P013 Unregulated: Medical Companies Use Social Media to Sell Alternative Treatments for Inflammatory Bowel Disease

Szvarca, Daniel; Tabbara, Nadeem; Masur, Jack; Greenfest, Adam; Clarke, Lindsay M.; Borum, Marie L.

doi:10.1093/ibd/izy393.016

Cited by 3 publications

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“…However, social media platforms contain unregulated information, which could influence patient's decisions about disease management. 36,37 This finding is not specific to our sample, as previous research 38 has underlined negative implications of patients with asthma, coronary heart disease and diabetes using the internet and social media for health information. It is therefore important that social media is not the only source of information for patients, and that doctors are aware that patients may have potential misunderstandings or misconceptions about their clinical care as a result.…”

Section: Discussionmentioning

confidence: 68%

The information and support needs of patients living with inflammatory bowel disease: A qualitative study

2020

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Objectives To explore patients’ experiences of living with inflammatory bowel disease (IBD) with a focus on their information and support needs. Methods Qualitative interview study involving adults diagnosed with IBD recruited through social media. Interviews were audio recorded, transcribed and data were analysed thematically. Results Interviews with 15 patients (9 females, 6 males) highlighted how misdiagnosis or hesitation to diagnose had caused frustration and anxiety. Once diagnosed, only a few participants received detailed information about IBD from their doctor. Negative experiences shared on social media caused initial anxiety, as individuals assumed that they may have a similar experience, yet online communities enabled insights into the experiences of others, helping patients adjust to living with IBD. Participants described both positive and negative impacts of living with IBD, including improved confidence and periods of anxiety. Discussion: Our findings highlight the importance of clear information and support from health professionals, as well as the benefits of online communities for ongoing support. At the point of diagnosis, patients would benefit from information about what IBD is, as well as how it may impact day to day life from doctors so that social media is not the only source of initial information about IBD.

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Section: Discussionmentioning

confidence: 68%

The information and support needs of patients living with inflammatory bowel disease: A qualitative study

2020

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“…Twitter has been highly popular amongst healthcare researchers, epidemiologists, medical practitioners, data scientists, and computer science researchers for studying, analyzing, modeling, and interpreting social media communications related to pandemics, epidemics, viruses, and diseases such as Ebola [7], E-Coli [8], Dengue [9], Human papillomavirus (HPV) [10], Middle East Respiratory Syndrome (MERS) [11], Measles [12], Zika virus [13], H1N1 [14], influenza-like illness [15], swine flu [16], flu [17], Cholera [18], COVID 2022, 2 1028 Listeriosis [19], cancer [20], Liver Disease [21], Inflammatory Bowel Disease [22], kidney disease [23], lupus [24], Parkinson's [25], Diphtheria [26], and West Nile virus [27]. The recent outbreaks of COVID-19 and MPox have served as "catalysts," leading to the usage of Twitter for sharing and exchange of information on diverse topics related to these respective viruses leading to the generation of tremendous amounts of Big Data.…”

Section: Introductionmentioning

confidence: 99%

Analysis of Public Discourse on Twitter involving COVID-19 and MPox: Findings from Sentiment Analysis and Text Analysis

