Pain in low-income older women with disabilities: a qualitative descriptive study

Taylor, Jan; Drazich, Brittany; Roberts, Laken; Okoye, Safiyyah; Rivers, Emerald; Wright, Rebecca; Beach, Mary Catherine; Szanton, Sarah L.

doi:10.1080/08952841.2020.1763895

Cited by 3 publications

(5 citation statements)

References 62 publications

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“…This study highlights the importance of health providers having a diverse array of treatment plans for their patients with pain, with deliberate inclusion of over-the-counter medications and non-pharmacological pain treatment options. In our previous work, we identified that older women with disabilities expressed not having a clear understanding of side effects of prescribed medications ( 4 ). It is important that older African American women have clear communication and information regarding medications for pain and depression in order to make the best informed decisions regarding their treatments.…”

Section: Discussionmentioning

confidence: 99%

“…The moderators were all female, had no prior relationship with the study participants, and had no personal investment in the study results. The focus group guide focused on participant experiences/beliefs about pain and depressive symptoms and strategies or techniques to address pain and depressive symptoms ( 4 ). The guide also explored the unmet needs of the participants surrounding pain, depression, and communication with healthcare providers about these health needs.…”

Section: Methodsmentioning

confidence: 99%

“…The guide also explored the unmet needs of the participants surrounding pain, depression, and communication with healthcare providers about these health needs. Example questions included, “Do your depressive symptoms keep you from doing any activities?” and “Do you think there are strategies that can be helpful for both pain and depressive symptoms or are they separate?” The basis for these questions stemmed from our previous work ( 4 , 9 , 12 ). After each focus group, the study team met to record an audit trail, discuss the appropriateness of the guide, and take notes on any changes that needed to be made.…”

Section: Methodsmentioning

confidence: 99%

“…The biopsychosocial model suggests that the cyclical relationship between pain and depression occurs due to interconnected psychological, biological, and social factors of health ( 3 ). For example, the pain experience adversely affects thoughts and behaviors ( 4 ). Women who are experiencing pain may suffer more negative thoughts or isolate themselves from others, contributing to depressive symptoms ( 1 , 5 , 6 ).…”

Section: Introductionmentioning

confidence: 99%

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Exploring the Experiences of Co-morbid Pain and Depression in Older African American Women and Their Preferred Management Strategies

et al. 2022

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The intersection of race, gender, and age places older African American women at an increased risk for untreated physical pain and depression that can significantly diminish their quality of life. The objectives of this study were to (1) explore older African American women's perceptions of pain and depressive symptoms and how these symptoms influence each other, and (2) explore effective pain and depression alleviation strategies used by the women. We conducted five focus groups with older African American women (N = 18). We used deductive coding to analyze focus group transcripts and qualitative description to summarize themes. We identified five major themes: (1) Spiritual Suffering from Linked Pain and Depression, (2) Lack of Understanding from Healthcare Providers, (3) Push Through and Live Through, (4) Medications Not Worth the Risk and, (5) Strategies for Pain and Depression. This study offers insight into the experiences of pain and depression in older African American women, and alleviation strategies they perceive as effective. These qualitative findings may be used to inform interventions for older African American women who experience pain and depressive symptoms.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Exploring the Experiences of Co-morbid Pain and Depression in Older African American Women and Their Preferred Management Strategies

et al. 2022

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“…Chronic pain is linked to several chronic conditions, such as osteoarthritis (OA), and is considered the "invisible disability," 1,2 particularly evident in women with disabilities. 3 Published research reveals that gender and sex differences in pain exist such that women and racial minorities experience greater pain and encounter more disparities than non-Hispanic Whites. [4][5][6] For example, os-teoarthritic joint pain prevalence is higher among women and non-Hispanic Blacks.…”

Section: Introductionmentioning

confidence: 99%

“Be Strong My Sista'”

Cousin

Johnson-Mallard

Booker

2022

Advances in Nursing Science

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The experience of chronic pain is influenced by gender, race, and age but is understudied in older Black women. Society and family alike expect Black older women to display superhuman strength and unwavering resilience. This qualitative study examined the narratives of 9 rural- and urban-dwelling Black older women to identify the ways in which they displayed strength while living with chronic osteoarthritis pain. Their “herstories” parallel the 5 characteristics of the Superwoman Schema/Strong Black Woman. Two additional characterizations emerged: spiritual submission for strength and code switching to suffering Black woman; these may be unique to Black Americans with pain.

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Using computational ethnography to enhance the curation of real-world data (RWD) for chronic pain and invisible disability use cases

Moore

Smith

Liu

2020

SIGACCESS Access. Comput.

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Chronic pain is a significant source of suffering, disability and societal cost in the US. However, while the ability to detect a person's risk for developing persistent pain is desirable for timely assessment, management, treatment, and reduced health care costs---no objective measure to detect clinical pain intensity exist. Recent Artificial Intelligence (AI) methods have deployed clinical decision- making and assessment tools to enhance pain risk detection across core social and clinical domains. Yet, risk assessment models are only as "good" as the data they are based on. Thus, ensuring fairness is also a critical component of equitable care in both the short and long term. This paper takes an intersectional and public health approach to AI fairness in the context of pain and invisible disability, suggesting that computational ethnography is a multimodal and participatory real-world data (RWD) methodology that can be used to enhance the curation of intersectional knowledge bases, thereby expanding existing boundaries of AI fairness in terms of inclusiveness and transparency for pain and invisible disability use cases.

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Pain in low-income older women with disabilities: a qualitative descriptive study

Cited by 3 publications

References 62 publications

Exploring the Experiences of Co-morbid Pain and Depression in Older African American Women and Their Preferred Management Strategies

Exploring the Experiences of Co-morbid Pain and Depression in Older African American Women and Their Preferred Management Strategies

“Be Strong My Sista'”

Using computational ethnography to enhance the curation of real-world data (RWD) for chronic pain and invisible disability use cases

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