Palliative and end-of-life care research: Embracing new opportunities

Aziz, Noreen M.; Miller, Jeri L.; Curtis, J. Randall

doi:10.1016/j.outlook.2012.08.006

Cited by 38 publications

(52 citation statements)

References 42 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Cancer patients must navigate a complex healthcare system and meet multiple health literacy demands (Davis et al, 2002; Aziz, Miller, & Randall, 2012; Koay, Schofield, & Jefford, 2012). For example, cancer patients with low health literacy may have difficulty navigating the health system, understanding the rules and regulations related to insurance coverage, and may have difficulty managing their treatment plan.…”

Section: Discussionmentioning

confidence: 99%

“…age, income and education), social networks, comorbidities, and physical and psychological symptoms (Jansen, Koch, Brenner, & Arndt, 2010; Sun, Borneman, Koczywas, et al, 2012; Gupta, Lis, Granick, et al, 2006; Peters & Sellick, 2006). Increasingly, health literacy and effective patient-provider communication are also recognized as influencing care across the cancer continuum (e.g., cancer screening; symptom management; communication about end of life care) and subsequently may be a determinant of HRQOL among cancer patients (Aziz, Miller, & Randall, 2012; Berkman et al, 2011; Davis, Williams, Marine, Parker, & Glass, 2002; Song, Mishel, Bensen, Chen, Knafl, Blackard, et al, 2012). …”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Health Literacy and Health-Related Quality of Life Among a Population-Based Sample of Cancer Patients

Halverson

Martínez-Donate

Palta

et al. 2015

Journal of Health Communication

111

View full text Add to dashboard Cite

Health-related quality of life (HRQOL) is an important outcome in cancer care. Few studies indicate that that health literacy (HL) influences cancer patients’ HRQOL, but additional investigation is needed. We examined the relation between HL and HRQOL among cancer patients. A cross-sectional survey was conducted with cancer patients in Wisconsin during 2006–2007. Data on sociodemographics, clinical characteristics, HRQOL, and HL were obtained from the state’s cancer registry and a mailed questionnaire. Regression analyses were used to characterize the association between HRQOL and HL. The study sample included 1,841 adults, newly diagnosed with lung, breast, colorectal, or prostate cancer in 2004 (response rate=68%). HRQOL was measured with the Functional Assessment of Cancer Therapy-General (FACT-G). Adjusting for confounders, higher HL was associated with greater HRQOL (P <.0001). Controlling for covariates, we found significant differences between those in the highest and lowest health literacy categories (P <.0001) and in the physical (P <.0001), functional (P <.0001), emotional (P <.0001), and social (P =.0007) well-being subscales. These associations exceeded the minimally important difference threshold for overall HRQOL and functional well-being. HL is positively and independently associated with HRQOL among cancer patients. These findings support adoption of HL best practices by cancer care systems.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Health Literacy and Health-Related Quality of Life Among a Population-Based Sample of Cancer Patients

Halverson

Martínez-Donate

Palta

et al. 2015

Journal of Health Communication

111

View full text Add to dashboard Cite

show abstract

“…[15][16][17][18] During this time, palliative care treatment plans can be implemented, in place of or in addition to existing care plans, to reduce suffering and improve end-of-life care. 12,19,20 Despite the benefits of palliative care [18][19][20][21][22][23][24][25] and its growth in recent years, 20,25,27 it is not always available for inpatients, partly because the subspecialty palliative care workforce is not currently sufficient to reach all patients dying in hospital settings and partly because practitioners do not recognize shifts in patient trajectory indicating the need for palliative care consultation. [26][27][28][29][30][31][32] In an environment focusing on "cure," transition away from disease-modifying treatments to symptom control can seem counterintuitive.…”

Section: Introductionmentioning

confidence: 99%

Intervention to Improve Care at Life’s End in Inpatient Settings: The BEACON Trial

et al. 2014

View full text Add to dashboard Cite

BACKGROUND: Widespread implementation of palliative care treatment plans could reduce suffering in the last days of life by adopting best practices of traditionally home-based hospice care in inpatient settings. OBJECTIVE: To evaluate the effectiveness of a multimodal intervention strategy to improve processes of end-of-life care in inpatient settings. DESIGN: Implementation trial with an intervention staggered across hospitals using a multiple-baseline, stepped wedge design. PARTICIPANTS: Six Veterans Affairs Medical Centers (VAMCs). INTERVENTION: Staff training was targeted to all hospital providers and focused on identifying actively dying patients and implementing best practices from home-based hospice care, supported with an electronic order set and paper-based educational tools. MAIN MEASURES: Several processes of care were identified as quality endpoints for end-of-life care (last 7 days) and abstracted from electronic medical records of veterans who died before or after intervention (n= 6,066). Primary endpoints were proportion with an order for opioid pain medication at time of death, donot-resuscitate order, location of death, nasogastric tube, intravenous line infusing, and physical restraints. Secondary endpoints were administration of opioids, order/administration of antipsychotics, benzodiazepines, and scopolamine (for death rattle); sublingual administration; advance directives; palliative care consultations; and pastoral care services. Generalized estimating equations were conducted adjusting for longitudinal trends. KEY RESULTS: Significant intervention effects were observed for orders for opioid pain medication (OR:

show abstract

“…Of course, yes, as long as it is developed with cultural sensitivity. [1][2][3][4] It is a community movement.…”

Section: Discussionmentioning

confidence: 99%

“…Its compassionate multidisciplinary team approach has proved effective physically, emotionally, and financially to alleviate pain and suffering and to further offer holistic comfort care to the recipients and their families. [1][2][3][4] Its growth has been gradual but steady, from only 1 facility in 1974 to 5800 facilities in 2013 in the United States. 5 Hospice care facilities served on 44.6% of all deaths in the United States.…”

Section: Introductionmentioning

confidence: 99%

Native American Death Taboo: Implications for Health Care Providers

Colclough

2016

Am J Hosp Palliat Care

View full text Add to dashboard Cite

This study was conducted to highlight Native American (NA) perspectives on death taboo in order to examine the cultural appropriateness of hospice services for NA patients, if any. Searching literature that addressed taboo and death from historical, psychological, sociological, and anthropological aspects, a comparison of death perspectives was made between NAs and European Americans. A culturally sensitive transition from palliative care to hospice care was suggested for NA patients and their family.

show abstract

Palliative and end-of-life care research: Embracing new opportunities

Cited by 38 publications

References 42 publications

Health Literacy and Health-Related Quality of Life Among a Population-Based Sample of Cancer Patients

Health Literacy and Health-Related Quality of Life Among a Population-Based Sample of Cancer Patients

Intervention to Improve Care at Life’s End in Inpatient Settings: The BEACON Trial

Native American Death Taboo: Implications for Health Care Providers

Contact Info

Product

Resources

About