Pacific health research guidelines: the cartography of an ethical relationship

Mila-Schaaf, Karlo

doi:10.1111/j.1468-2451.2009.01707.x

Cited by 15 publications

(10 citation statements)

References 9 publications

(7 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The recent inclusion of human rights in bioethical frameworks constitutes a further advance in thinking. However, Pacific delegates at the conference on Pacific Ethics of Knowledge Production were concerned that the Universal Declaration of Bioethics and Human Rights privileged individual rights over more collectively oriented understandings of rights and responsibilities (Mila‐Schaaf 2007).…”

Section: Universal Ethicsmentioning

confidence: 99%

Think globally, act locally: collective consent and the ethics of knowledge production

Hudson

2009

Int Social Sci J

View full text Add to dashboard Cite

Ethical review is an integral part of the process of developing research and considering issues associated with the production of knowledge. It is part of a system that primarily legitimises western traditions of inquiry and reinforces western assumptions about knowledge and its benefit to society. Around the world the process of colonisation has excluded indigenous understandings. In New Zealand, Māori (indigenous) knowledge has been similarly marginalised; this pattern is also reflected within ethical review. Māori values, while acknowledged, are not yet considered to have equal weight in ethical deliberations. The notion of collective rights and the possibility of developing processes to allow collective consent to be recognised and mandated by ethics committees have been raised by communities but largely ignored by the ethical review system. While kaupapa Māori researchers espouse the benefits of closer community involvement, policy makers and ethics committees have focused on “consultation” as the mechanism which confirms proof of engagement, the establishment of community support, and the relevance of the project. This article highlights the potential of the concept of collective consent in negotiations between researchers and communities.

show abstract

Section: Universal Ethicsmentioning

confidence: 99%

Think globally, act locally: collective consent and the ethics of knowledge production

Hudson

2009

Int Social Sci J

View full text Add to dashboard Cite

show abstract

“…Relationship building with community leaders and prospective participants in cross cultural research is very important [ 57 ]. Concepts used for relationship building are common among Australian Aboriginal peoples and Torres Strait Islanders [ 73 ], Cook Islanders [ 35 ], iTaukei, who are the indigenous people of the Republic of the Fiji Islands [ 60 ], Maori of New Zealand [ 61 ] and Tongans [ 34 ].…”

Section: Resultsmentioning

confidence: 99%

Indigenous knowledge around the ethics of human research from the Oceania region: A scoping literature review

Lovo

Woodward

Larkins

et al. 2021

Philos Ethics Humanit Med

View full text Add to dashboard Cite

Background Many indigenous people have died or been harmed because of inadequately monitored research. Strong regulations in Human Research Ethics (HRE) are required to address these injustices and to ensure that peoples’ participation in health research is safe. Indigenous peoples advocate that research that respects indigenous principles can contribute to addressing their health inequities. This scoping literature review aims to analyze existing peer reviewed and grey literature to explore how indigenous values and principles from countries of Oceania are incorporated into HRE and the governance of research involving human participants. Methods A scoping literature review framework was used for this study. A search for peer reviewed and grey literature from Google, bibliographies, and electronic databases such as SCOPUS, SPRINGER, Medline (Ovid) and JBI Database of Systematic Reviews was conducted, limited to the years 2002–2020. Sixty (60) documents that focused on indigenous knowledge from Oceania region and HRE were included, from which key findings and themes were synthesized. Results Charting the data showed that more than half the eligible documents were peer-reviewed journal articles (54%). Other sources included: International Declarations on Human Research (8%); book chapters (8%); government documents (8%); HRE Guidelines or protocols (13%); news articles (7%) and PhD thesis (2%). The literature was from Australia, Cook Islands, Guam, New Zealand, Fiji, Samoa, Tonga and Vanuatu, some of which focused specifically on HREs in the Pacific Region. Issues emerging from the literature were grouped into five themes (i) indigenous and cultural principles of HRE; (ii) informed consent in indigenous settings in Oceania; (iii) vulnerability and minority status of indigenous populations exploited for research; (iv) research ethics governance for Oceania indigenous peoples; and (v) research ethics committees in Oceania. Respect, relationship building, and trust were priority indigenous HRE principles that encompass the principles of partnership, capacity building, reciprocity, and equality. Relationship building and trust imply the equal distribution of benefits for indigenous population and researchers. Conclusion Indigenous principles of HRE identified were interconnected and interdependent. Recommendations were to incorporate indigenous principles of research in HRE regulations and processes of all countries with indigenous populations. This is especially pertinent for emerging national research committees in LMIC countries, including Fiji and Tonga. Relationship building among researchers and indigenous populations is key to successful research with indigenous populations. HRE principles important for relationship building include respect that is reciprocal among researchers and indigenous people. Elements of the principle of respect highlighted are empathy, collaboration, sharing of benefits, reciprocity, appreciation, empowerment, protection, safety and awareness of culture and languages. Indigenous ontology from the Oceania region involves spirituality, connectedness to land, religious beliefs and a participatory approach to HRE and should be respected in research. An ethical governance mechanism of HRE is one that incorporates indigenous principles and applications for the purpose of maximizing the protection of the dignity and rights of indigenous peoples of Oceania.

