al. 2013

European Journal of Oncology Nursing

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Patients' experiences of supportive care from a long-term perspective after oesophageal cancer surgery -A focus group study. General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal Take down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim. Purpose: To illuminate patients' experiences of supportive care from a long-term perspective after oesophagectomy or oesofagogastrectomy for cancer.Method: Data collection was carried out using semi-structured focus-group interviews.Seventeen patients were included in the study, divided into 4 focus groups. Data was analysed with conventional qualitative content analysis. Results:The patients' experiences of supportive care were captured in the theme "The need for a guiding light in the new life situation" and it was shown that support from the health care system as well as from the social network was experienced as important. The patients need support that starts at the hospital and that continues throughout the transition to outpatient care. This support should focus on developing a plan for the future and on providing the patients with information that will enable them to understand their new life situation. Conclusion:The findings indicated that the patients need a plan for the future, help in navigating the healthcare system and the provision of clear and honest information as well as a healthcare system that better overarches the gap between in and out-patient care. This suggests the need of developing and testing a supportive care programme that is designed according to the patients' needs and with focus on the potential to enhance the patients QOL after this life-changing surgery.

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Palliative and supportive care: At the frontier of medical omnipotence

Cited by 14 publications

References 18 publications

Unmet Supportive Care Needs of Iranian Cancer Patients and its Related Factors

Unmet Supportive Care Needs of Iranian Cancer Patients and its Related Factors

Supportive care needs of Iranian cancer patients

Patients' experiences of supportive care from a long-term perspective after oesophageal cancer surgery – A focus group study

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