Overview of the Important Physical Health Concerns

Burke, Éilish; O'Dwyer, Marie Claire; McGlinchey, Eimear; Foran, Sinéad; Phadraig, Caoimhin MacGiolla; Carroll, Rachael; McCallion, Philip; McCarron, Mary

doi:10.1007/978-3-319-90083-4_3

Cited by 2 publications

(3 citation statements)

References 104 publications

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“…Similar to other European countries (Cooper et al, 2015; De Leeuw et al, 2022; García‐Domínguez et al, 2020), older people with intellectual disabilities in Ireland are likely to experience complex and chronic health conditions. This has been confirmed by findings from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, which show older people with intellectual disability in Ireland to have an increased prevalence of chronic health conditions compared to the general population (Burke et al, 2017). Respondents in this study overwhelmingly reported (93.3%, n = 28) that complex age‐related issues have implications for provision of care to older people with intellectual disabilities in their service.…”

Section: Discussionmentioning

confidence: 67%

“…to have an increased prevalence of chronic health conditions compared to the general population (Burke et al, 2017). Respondents in this study overwhelmingly reported (93.3%, n = 28) that complex age-related issues have implications for provision of care to older people with intellectual disabilities in their service.…”

Section: Discussionmentioning

confidence: 77%

“…The prioritization of social inclusion and decongregation led to the reduction of residential places within intellectual disability services, thereby inadvertently increasing the transition of people with developing complex needs into other long‐term community services (Egan et al, 2022). The literature suggests that health and social care systems are ill‐equipped to meet the complex age‐related needs of older adults with intellectual disabilities (Burke et al, 2019; García‐Domínguez et al, 2020; McCarron et al, 2018; Sheerin et al, 2023) and, as a result, this population faces a range of unmet health and social care needs (Albuquerque & Carvalho, 2020; Bigby et al, 2014; Rinaldi et al, 2022). The commitment to the social model without required levels of community‐delivered healthcare, as obligated by the Convention on the Rights of Persons with Disabilities (UNCRPD) (United Nations, 2006), has resulted in a dilemma as to whether older adults with developing complexity can or should remain in settings that no longer have healthcare personnel.…”

Section: Introductionmentioning

confidence: 99%

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Challenges in care and service provision for older adults with intellectual disabilities and complex age‐related conditions in Ireland

Sheerin,

Fleming,

May

et al. 2024

Brit J Learn Disabil

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BackgroundPeople with intellectual disabilities are living longer and are increasingly diverse, with health and care needs that are varied and complex. Without changes to funding, services have found it difficult to respond to needs and wishes.MethodA descriptive mixed methods design study, data were collected through questionnaire, focus groups and individual interviews from intellectual disability service managers, direct care staff and older people with intellectual disabilities and family members.ResultsContinued reticence on the part of some community healthcare providers to treat people with intellectual disability was noted. Although some service innovations were noted, housing, staffing levels, staff mix and the timely provision of equipment were all reported to impact the ability of services to respond to changing needs. Current per‐capita funding practices were reported as unresponsive to growing age‐related complexity and fundamentally unsustainable.ConclusionsThe health inequalities experienced by people with intellectual disabilities are compounded as they age with complex age‐related health needs. There is an urgent need for revision of the service model in Ireland and instigation of flexible and responsive approaches to funding.

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Section: Discussionmentioning

confidence: 67%

Section: Discussionmentioning

confidence: 77%

Section: Introductionmentioning

confidence: 99%

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Challenges in care and service provision for older adults with intellectual disabilities and complex age‐related conditions in Ireland

Sheerin,

Fleming,

May

et al. 2024

Brit J Learn Disabil

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Autism spectrum disorder in older adults with intellectual disability: a scoping review

Maguire

Mulryan²,

Sheerin

et al. 2021

Ir. j. psychol. Med.

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Introduction: Ireland has an ageing population of persons with intellectual disability (ID), autism spectrum disorder (ASD) and both (ID/ASD). Despite this, little is known about the prevalence of ASD and its effect on functional outcomes, psychiatric comorbidity or diagnostic issues in an older population with ID. This article reviews the literature on older adults with ID/ASD and identifies opportunities for future research in this population. Method: The authors searched the Medline, Pubmed, Embase, CINAHL and PsychInfo databases using the search terms using key words: (older adults) AND (ID OR mental retardation OR learning disability) AND (autism OR ASD). After excluding articles for relevance, a scoping review was carried out on the results retrieved. Results: Of the 1227 articles retrieved from the literature on ID and autism/ASD in older adults, 85 articles were relevant to an adult population with ID/ASD. The data were collated and are presented covering domains of diagnosis, prevalence, psychiatric comorbidities and functional outcomes. Conclusions: Despite increased prevalence in childhood ASD in the last 20 years, there is a lack of research regarding adults, especially older adults, with ASD, up to half of whom will have some level of ID. The existing literature suggests that older adults with ID/ASD may have reduced functional independence, increased psychiatric comorbidity and psychotropic prescribing and more behavioural presentations than the older population generally or those with ID only. There is a need for longitudinal data to be collected on this ageing population so that care and management needs can be met in the future.

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Overview of the Important Physical Health Concerns

Cited by 2 publications

References 104 publications

Challenges in care and service provision for older adults with intellectual disabilities and complex age‐related conditions in Ireland

Challenges in care and service provision for older adults with intellectual disabilities and complex age‐related conditions in Ireland

Autism spectrum disorder in older adults with intellectual disability: a scoping review

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