“Pain is Subjective”: A Mixed-Methods Study of Provider Attitudes and Practices Regarding Pain Management in Sickle Cell Disease Across Three Countries

Stewart, Kearsley A.; Asnani, Monika; Wonkam, Ambroise; Bollinger, John; Bitoungui, Valentina Ngo; Wonkam‐Tingang, Edmond; Powell, Jill; Desronvil, Kathia; Benson, Kathryn R.K.; Clark, A. J.; Katz, Madelaine; Martin, Bianca; Peterseim, Carolyn; Williams, Christina; Young, Nana; Shah, Nirmish; Tanabe, Paula; Babyak, Michael A.; Royal, Charmaine D.

doi:10.1016/j.jpainsymman.2020.08.029

Cited by 14 publications

(10 citation statements)

References 32 publications

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“…Fourteen (45.1%) studies examined providers' knowledge, attitudes, and perceptions related to caring for patients with SCD (Armstrong et al, 1992;Freiermuth et al, 2014;Glassberg et al, 2013;Jenerette et al, 2016;Nelson & Hackman, 2013;Pack-Mabien et al, 2001;Ratanawongsa et al, 2009;Shapiro et al, 1997;Stewart et al, 2021;Tanabe et al, 2013;Telfair et al, 1998Telfair et al, , 2004Treadwell et al, 2006;Waldrop & Mandry, 1995). For a brief summary of the findings of these studies, see Table 1.…”

Section: Providers' Knowledge Attitudes and Perceptionsmentioning

confidence: 99%

“…Early 2020s "Pain is Subjective": a mixed-method study of provider attitudes and practices regarding pain management in SCD across three countries (Stewart et al 2021). To compare provider attitudes and practices regarding pain assessment and treatment toward adult and pediatric patients with SCD across three countries (Cameroon, Jamaica, and the US).…”

Section: To Examine Attitude Differences Between Ed Provider Types (N...mentioning

confidence: 99%

“…From the 1970s to the present, a total of 14 studies were conducted, including: early 1990s ( n = 1; 7%), late 1990s ( n = 3; 21%), early 2000s ( n = 2; 14%), late 2000s ( n = 2; 14%), early 2010s ( n = 4; 29%); late 2010s ( n = 1; 7%), and early 2020s ( n = 1; 7%). All studies were conducted in the USA, except for Stewart et al (2021), which was conducted in three countries: the USA, Jamaica, and Cameroon. During the same time frame, only one study included adolescents in their research—in the early 2000s.…”

Section: Synthesis Of Literaturementioning

confidence: 99%

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An Integrative Review: The Evolution of Provider Knowledge, Attitudes, Perceptions and Perceived Barriers to Caring for Patients with Sickle Cell Disease 1970–Now

Reich

Cantrell

Smeltzer

2022

Journal of Pediatric Hematology/Oncology Nursing

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Approximately 100,000 Americans have sickle cell disease (SCD). In the USA, the majority of patients with SCD are of African descent. Due to persistent racial and ethnic disparities in healthcare in the USA, patients with SCD experience disproportionately more health inequities because of providers’ implicit biases regarding patient race. Lack of access to health insurance, lack of transportation to healthcare providers, and inadequate provider knowledge contribute to the morbidity and mortality of patients with SCD. The purpose of this integrative review was to analyze and synthesize the literature on providers’ knowledge, perceptions, beliefs, and attitudes toward patients with SCD. A modified (Preferred Reporting Items for Systematic Reviews and Meta-Analysis) method was used to conduct a comprehensive review of the literature yielding 31 publications included in this review. Three connected, yet distinct areas of focus were identified: (1) providers’ knowledge, attitudes, and perceptions of patients with SCD; (2) providers’ perceived or true barriers to caring for patients with SCD; and (3) interventions to improve providers’ attitudes, perceptions, and care of patients with SCD. In each area of focus, research has evolved over time. Also included in this integrative review is a synthesis of measurement instruments used to assess provider knowledge, attitudes, perceptions, and perceived and true barriers to caring for patients with SCD. Adolescents with SCD who are transitioning from pediatric to adult care are at a particularly high risk for morbidity and mortality, so this review focused on the many opportunities that exist to advance the healthcare for young adults with SCD to improve patient outcomes later in life. This includes improving providers’ knowledge, perceptions, beliefs, and attitudes, and lessening the real or perceived barriers to care for patients with SCD.

