Painted with different brushes—An exploratory study of psychological well-being and attitudes towards autism perceived by adolescents with autism spectrum conditions and their mothers

Ferenc, Kinga; Byrka, Katarzyna; Król, Magdalena Ewa

doi:10.1016/j.rasd.2021.101826

Cited by 4 publications

References 59 publications

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Time to Change How We Measure Quality of Life and Well-Being in Autism: A Systematic Review

Simpson,

Paynter,

Westerveld

et al. 2024

Rev J Autism Dev Disord

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This review examines methods used to report on the QoL and/or well-being of autistic people. A search of four databases (June 2023) identified 256 studies that reported on the Qol and/or well-being of at least one autistic person. The quality of studies varied. Results were synthesised on who reported, who was reported on, how information was obtained including accommodations and community involvement. One-third used proxy informants, over 80% used generic measures of QoL and/or well-being, autistic people with intellectual impairment and communication disorders were underrepresented, one quarter included accommodations, and few studies included community involvement. Despite the growing research on QoL and well-being of autistic people, more accessible and inclusive research is required to understand autistic people’s experience.

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Time to Change How We Measure Quality of Life and Well-Being in Autism: A Systematic Review

Simpson,

Paynter,

Westerveld

et al. 2024

Rev J Autism Dev Disord

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A study on the awareness and attitudes of mothers with children aged 0–6 towards autism in terms of various variables

Köroğlu,

Ataman,

Kösretaş

2024

International Journal of Developmental Disabilities

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Prevention of Central Line-Associated Blood Stream Infection (CLABSI) in Adult ICU Patients

Haas¹

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This article critically examines autism and autistic stimming through the lenses of neurotypicals and autistics, evaluates confines currently imposed upon autistics by neurotypical society, and synthesizes what autistic leaders have expressed about their experiences striving for inclusion (Gernsbacher, 2017; Milton, 2012). Autistic-led studies are now at the forefront of the neurodiversity movement and are growing in fervor. The following themes were identified: (a) prevalence of autism, (b) the interpretation and measurement of empathy, (c) discovery of genetic factors transformed autistics’ identity, (d) publication of non-genetic factors such as vaccines undermined the legitimacy of the autism language, (e) the problem with the lack of social language legitimacy, (f) autistic empathy, (g) past and current interventions, (h) destructive interventions thwart connection and cause mental health decline, (i) neurotypical perceptions of the autistic; (j) the responsibilities required in dual communication; and (h) autistic stimming has form, structure, and predictability. The language of stimming has not yet been defined or interpreted in a way the neurotypical community can comprehend and it is this lack of understanding neurotypicals have of the autistic that causes a disconnect between the two groups (DeThorne, 2020; Kapp et al, 2019a; Milton, 2012). Autistic empathy is physically manifested by the language of stimming so hopefully, neurotypicals will begin to feel empowered to learn it. This re-educating neurotypicals about autistic social language would diversify the neurotypical’s understanding of social behavior. For, it is only when neurotypicals give empathy in the same format they require of autistics, that we be fully included.

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Painted with different brushes—An exploratory study of psychological well-being and attitudes towards autism perceived by adolescents with autism spectrum conditions and their mothers

Cited by 4 publications

References 59 publications

Time to Change How We Measure Quality of Life and Well-Being in Autism: A Systematic Review

Time to Change How We Measure Quality of Life and Well-Being in Autism: A Systematic Review

A study on the awareness and attitudes of mothers with children aged 0–6 towards autism in terms of various variables

Prevention of Central Line-Associated Blood Stream Infection (CLABSI) in Adult ICU Patients

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