Paediatric Rehabilitation Ingredients Measure: a new tool for identifying paediatric neurorehabilitation content

Forsyth, Rob; Young, David; Kelly, Gemma; Davis, Kathy; Dunford, Carolyn; Golightly, Andrew; Marshall, Lindsay; Wales, Lorna

doi:10.1111/dmcn.13648

Cited by 11 publications

(22 citation statements)

References 20 publications

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“…In the UK there are ongoing discussions regarding a core outcome measure set to capture function in children with ABI, with work needed to develop measures of rehabilitation in this population. 15 The Experience of Service Questionnaire provides useful service user feedback through the scoring and free-text sections for audit purposes. Collecting service user feedback continues to be central to the person-centred care ethos of the service and ensuring children and families feel listened to and well supported, as detailed in the NHS Long Term Plan.…”

Section: Discussionmentioning

confidence: 99%

“…Functional Independence Measure and Functional Assessment Measure), there is no one measure currently available to the team that is valid for all age groups. In the UK there are ongoing discussions regarding a core outcome measure set to capture function in children with ABI, with work needed to develop measures of rehabilitation in this population 15 …”

Section: Discussionmentioning

confidence: 99%

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Outcomes for children with acquired brain injury (ABI) admitted to acute neurorehabilitation

Keetley

Bennett

Williams

et al. 2021

Develop Med Child Neuro

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Aim To evaluate an innovative paediatric neurorehabilitation model in relation to improving quality of neurorehabilitation and reducing length of stay (LOS) for children with acquired brain injury. Method A process evaluation approach was conducted in line with Medical Research Council evaluation of complex interventions guidance. Analysis was conducted on routinely collected patient data from 2017 to 2018, including LOS and family feedback. Descriptive and inferential statistics were used for quantitative analysis and qualitative data was analysed thematically. Results Outcomes for 70 children (0–16y, median age 5y, IQR 1–11y, 46 males, 24 females) referred to the service indicated improved function and reduced complexity of need. The mean LOS was 10.6 days compared to baseline mean LOS of 41 days (2011–2012). High satisfaction from the families was recorded; however, ongoing needs and service gaps regarding long‐term support were identified. Interpretation This service model is effective in delivering quality paediatric neurorehabilitation, demonstrating a sustained impact on LOS, and positive patient outcome data and family feedback for this group of patients. Investment in early intensive neurorehabilitation and supported discharge impacts length of stay (LOS) for children with acquired brain injury. Early intensive neurorehabilitation and supported discharge is effective. This is demonstrated by a sustained reduction in LOS, positive patient outcomes, and family feedback.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Outcomes for children with acquired brain injury (ABI) admitted to acute neurorehabilitation

Keetley

Bennett

Williams

et al. 2021

Develop Med Child Neuro

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“…However, identification of the type of intervention provided for each individual child was not available through the measures used in the routine data collection in this study. New approaches to the capture of rehabilitation input, such as Paediatric Rehabilitation Ingredients Measure – PRISM (Forsyth et al., 2018), have potential to help evaluate child outcomes against intervention approaches in the future.…”

Section: Discussionmentioning

confidence: 99%

“…Furthermore, this service evaluation did not capture the full rehabilitation input of the wider team in the full recovery trajectory of the CYP that could have influenced self-care performance. New tools such as PRISM have the potential to address this gap in future research studies (Forsyth et al., 2018).…”

Section: Discussionmentioning

confidence: 99%

Following severe childhood stroke, specialised residential rehabilitation improves self-care independence but there are ongoing needs at discharge

Wales¹,

Dunford

Davis³

2020

British Journal of Occupational Therapy

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Introduction Stroke is a major cause of mortality and disability in childhood. There is a false belief that children will recover better than adults and recent research confirms that younger age at injury can have a negative impact on rehabilitation outcomes, resulting in lifelong disability. Self-care is a key rehabilitation outcome for children and young people. Methods This service evaluation reviews routinely collected clinical self-care data from one specialised residential rehabilitation centre in the United Kingdom. Admission and discharge scores from the United Kingdom Functional Independence Measure +Functional Assessment Measure, Rehabilitation Complexity Scale – E and Northwick Park Nursing Dependency Scale were analysed. Results Twenty-six children and young people age 8 years and over with severe stroke were included. Mean scores of independence increased and mean scores of complexity and dependency decreased. A proportion of the sample had ongoing self-care needs in relation to support needed in washing, dressing and bathing. A small number remained highly dependent, requiring assistance from two carers. Conclusion Children and young people make significant gains in self-care independence during specialised rehabilitation. However, a proportion return to the community with high self-care needs. Occupational therapists and the wider care team should address ongoing self-care needs in this population.

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“…A clinically oriented research group from Newcastle, UK has developed a promising computer‐based tool (Paediatric Rehabilitation Ingredients Measure [PRISM]) which assists multi‐professional teams in identifying the primary targets of rehabilitation among patients with traumatic brain injury . PRISM helps to define the content of rehabilitation treatment delivered during the recovery phase after traumatic brain injury which meets the actual needs of the child.…”

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confidence: 99%

Paediatric Rehabilitation Ingredients Measure (PRISM): planning the content of rehabilitation

Autti‐Rämö

2018

Develop Med Child Neuro

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Paediatric Rehabilitation Ingredients Measure: a new tool for identifying paediatric neurorehabilitation content

Cited by 11 publications

References 20 publications

Outcomes for children with acquired brain injury (ABI) admitted to acute neurorehabilitation

Outcomes for children with acquired brain injury (ABI) admitted to acute neurorehabilitation

Following severe childhood stroke, specialised residential rehabilitation improves self-care independence but there are ongoing needs at discharge

Paediatric Rehabilitation Ingredients Measure (PRISM): planning the content of rehabilitation

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