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Section: Providers' Knowledge Attitudes and Perceptionsmentioning

confidence: 99%

Section: To Examine Attitude Differences Between Ed Provider Types (N...mentioning

confidence: 99%

Section: Synthesis Of Literaturementioning

confidence: 99%

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An Integrative Review: The Evolution of Provider Knowledge, Attitudes, Perceptions and Perceived Barriers to Caring for Patients with Sickle Cell Disease 1970–Now

Reich

Cantrell

Smeltzer

2022

Journal of Pediatric Hematology/Oncology Nursing

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“…Pain negatively affects individuals psychologically, physiologically, cognitively, spiritually, and physically, yet pain in older African American adults continues to be undermanaged [12]. This results not only in increased suffering, but also strains relationships with providers leading to distrust of clinicians and the healthcare system [17].…”

Section: Pain Mismanagementmentioning

confidence: 99%

Disparities and Racism Experienced Among Older African Americans Nearing End of Life

et al. 2021

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Purpose of Review The purpose of this review is to examine racism in healthcare as it relates to older African American adults. We focus on health disparities in old age and medical mismanagement throughout their lifespan. Recent Findings In the United States there have been extensive medical advances over the past several decades. Individuals are living longer, and illnesses that were deemed terminal in the past are now considered chronic illnesses. While most individuals living with chronic illness have experienced better quality of life, this is not the case for many African American older adults. Summary Older African American adults are less likely to have their chronic illness sufficiently managed and are more likely to die from chronic illnesses that are well controlled in Whites. African American older adults also continue to suffer from poorer healthcare outcomes throughout the lifespan to end-of-life.

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“…• Uterine body tumors are very rare in adolescence [3][4][5][6][7]. They are usually malignant and manifest with vaginal bleeding as the primary symptom.…”

Section: Introductionmentioning

confidence: 99%

Minimally Invasive Surgical Treatment of Pelvic Pain in Teenagers and Young Women

Tsikouras¹,

Tsalikidis²,

Anthoulaki³

et al. 2022

Advances in Minimally Invasive Surgery

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Pelvic pain could be acute or chronic but rarely could be life threatening with various reasons such as pathological, physiological or functional. Clinical evaluation and management should be performed simultaneously, especially in emergencies that carry a high risk of mortality. Clinical evaluation and management should be performed simultaneously, especially in emergencies that carry a high risk of mortality. Although a detailed history, physical and gynecological examination, supplemented with imaging modalities can itself be diagnostic, the role of laparoscopy for diagnosis should not be overlooked. The common causes of pelvic pain with focus on a minimally invasive approach in this age group are as following: endometriosis, rupture of ovarian cyst, infection, ovarian torsion, pelvic vein syndrome, adhesions pain due to previous surgery and unsatisfactory treated infections.

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“Pain is Subjective”: A Mixed-Methods Study of Provider Attitudes and Practices Regarding Pain Management in Sickle Cell Disease Across Three Countries

Cited by 14 publications

References 32 publications

An Integrative Review: The Evolution of Provider Knowledge, Attitudes, Perceptions and Perceived Barriers to Caring for Patients with Sickle Cell Disease 1970–Now

An Integrative Review: The Evolution of Provider Knowledge, Attitudes, Perceptions and Perceived Barriers to Caring for Patients with Sickle Cell Disease 1970–Now

Disparities and Racism Experienced Among Older African Americans Nearing End of Life

Minimally Invasive Surgical Treatment of Pelvic Pain in Teenagers and Young Women

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