Thakur¹

2023

Preprint

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Mining and analysis of the Big Data of Twitter conversations have been of significant interest to the scientific community in the fields of healthcare, epidemiology, big data, data science, computer science, and their related areas, as can be seen from several works in the last few years that focused on sentiment analysis and other forms of text analysis of Tweets related to Ebola, E-Coli, Dengue, Human papillomavirus (HPV), Middle East Respiratory Syndrome (MERS), Measles, Zika virus, H1N1, influenza-like illness, swine flu, flu, Cholera, Listeriosis, cancer, Liver Disease, Inflammatory Bowel Disease, kidney disease, lupus, Parkinson's, Diphtheria, and West Nile virus. The recent outbreaks of COVID-19 and MPox have served as "catalysts" for Twitter usage related to seeking and sharing information, views, opinions, and sentiments involving both these viruses. While there have been a few works published in the last few months that focused on performing sentiment analysis of Tweets related to either COVID-19 or MPox, none of the prior works in this field thus far involved analysis of Tweets focusing on both COVID-19 and MPox at the same time. With an aim to address this research gap, a total of 61,862 Tweets that focused on Mpox and COVID-19 simultaneously, posted between May 7, 2022, to March 3, 2023, were studied to perform sentiment analysis and text analysis. The findings of this study are manifold. First, the results of sentiment analysis show that almost half the Tweets (the actual percentage is 46.88%) had a negative sentiment. It was followed by Tweets that had a positive sentiment (31.97%) and Tweets that had a neutral sentiment (21.14%). Second, this paper presents the top 50 hashtags that were used in these Tweets. Third, it presents the top 100 most frequently used words that are featured in these Tweets. The findings of text analysis show that some of the commonly used words involved directly referring to either or both viruses. In addition to this, the presence of words such as "Polio", "Biden", "Ukraine", "HIV", "climate", and "Ebola" in the list of the top 100 most frequent words indicate that topics of conversations on Twitter in the context of COVID-19 and MPox also included a high level of interest related to other viruses, President Biden, and Ukraine. Finally, a comprehensive comparative study that involves a comparison of this work with 49 prior works in this field is presented to uphold the scientific contributions and relevance of the same.

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Sentiment Analysis and Text Analysis of the Public Discourse on Twitter about COVID-19 and MPox

Thakur

2023

BDCC

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Mining and analysis of the big data of Twitter conversations have been of significant interest to the scientific community in the fields of healthcare, epidemiology, big data, data science, computer science, and their related areas, as can be seen from several works in the last few years that focused on sentiment analysis and other forms of text analysis of tweets related to Ebola, E-Coli, Dengue, Human Papillomavirus (HPV), Middle East Respiratory Syndrome (MERS), Measles, Zika virus, H1N1, influenza-like illness, swine flu, flu, Cholera, Listeriosis, cancer, Liver Disease, Inflammatory Bowel Disease, kidney disease, lupus, Parkinson’s, Diphtheria, and West Nile virus. The recent outbreaks of COVID-19 and MPox have served as “catalysts” for Twitter usage related to seeking and sharing information, views, opinions, and sentiments involving both of these viruses. None of the prior works in this field analyzed tweets focusing on both COVID-19 and MPox simultaneously. To address this research gap, a total of 61,862 tweets that focused on MPox and COVID-19 simultaneously, posted between 7 May 2022 and 3 March 2023, were studied. The findings and contributions of this study are manifold. First, the results of sentiment analysis using the VADER (Valence Aware Dictionary for sEntiment Reasoning) approach shows that nearly half the tweets (46.88%) had a negative sentiment. It was followed by tweets that had a positive sentiment (31.97%) and tweets that had a neutral sentiment (21.14%), respectively. Second, this paper presents the top 50 hashtags used in these tweets. Third, it presents the top 100 most frequently used words in these tweets after performing tokenization, removal of stopwords, and word frequency analysis. The findings indicate that tweets in this context included a high level of interest regarding COVID-19, MPox and other viruses, President Biden, and Ukraine. Finally, a comprehensive comparative study that compares the contributions of this paper with 49 prior works in this field is presented to further uphold the relevance and novelty of this work.

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P013 Unregulated: Medical Companies Use Social Media to Sell Alternative Treatments for Inflammatory Bowel Disease

Cited by 3 publications

References 0 publications

The information and support needs of patients living with inflammatory bowel disease: A qualitative study

The information and support needs of patients living with inflammatory bowel disease: A qualitative study

Analysis of Public Discourse on Twitter involving COVID-19 and MPox: Findings from Sentiment Analysis and Text Analysis

Sentiment Analysis and Text Analysis of the Public Discourse on Twitter about COVID-19 and MPox

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