Pain Assessment Recommendations for Women, Made by Women: A Mixed Methods Study

Bostick, Geoff P.; Dick, Bruce; Luckhurst, Barbara; Tschofen, Julie; Wideman, Timothy

doi:10.1093/pm/pnx137

Cited by 4 publications

(3 citation statements)

References 23 publications

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“…These could assess different elements of pain: nature and intensity, physical and psychological reaction; comparing with other known pain events; how pain limits functionality and how pain is managed. Alongside this, it could be valuable for future PROMS to include items that elicit and record 'pain expression' qualitatively, 36 potentially including descriptions of 'pain behaviours', as well as the impact of pain on mood.…”

Section: Resultsmentioning

confidence: 99%

“…They divide pain expression into two components: 'pain narrative', comprising words used to describe pain; and 'pain behaviour', which comprises nonverbal and para-verbal pain-related behaviours. 35 Bostick et al 36 found that the 'pain narrative' is important for capturing the experience of women who live with chronic pain conditions and suggest that it should be included alongside quantitative pain assessment measures. Pain is an important symptom of many health conditions, and some conditions have bespoke measurement scales to capture the severity and impact of pain such as WOMAC for osteoarthritis pain.…”

Section: Introductionmentioning

confidence: 99%

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What narrative devices do people with systemic sclerosis use to describe the experience of pain from digital ulcers: a multicentre focus group study at UK scleroderma centres

et al. 2020

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ObjectivesDigital ulcers (DUs) are a common complication in systemic sclerosis (SSc). No existing studies have specifically reported on the qualitative patient experience of DU pain, and our current patient-reported outcome measure (PROM) does not capture the multifaceted painful experience of SSc-DU. Our aim was to examine the patient experience of SSc-DU pain.DesignFocus groups with people diagnosed with SSc who had experienced DUs were conducted using a topic guide developed by people with SSc, experts in SSc and experienced qualitative researchers. Focus groups were continued until data saturation had been reached. The focus groups were audio recorded, transcribed verbatim, anonymised and analysed using inductive thematic analysis. Our current study is an integration of the data from these focus groups to specifically examine the patient experience of DU pain.SettingThree specialist scleroderma units across the UK (Bath, Manchester and London).ParticipantsFour focus groups were undertaken; 29 adults (20 women, 9 men) with SSc and a spectrum of historical DUs participated. We included participants with a diverse demographic (including ethnic) background and disease-related characteristics.ResultsFive narrative devices were identified, which encompass how people describe the pain from SSc-DUs: ‘Words to express DU-associated pain’, ‘Descriptions of physical and psychological reactions to pain’, ‘Comparisons with other painful events’, ‘Descriptions of factors that exacerbate pain’ and ‘Descriptions of strategies for coping with the pain’.ConclusionThe experience of SSc-DU pain leads to the use of graphic language and rich description by participants in the focus group setting. Existing SSc-DU outcomes do not adequately capture the patient experiences of SSc-DU pain. Our findings further highlight the multifaceted nature of SSc-DUs and will hopefully support the development of a novel PROM to assess the severity and impact of SSc-DUs.

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

What narrative devices do people with systemic sclerosis use to describe the experience of pain from digital ulcers: a multicentre focus group study at UK scleroderma centres

et al. 2020

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“…Explanations for these differences are contentious, complex, and multifaceted but have revealed shocking implicit biases in the healthcare system that often result in physicians under-assessing and consequently under-treating pain in women and ethnic minority groups. This belies claims that differences in pain experiences are due to biological differences alone [8,43]. Designing visualizations or visual analytics applications intended to support clinical decision-making and appropriate communication requires situated knowledge to address and (attempt to) course-correct when a data culture politicizes or depersonalizes the lived experiences of individuals.…”

Section: Discussionmentioning

confidence: 99%

When the Body Became Data: Historical Data Cultures and Anatomical Illustration

Correll,

Garrison

2024

Proceedings of the CHI Conference on Human Factors in Computing Systems

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With changing attitudes around knowledge, medicine, art, and technology, the human body has become a source of information and, ultimately, shareable and analyzable data. Centuries of illustrations and visualizations of the body occur within particular historical, social, and political contexts. These contexts are enmeshed in different so-called data cultures: ways that data, knowledge, and information are conceptualized and collected, structured and shared. In this work, we explore how information about the body was collected as well as the circulation, impact, and persuasive force of the resulting images. We show how mindfulness of data cultural influences remain crucial for today's designers, researchers, and consumers of visualizations. We conclude with a call for the field to reflect on how visualizations are not timeless and contextless mirrors on objective data, but as much a product of our time and place as the visualizations of the past. CCS CONCEPTS• Human-centered computing → Visualization theory, concepts and paradigms; Human computer interaction (HCI); • Applied computing → Life and medical sciences.

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Clinical conversations in the management of chronic musculoskeletal pain in vulnerable patient populations: a meta-ethnography

Emerson

Einhorn²,

Groover

et al. 2022

Disability and Rehabilitation

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Pain Assessment Recommendations for Women, Made by Women: A Mixed Methods Study

Abstract: Priorities identified by women for the assessment of pain were largely consistent with expert recommendations; however, important differences were raised that merit consideration for clinicians to reduce stigma.

Cited by 4 publications

References 23 publications

What narrative devices do people with systemic sclerosis use to describe the experience of pain from digital ulcers: a multicentre focus group study at UK scleroderma centres

What narrative devices do people with systemic sclerosis use to describe the experience of pain from digital ulcers: a multicentre focus group study at UK scleroderma centres

When the Body Became Data: Historical Data Cultures and Anatomical Illustration

Clinical conversations in the management of chronic musculoskeletal pain in vulnerable patient populations: a meta-ethnography

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