Pain management at home in children with cancer: A daily diary study

Fortier, Michelle A.; Wahi, Aditi; Bruce, Colette; Maurer, Eva L.; Stevenson, Ryan

doi:10.1002/pbc.24907

Cited by 55 publications

(90 citation statements)

References 36 publications

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“…Although parents and children who suffer from cancer report that pain is a significant concern, pain assessment throughout cancer treatment is not performed systematically [3,10–12] and without accurate data, physicians are unable to intervene appropriately. Additional barriers to treatment of pain in children with cancer include misunderstanding of use of analgesia in children (i.e., fears of addiction) and lack of understanding of pain expression in children [10,12,13].…”

Section: Introductionmentioning

confidence: 99%

“…Additional barriers to treatment of pain in children with cancer include misunderstanding of use of analgesia in children (i.e., fears of addiction) and lack of understanding of pain expression in children [10,12,13]. This is particularly relevant to management of symptoms in the home setting by parents, who have been shown to significantly under treat children’s pain [3,14].…”

Section: Introductionmentioning

confidence: 99%

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Pain buddy: A novel use of m-health in the management of children's cancer pain

Fortier

Chung

Martinez

et al. 2016

Computers in Biology and Medicine

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109

146

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Background Over 12,000 children are diagnosed with cancer every year in the United States. In addition to symptoms associated with their disease, children undergoing chemotherapy frequently experience significant pain, which is unfortunately often undertreated. The field of m-Health offers an innovative avenue for pain assessment and intervention in the home setting. The current study describes the development and initial evaluation of a tablet-based program, Pain Buddy, aimed to enhance pain management and foster improved quality of life in children ages 8–18 years undergoing cancer treatment. Methods An animated avatar-based tablet application was developed using state-of-the-art software. Key aspects of Pain Buddy include daily pain and symptom diaries completed by children, remote monitoring of symptoms by uploading patient’s data through internet to a cloud server, cognitive and behavioral skills training, interactive three-dimensional avatars that guide children through the program, and an incentive system to motivate engagement. Twelve children between the ages of 8 and 18 participated in a pilot study of Pain Buddy. Results Children were highly satisfied with the program. Pain and appetite disturbances were most frequently endorsed. Symptom trigger alerts to outside providers were largely related to clinically significant pain. Children infrequently used analgesics, and reported using some non-pharmacological pain management strategies. Conclusion Pain Buddy appears to be a promising tool to improve pain and symptom management in children undergoing cancer treatment. Results from the current study will inform future improvements to Pain Buddy, in preparation for a randomized controlled trial to assess the efficacy of this innovative treatment.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Pain buddy: A novel use of m-health in the management of children's cancer pain

Fortier

Chung

Martinez

et al. 2016

Computers in Biology and Medicine

Self Cite

109

146

View full text Add to dashboard Cite

show abstract

“…Parents have identified pain as the “most problematic” symptom children experience during cancer treatment and children have described pain as the most distressing and frightening aspect of their cancer experience . Unfortunately, evidence suggests that cancer pain and symptoms are seriously undertreated in most children, particularly in the home setting . Pain is not just an issue at diagnosis and during treatment for cancer.…”

Section: Problem 2: Pain In Children With Cancermentioning

confidence: 99%

Children's cancer pain in a world of the opioid epidemic: Challenges and opportunities

Fortier

Yang

Phan

et al. 2019

Pediatric Blood & Cancer

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The opioid crisis in the United States has grown at an alarming rate. Children with cancer are at high risk for pain, and opioids are a first‐line treatment in this population. Accordingly, there is an urgent need to optimize pain management in children with cancer without contributing to the opioid crisis. This report details opportunities for this optimization, including clinical practice guidelines, comprehensive approaches to pain management, mobile health, and telemedicine. It is vital to balance appropriate use of analgesics with efforts to prevent misuse in order to reduce unnecessary suffering and minimize unintended harms.

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“…11 However, it was observed that even small children with limited language resources were able to demonstrate, through the DTP sessions, how they perceive the routine which they experience.…”

Section: Immersing Oneself In the World Of The Disease And The Oncolomentioning

confidence: 99%

Revealing the World of Oncological Treatment Through Dramatic Therapeutic Play

Fonseca¹,

Campos

Ribeiro

et al. 2015

Texto contexto - enferm.

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This study aimed to understand the play of the preschool child undergoing oncological treatment through dramatic therapeutic play. A total of five preschool age children with cancer participated in the dramatic therapeutic play sessions, between January and May 2013. The material was analyzed using the framework of phenomenology: analysis of the structure of the phenomenon in place. The following categories emerged from the sessions: Immersing oneself in the world of the disease and the oncological treatment; and Remembering the world without the disease. The study learned that becoming ill with cancer is a process which generates pain and suffering for the child, leading her to feel small and fragile in the face of the discomforts of the numerous procedures to which she is subjected. Therapeutic play was an important resource for revealing how the child with cancer feels during the treatment, and showed the children's difficulty in interacting with the unknown, and how this difficulty makes the balance between the points of health and illness complex.

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Pain management at home in children with cancer: A daily diary study

Cited by 55 publications

References 36 publications

Pain buddy: A novel use of m-health in the management of children's cancer pain

Pain buddy: A novel use of m-health in the management of children's cancer pain

Children's cancer pain in a world of the opioid epidemic: Challenges and opportunities

Revealing the World of Oncological Treatment Through Dramatic Therapeutic Play

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