Paediatric Cochlear Implantation Outcomes: Parental Expectations and Experiences

Khan, Shazia; Rajguru, Renu

doi:10.1007/s12070-021-02587-9

Cited by 2 publications

(3 citation statements)

References 20 publications

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“…Finally, parents across studies indicate the presence of additional comorbidities can affect their overall appraisal of QoL, as well as specific domains such as supporting the child and independence (Bhamjee et al, 2019;Anne et al, 2021). However, other studies report no significant correlations between child demographic characteristics and parent-reported QoL (de Almeida et al, 2015;Kumar et al, 2015;Khan and Rajguru, 2021).…”

Section: Assessing Qol In Children With Cismentioning

confidence: 99%

Parent-reported quality of life in children with cochlear implants differs across countries

Warner-Czyz

Nelson²,

Kumar³

et al. 2022

Front. Psychol.

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Pediatric cochlear implantation affects communication skills and quality of life, specifically how children interact with others and feel about themselves. Numerous studies worldwide examine well-being among pediatric cochlear implant users, but none to date compare condition-specific quality of life across countries. This retrospective study compares parent-reported cochlear implant-specific quality of life summary data across 14 published studies spanning 11 countries and 9 languages. Sample size ranged from 7 to 370 participants, and children across studies varied in mean chronologic age (3.1–12.2 years), implantation age (1.5–4.6 years), and cochlear implant experience (1.3–8.2 years). Parents completed the Children with Cochlear Implants: Parental Perspectives (CCIPP) questionnaire, an instrument assessing parent-reported cochlear implant-specific quality of life, in their home language. Analysis of variance tests were run for each CCIPP subscale across studies using summary data to determine significant differences between published manuscripts. Across countries, parents of children with cochlear implants appraise communication, social relations, and self-reliance most positively, and the effects of implantation and supporting the child least positively. Cross-country analyses revealed a significant effect of study (country) on quality of life ratings in each domain, with the largest differences in the communication domain. Limited access to implant-related accommodations, cultural awareness of hearing loss, and varying parent expectations may explain country differences in parental ratings of quality of life. Culturally sensitive psychoeducation for the entire family may foster improved life satisfaction for pediatric cochlear implant users and their families.

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Section: Assessing Qol In Children With Cismentioning

confidence: 99%

Parent-reported quality of life in children with cochlear implants differs across countries

Warner-Czyz

Nelson²,

Kumar³

et al. 2022

Front. Psychol.

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show abstract

“…With the advancements in cochlear implants (CIs), the majority of the literature on parental satisfaction with healthcare services and their outcomes for children with significant HL has been narrowed to this technology [ 5 , 19 ]. A CI is a medical treatment option that enhances the treatment and prognosis of children with severe to profound sensorineural HL.…”

Section: Introductionmentioning

confidence: 99%

“…A CI has been associated with increased parental satisfaction and progress in performance in the areas of listening (e.g., speech perception), communication (e.g., receptive and expressive language, speech, and voice clarity), interpersonal interactions and relationships (e.g., interactions with family members and others), and learning (e.g., academic performance, ability to perform multiple tasks, and attention) [13,19,26]. CI outcomes in these areas have been the focus of several studies examining parental satisfaction post-implant [13,19,[26][27][28]. The majority of these investigations employed questionnaires to investigate whether parents' preimplant expectations for post-implant outcomes were met, and they consistently found that parents' expectations were either met or surpassed.…”

Section: Introductionmentioning

confidence: 99%

Reliability and validity assessment of a survey: Measuring satisfaction with cochlear implant rehabilitation services for children in Jordan

Alkhamra,

Al-Omari,

Hani

2023

PLoS ONE

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Background Assessing parental satisfaction with healthcare services is crucial, particularly for parents and their children, who are the primary recipients of these services. In the context of Arabic-speaking parents, there is a notable absence of survey instruments tailored to measure their satisfaction. This study seeks to address this gap by validating a survey designed to evaluate parental satisfaction with rehabilitation services (RSs) provided to Jordanian children who have received cochlear implants (CIs). Methods The study included 92 participants and followed a four-step methodology: 1) a literature review and expert input; 2) cognitive interviews, pilot testing, and test-retest reliability testing; 3) data collection; 4) validity and reliability assessments. Results The survey’s validity was confirmed. Expert input and cognitive interviews improved content validity, and factor analysis established construct validity by revealing six factors explaining 82.33% of the variance in the survey scale. Convergent and discriminant validity were confirmed (composite reliability >0.7 and average variance extracted value >0.5). Cronbach’s α exceeded 0.8 for each factor and reached 0.855 for the total scale. Survey results showed reliance on speech therapy and audiology, varied rehabilitation durations, and progress. Parents expressed overall satisfaction, particularly influenced by technical quality and efficacy/outcome dimensions. Parents’ recommendations to enhance satisfaction with RSs included financial support, improved service accessibility, enhanced service delivery, specialized education, and increased public awareness. Conclusion This study validates an Arabic satisfaction survey, emphasizing the significance of multidisciplinary, extended rehabilitation programs, skilled professionals, and positive outcomes. It emphasizes the necessity for improved access to specialized care and collaboration among healthcare, government, and media to shape parental perceptions of RSs. While the findings indicate overall satisfaction, they also reveal challenges faced by parents, highlighting the need for comprehensive support systems. These insights assist healthcare providers and policymakers in enhancing care quality and meeting the needs of CI children’s families, thereby improving the RSs experience in Jordan.

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Paediatric Cochlear Implantation Outcomes: Parental Expectations and Experiences

Cited by 2 publications

References 20 publications

Parent-reported quality of life in children with cochlear implants differs across countries

Parent-reported quality of life in children with cochlear implants differs across countries

Reliability and validity assessment of a survey: Measuring satisfaction with cochlear implant rehabilitation services for children in Jordan

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