show abstract

“…A number of authors have also drawn attention to the lack of fit of traditional western approaches to understanding mental health problems and providing treatment for people from non-western cultures, including a lack of understanding of spiritual beliefs (Koç & Kafa, 2019). In New Zealand, the bio-psycho-social model used by many clinicians does not take into account Pasifika peoples’ spiritual beliefs and beliefs about the causes of mental health problems (Mila-Schaaf & Hudson, 2009). Furthermore, it has been observed internationally that mainstream services can use the “culture” of a person to explain treatment difficulties, and view minority client responses to standard care as non-adherence and a barrier to engagement, rather than examining the role of mainstream dominance in mental health models and services (Kirmayer et al, 2014).…”

Section: Factors Contributing To Mental Health Problems and Barriers To Accessing Servicesmentioning

confidence: 99%

“…On the other hand, supportive therapeutic interventions for Pasifika require understanding of cultural beliefs, values, and practices, including those associated with mental wellbeing (Samu & Suaalii-Sauni, 2009) and also the effective application of this understanding into therapeutic practice (Te Pou, 2009). Effective initial engagement, based on Pasifika relational values, is thought to be important in encouraging service-users and their families to access and continue using services (Mila-Schaaf & Hudson, 2009). Recommendations include that service-providers make holistic and authentic connections with Pasifika service-users, based on respect, humility, and treating service-users with dignity; and that they have some understanding of the notion and the operation of the v a within families (Te Pou o Te Whakaaro Nui et al, 2010).…”

Section: Factors Contributing To Mental Health Problems and Barriers To Accessing Servicesmentioning

confidence: 99%

Barriers and Supports Experienced by Pacific Peoples in Aotearoa New Zealand’s Mental Health Services

Fa’alogo-Lilo

Cartwright

2021

Journal of Cross-Cultural Psychology

View full text Add to dashboard Cite

As with minority groups internationally, Pacific peoples in New Zealand (Pasifika) experience higher rates of mental health problems than the general population, and are less likely to access mental health services. This study investigated the barriers and supports for Pasifika accessing and using mental health services with participation of 25 Pasifika (10 service-providers, 11 ex-service-users, and 4 ex-service-users/providers) in order to gain their key informant perspectives. A Pasifika-appropriate Talanoa approach was used to guide the data-collection process and the qualitative data were analyzed using thematic analysis. Barriers included stigma among Pasifika regarding mental health problems, commitment to finding solutions within the family, and both mistrust and lack of knowledge of services. Within the services, non-Pasifika providers often lacked understanding of the collectivist cultural values and practices of Pasifika, including spiritual beliefs. They were more likely to use services if the providers were respectful of Pasifika practices and paid attention to developing relationships in a culturally appropriate way. This included involvement of the Pasifika family, when possible. Service-users often benefited from contact with Pasifika providers within mainstream services. These results support previous cross-cultural research that indicates the importance of offering evaluation and intervention services grounded in an understanding and respect for the cultural significance and meaning of mental health problems for the person, the family, and their community. While efforts are made to address these issues in New Zealand, change is slow and ongoing cultural training for service-providers along with psychoeducation for Pasifika about mental health services is strongly desirable.

show abstract

Pacific health research guidelines: the cartography of an ethical relationship

Cited by 15 publications

References 9 publications

Think globally, act locally: collective consent and the ethics of knowledge production

Think globally, act locally: collective consent and the ethics of knowledge production

Indigenous knowledge around the ethics of human research from the Oceania region: A scoping literature review

Barriers and Supports Experienced by Pacific Peoples in Aotearoa New Zealand’s Mental Health Services

Contact Info

Product

Resources

About