Pain Coping Strategies for Children with Arthritis

Rosenzweig, Kim J.; Nabors, Laura

doi:10.1155/2013/741428

Cited by 4 publications

(5 citation statements)

References 5 publications

(5 reference statements)

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“…Children with JIA previously demonstrated a desire for more knowledge and skills so that they could self-manage their disease (Stinson et al, 2008, 2012). Teaching children short-term pain management strategies effectively reduced daily pain experiences (Rosenzweig and Nabors, 2013). Both of these strategies may effectively support children’s participation in PA.…”

Section: Discussionmentioning

confidence: 99%

‘It might hurt, but you have to push through the pain’

Race

Sims‐Gould

Tucker

et al. 2016

J Child Health Care

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Our primary objective was to gather perspectives of children diagnosed with juvenile idiopathic arthritis (JIA) and their parents as they relate to physical activity (PA) participation. To do so, we conducted a study on 23 children diagnosed with JIA and their parents ( N = 29). We used convenience sampling to recruit participants and qualitative method- logies (one-on-one semi-structured interviews). We adopted a five-step framework analysis to categorize data into themes. Children and their parents described factors that act to facilitate or hinder PA participation. Pain was the most commonly highlighted PA barrier described by children and their parents. However, children who were newly diagnosed with JIA and their parents were more likely to highlight pain as a barrier than were child/parent dyads where children had been previously diagnosed.

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Section: Discussionmentioning

confidence: 99%

‘It might hurt, but you have to push through the pain’

Race

Sims‐Gould

Tucker

et al. 2016

J Child Health Care

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“…Whilst ‘feeling different’ does not have to be a negative emotion, in the present study it was felt that these six young people all saw it as such: ‘feeling different and then sad’ or ‘feel different from how a normal person feels’. These comments could be a concern to health care professionals and lead them to consider whether these young people need extra support [ 17 ].…”

Section: Discussionmentioning

confidence: 99%

The lived experience of juvenile idiopathic arthritis in young people receiving etanercept

Livermore

Eleftheriou²,

Wedderburn³

2016

Pediatr Rheumatol

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BackgroundThis study explores young people’s daily experiences of living with Juvenile Idiopathic Arthritis (JIA) and their thoughts, beliefs and feelings related to the biological drug Etanercept, prescribed as part of their treatment.MethodsAn Interpretive Phenomenological approach was used to allow in-depth examinations of the young people’s personal accounts of their lived experiences. Data were obtained from 6 young people between the ages of 10–13 years, from one tertiary institution’s Paediatric Rheumatology department using audio-taped open-ended interviews.ResultsThe transcripts yielded seven thousand words of data and two hundred significant statements, which were reduced to five themes; 1) Who understands me, 2) Medicines and injections, 3) Challenges of schooling and friendships, 4) Being different, and 5) Exclusion from sports. There were marked similarities between the young people’s statements; however, there were also some striking differences. The theme ‘Who understands me’ yielded the biggest section of data, but also produced the biggest disparity between the young people. Two patients were very clear that they thought everyone ‘understands’, whilst two other patients held the belief that ‘no one understood’. This paper explores these statements in further detail.ConclusionsThe findings from this study can give healthcare professionals novel insight into the likely reactions to-treatment for JIA and, through this, enable them to offer improved support, education and early intervention before these issues become a concern. This study also provides insight into the emotional resilience of young people with JIA.Electronic supplementary materialThe online version of this article (doi:10.1186/s12969-016-0083-7) contains supplementary material, which is available to authorized users.

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“…Given these positive reports of pain reduction, we decided to introduce MEDi V R to clinical settings providing both outpatient medical day treatment and inpatient care where a variety of other medical procedures, such as IV cannulation, are routinely conducted to determine whether it could reduce children's fear and pain. In addition to serving as a highly attractive distraction, we programmed the robot with other psychological strategies such as using encouragement, guided imagery, and breathing, considering that research has shown these to be effective in reducing children's pain (Coakley & Wihak, 2017;Rosenzweig & Nabors, 2013). They may replace negative and unrealistic thoughts with positive ones (e.g., "You can do this") and teach coping skills so children can develop mastery over their pain or fear (Uman et al, 2013).…”

Section: Background and Purposementioning

confidence: 99%

Children’s Fear and Pain During Medical Procedures: A Quality Improvement Study With a Humanoid Robot

2019

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Background Pediatric patients undergo a variety of painful medical procedures. Purpose The goal of this quality improvement study was to introduce a humanoid robot (MEDi®) programmed with strategies, such as distraction and deep breathing, at inpatient and outpatient units to determine any preliminary effects on children’s pain and fear during medical procedures. Methods A nonrandomized two-group pre- and posttest design was used to compare pain and fear of children before and after intervention versus standard care. A total of 46 children aged 2–15 years undergoing various medical procedures in a pediatric hospital, and their parents completed the Children’s Fear Scale and the Faces Pain Scale-Revised. The former was used both before and after the procedure, while the latter only after the procedure. Results Children ( n = 18), who interacted with the robot before and during a procedure, and their parents reported significantly lower levels of fear and pain than did children ( n = 28) and their parents in standard care, ps < .05. Conclusions The use of a humanoid robot programmed with psychological strategies to support coping may enhance children’s experiences of care for pain management.

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Pain Coping Strategies for Children with Arthritis

Cited by 4 publications

References 5 publications

‘It might hurt, but you have to push through the pain’

‘It might hurt, but you have to push through the pain’

The lived experience of juvenile idiopathic arthritis in young people receiving etanercept

Children’s Fear and Pain During Medical Procedures: A Quality Improvement Study With a Humanoid Robot

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