Pain symptoms in patients with severe cerebral palsy: Prevalence among patients with higher degree of locomotor impairment

Botura, Clarissa de Albuquerque; Ames, Franciele Queiroz; Botura, Ana Clara de Albuquerque; Bersani-Amado, Luiz Eduardo; Bardini, Aline Vieira Scarlatelli Lima; Cuman, Roberto Kenji Nakamura

doi:10.4314/tjpr.v16i6.30

Cited by 5 publications

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References 22 publications

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“…They are also highly likely to experience pain, due to hip dislocation, spasticity spasms, gastroesophageal reflux, medical interventions and other sequelae of their conditions, and this pain is often not treated (de Albuquerque Botura et al, 2017).…”

Section: Children and Young People With Complex Physical And Communicmentioning

confidence: 99%

The meaning of leisure participation: perspectives of children and young people with significant physical disabilities

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This thesis is composed of my original work, and contains no material previously published or written by another person except where due reference has been made in the text. I have clearly stated the contribution by others to jointly-authored works that I have included in my thesis. I have clearly stated the contribution of others to my thesis as a whole, including statistical assistance, survey design, data analysis, significant technical procedures, professional editorial advice, financial support and any other original research work used or reported in my thesis. The content of my thesis is the result of work I have carried out since the commencement of my higher degree by research candidature and does not include a substantial part of work that has been submitted to qualify for the award of any other degree or diploma in any university or other tertiary institution. I have clearly stated which parts of my thesis, if any, have been submitted to qualify for another award. I acknowledge that an electronic copy of my thesis must be lodged with the University Library and, subject to the policy and procedures of The University of Queensland, the thesis be made available for research and study in accordance with the Copyright Act 1968 unless a period of embargo has been approved by the Dean of the Graduate School.

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Section: Children and Young People With Complex Physical And Communicmentioning

confidence: 99%

The meaning of leisure participation: perspectives of children and young people with significant physical disabilities

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Investigating the Association Between Using Night Braces and Sleep Habits of Children with Cerebral Palsy and Parental Quality of Life

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2020

J Dev Phys Disabil

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Epidemiology of Cerebral Palsy in Adulthood: A Systematic Review and Meta-analysis of the Most Frequently Studied Outcomes

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et al. 2020

Archives of Physical Medicine and Rehabilitation

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To describe the epidemiology of health status, impairments, activities and participation in adults with cerebral palsy (CP). Data Sources: Embase, MEDLINE, Web of Science, PsycINFO, Cumulative Index to Nursing and Allied Health, Cochrane, and Google Scholar were searched for 3 themes ("cerebral palsy," "adult," and "outcome assessment") in literature published between January 2000 and December 2018. Study Selection: Full-article peer-reviewed English journal articles on descriptive, observational, or experimental studies describing the most studied outcomes in adults with CP (n!25, age!18y) were included. Studies were included in the analyses if frequently studied outcomes were described in at least 3 studies using similar methods of assessment. Data Extraction: Data were extracted independently by 2 authors from 65 articles (total NZ28,429) using a standardized score sheet. Data Synthesis: Meta-analyses revealed that overall, on average 65.1% (95% confidence interval [CI], 55.1-74.5) of adults with CP experienced pain, 57.9% (95% CI, 51.1-64.6) were ambulant, 65.5% (95% CI, 61.2-69.7) had little or no limitation in manual ability, 18.2% (95% CI, 10.6-27.2) had tertiary education, 39.2% (95% CI, 31.5;47.1) were employed, and 29.3% (95% CI, 9.0-55.3) lived independently. In adults without intellectual disability, proportions of individuals who were ambulant (72.6% [95% CI, 58.8-84.5]) and lived independently (90.0% [95% CI, 83.8-94.9]) were higher (PZ.014 and P<.01, respectively). The Fatigue Severity Scale score was 4.1 (95% CI, 3.8-4.4). Epilepsy (28.8% [95% CI,) and asthma (28.3% [95% CI, 18.7-38.9]) were especially prevalent comorbidities. Conclusions: The present systematic review and meta-analysis on the epidemiology of adults with CP provided state-of-the-art knowledge on the most frequently studied outcomes. On average, adults with CP are fatigued, and a majority experience pain, are ambulant, and have little or no difficulty with manual ability. On average, 40% are employed and 30% live independently. More uniformity in assessment and reports is advised to improve knowledge on epidemiology and gain insight in more outcomes.

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Pain symptoms in patients with severe cerebral palsy: Prevalence among patients with higher degree of locomotor impairment

Abstract: (ICDDN ≥ 14, PR = 3.29, p < 0.01). Conclusion:The results show that pain is prevalent in individuals with severe CP. Furthermore, it is more prevalent in patients with a higher degree of locomotor impairment (GMFCS -level V).

Cited by 5 publications

References 22 publications

The meaning of leisure participation: perspectives of children and young people with significant physical disabilities

The meaning of leisure participation: perspectives of children and young people with significant physical disabilities

Investigating the Association Between Using Night Braces and Sleep Habits of Children with Cerebral Palsy and Parental Quality of Life

Epidemiology of Cerebral Palsy in Adulthood: A Systematic Review and Meta-analysis of the Most Frequently Studied Outcomes

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