Paid Support Workers for Adults with Intellectual Disabilities; Their Current Knowledge of Hearing Loss and Future Training Needs

McShea, Lynzee; Fulton, John; Hayes, Catherine

doi:10.1111/jar.12201

Cited by 6 publications

(10 citation statements)

References 26 publications

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“…Of these, three dealt with general practice, 44,45,48 three dealt with a range of primary care services, 36,37,49 three dealt with carers working at residential or supported living homes [33][34][35]43 and two dealt with formal and informal carers of people with ID in residential or family homes. 38,39 The other three studies dealt with audiology services, 42 cervical and cancer screening 40 and sexual health. 41 The majority of the studies included in this cluster had a qualitative design.…”

Section: Identifying Needmentioning

confidence: 99%

“…There were 16 papers reporting 14 different studies in this cluster. Among these studies, health needs were identified by the person with ID, 34,36,38,41,44 family carers, 49,114 paid carers 33,35,39,40,42,48,73,114,115 and health professionals. 37,45,48 Identifying health need depends on some knowledge of potential risks to health.…”

Section: Identifying Needmentioning

confidence: 99%

“…37,45,48 Identifying health need depends on some knowledge of potential risks to health. Ten papers reporting eight studies looked at carers' awareness and knowledge of risks and potential health needs relating to cardiovascular disease, 48 hearing, 42 cancer, 40 men's health, 36 older people 35 and pain. 33,34,37-39 Table 16 provides the key findings of the studies in the identifying needs cluster.…”

Section: Identifying Needmentioning

confidence: 99%

“…Access to services depends on someone identifying a need and being aware that services are available to address that need. A number of studies 35,[40][41][42]117 explored knowledge of health risk and awareness of services to mitigate the risk.…”

Section: Service Delivery Modelmentioning

confidence: 99%

“…35 One study interviewed 20 residential and day care workers, focusing on their knowledge of hearing loss and use of hearing aids. 42 Care workers were aware that it was their responsibility to detect health problems in those unable to do so, but they lacked the skills to detect hearing problems and had reservations about the extent to which audiology services could verify and treat hearing loss in someone with ID. Carers also had negative perceptions about the use of hearing aids, the most common management option for hearing loss, and lacked the necessary skills to support their use in someone with ID.…”

Section: Service Delivery Modelmentioning

confidence: 99%

See 4 more Smart Citations

Access to primary and community health-care services for people 16 years and over with intellectual disabilities: a mapping and targeted systematic review

Cantrell

Croot

Johnson

et al. 2020

Health Serv Deliv Res

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Background In 2015, approximately 2.16% of adults were recorded as having intellectual disabilities. UK government policy is that adults with intellectual disabilities should access mainstream health services. However, people with intellectual disabilities experience challenges when accessing primary and community health services that can lead to inequalities and shorter life expectancy. Objectives To map and review the evidence on access to primary and community health-care services for adults with intellectual disabilities and their carers. To identify influencing factors for gaining access to primary and community health-care services. To determine which actions, interventions or models of service provision improve entry access to these services for people with intellectual disabilities and their carers. Finally, to identify the gaps in evidence and provide implications for health care and recommendations for research. Data sources MEDLINE, The Cochrane Library, Web of Science, Cumulative Index of Nursing and Allied Health Literature (CINAHL), Applied Social Sciences Index and Abstracts (ASSIA) and Education Resources Information Center (ERIC) were searched from 2002 to 2018. Review methods The mapping review methodology included an extensive literature search, article selection and data extraction of relevant abstracts. Findings from the mapping review informed the scope of the targeted systematic review. Methodology for the targeted systematic review included an extensive literature search informed by the mapping review, article selection, data extraction, quality appraisal and narrative synthesis. Results The mapping review included 413 studies with data extraction completed on abstracts. The targeted systematic review synthesised the evidence from 80 studies reported in 82 publications. During the review process, the team identified three key points at which people with intellectual disabilities potentially interacted with primary and community health-care services: identifying needs, accessing services and interaction during a consultation. In addition, there were a number of papers about interventions or innovations to improve access. Evidence from the studies was synthesised within the four clusters. Influencing factors were identified: staff knowledge/skills, joint working with learning disability services, service delivery model, uptake, appointment making, carer/support role, relationship with staff, time, accessible information and communication. The influencing factors were cross-cutting through the literature, with certain factors having more importance in certain clusters. Limitations The main limitation was the weak evidence base. The studies generally had small samples, had study designs that were open to potential biases and measured only short-term outcomes. Conclusions Health checks were found to help identify health needs and improve the care of long-term conditions. Important factors for accessing health services for adults with intellectual disabilities were consistency of care and support, staff training, communication skills and time to communicate, and provision of accessible information. Health professionals need to ensure that there is joint working between different services, clear communication and accurate record-keeping. Future research questions centre on the need to develop and value creative study designs capable of addressing the complex issues identified in the findings of the review for this complex population. Funding This project was funded by the National Institute for Health Research (NIHR) Health Services and Delivery Research programme and will be published in full in Health Services and Delivery Research; Vol. 8, No. 5. See the NIHR Journals Library website for further project information.

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Section: Identifying Needmentioning

confidence: 99%

Section: Identifying Needmentioning

confidence: 99%

Section: Identifying Needmentioning

confidence: 99%

Section: Service Delivery Modelmentioning

confidence: 99%

Section: Service Delivery Modelmentioning

confidence: 99%

See 3 more Smart Citations

Access to primary and community health-care services for people 16 years and over with intellectual disabilities: a mapping and targeted systematic review

Cantrell

Croot

Johnson

et al. 2020

Health Serv Deliv Res

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Hearing Impairment

Bent¹,

Brennan²,

McShea³

2018

Physical Health of Adults With Intellectual and Developmental Disabilities

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Effectiveness of m-learning HiSense APP-ID in enhancing knowledge, empathy, and self-efficacy in caregivers of persons with intellectual disabilities: a randomized controlled trial

2019

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M-learning is a flexible form of digital education that can benefit professional caregivers. The m-learning intervention ‘HiSense APP-ID’ was developed to support caregivers of persons with intellectual disability (ID). The intervention focuses on improving knowledge about sensitive and responsive caregiving for persons with ID. This randomized controlled trial of 101 professional caregivers of persons with moderate or mild ID evaluated whether m-learning improves practical and theoretical knowledge about secure attachment in persons with ID, and increases empathy and self-efficacy. The ‘HiSense APP-ID’ consists of 120 multiple-choice questions relating to attachment theory and the experience of persons with ID. Participants answer four questions each day for 30 days. In pre-, post-, and follow-up assessments, all participants completed a series of questionnaires concerning social validity, knowledge, self-efficacy, and empathy. Linear mixed effects modeling was then used to assess the effectiveness of the intervention. Users rated the app positively on usefulness, ease of use, design, and development of their own skills. Knowledge improved in the group of participants who followed m-learning. An interaction effect was found for empathic concern, but no significant effect was found for social empathy or self-efficacy. Thus, m-learning is a useful and flexible educational tool for professional caregivers of persons with ID, and the ‘HiSense APP-ID’ was able to improve theoretical knowledge in very short sessions spaced over a longer period of time.

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Paid Support Workers for Adults with Intellectual Disabilities; Their Current Knowledge of Hearing Loss and Future Training Needs

Abstract: Current training is not sufficient to provide the skills for detection and management of hearing problems. This group had clear ideas on methods of learning. Working in collaboration is necessary to achieve long-term change to practice.

Cited by 6 publications

References 26 publications

Access to primary and community health-care services for people 16 years and over with intellectual disabilities: a mapping and targeted systematic review

Access to primary and community health-care services for people 16 years and over with intellectual disabilities: a mapping and targeted systematic review

Hearing Impairment

Effectiveness of m-learning HiSense APP-ID in enhancing knowledge, empathy, and self-efficacy in caregivers of persons with intellectual disabilities: a randomized controlled trial

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