Overcoming fragmentation of health research in Europe: lessons from COVID-19

Sipido, Karin R.; Antoñanzas, Fernando; Celis, Julio E.; Degos, Laurent; Frackowiak, R. S. J.; Fuster, Valentín; Ganten, Detlev; Gay, Steffen; Hofstraat, Hans; Holgate, Stephen T.; Krestin, Gabriël P.; Manns, Michael P.; Meunier, Françoise; Oertel, Wolfgang H.; Palkonen, Susanna; Pavalkis, Dainius; Rübsamen‐Schaeff, Helga; Smith, Ulf; Stallknecht, Bente; Zima, Tomáš

doi:10.1016/s0140-6736(20)31411-2

Cited by 12 publications

(12 citation statements)

References 3 publications

(2 reference statements)

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“…Since the World Health Organisation officially declared COVID-19 a pandemic on March 11, 2020, healthcare systems and societies have been significantly disrupted. 1 , 2 Globally, it is estimated that over 28 million (72.3%) planned operative procedures have been cancelled during the 12-week peak of the pandemic, affecting all main surgical specialties. 3…”

Section: Introductionmentioning

confidence: 99%

Safety of major reconstructive surgery during the peak of the COVID-19 pandemic in the United Kingdom and Ireland – multicentre national cohort study

Patel

Reissis

Mair

et al. 2021

Journal of Plastic, Reconstructive & Aesthetic Surgery

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Section: Introductionmentioning

confidence: 99%

Safety of major reconstructive surgery during the peak of the COVID-19 pandemic in the United Kingdom and Ireland – multicentre national cohort study

Patel

Reissis

Mair

et al. 2021

Journal of Plastic, Reconstructive & Aesthetic Surgery

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“…Moreover, the EHU should be included in a wider public health approach. It is linked to movements or concepts such as One Health [ 44 , 46 , 53 ], Global Health [ 39 , 54 , 55 ], Sustainable development goals (SDGs) [ 39 , 54 ] or Determinants of health [ 54 , 56 ]. There is a conception of public health, and health security, as a public good and the EU is seen as the appropriate level to provide it [ 40 ].…”

Section: Resultsmentioning

confidence: 99%

“…The first one is the political will as no policy can be achieved without it [ 12 , 40 , 51 , 53 , 54 , 57 , 58 ]. The second is the funding [ 40 , 41 , 43 , 44 , 45 , 50 , 51 , 55 , 59 ]. The EU4Health program, which is now independent from the European Social Fund, illustrated the strong negotiations that can take place regarding funding with an important difference between what was proposed by the EC and the response of the European Council [ 40 , 56 ].…”

Section: Resultsmentioning

confidence: 99%

The European Health Union: European Union’s Concern about Health for All. Concepts, Definition, and Scenarios

Nabbe

Brand

2021

Healthcare

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The COVID-19 pandemic brought visibility and intensified the discussions on the European Union’s (EU) health mandate. The proposals of the European Commission (EC) to move towards a European Health Union (EHU) can be seen as a starting point towards more integration in health. However, the definition of what the EHU will look like is not clear. This paper searches to find a common definition, and/or features for this EHU through a systematic literature review performed in May 2021. “European Union’s concern about health for all” is suggested as a definition. The main drivers identified to develop an EHU are: surveillance and monitoring, crisis preparedness, funding, political will, vision of public health expenditures, population’s awareness and interest, and global health. Based on these findings, five scenarios were developed: making a full move towards supranational action; improving efficiency in the actual framework; more coordination but no real change; in a full intergovernmentalism direction; and fragmentation of the EU. The scenarios show that the development of a EHU is possible inside the current legal framework. However, it will rely on increased coordination and has a focus on cross-border health threats. Any development will be strongly linked to political choices from Member States.

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“…RNs may also differ in lifespan, which depends on financial resources, research relevance, and multidisciplinary collaborations [ 2 ]; these factors may influence the network’s capacity in achieving their objectives and goals. Given that the activities of a network are time limited and the development of evidence-based recommendations and their translation into policy and practice may require a longer time frame, the lifespan of RNs may cause fragmentation of health research worldwide [ 3 ].…”

Section: Introductionmentioning

confidence: 99%

Mapping European research networks providing health data: results from the InfAct Joint Action on health information

et al. 2022

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Background Research networks offer multidisciplinary expertise and promote information exchange between researchers across Europe. They are essential for the European Union’s (EU) health information system as providers of health information and data. The aim of this mapping exercise was to identify and analyze EU research networks in terms of health data collection methods, quality assessment, availability and accessibility procedures. Methods A web-based search was performed to identify EU research networks that are not part of international organizations (e.g., WHO-Europe, OECD) and are involved in collection of data for health monitoring or health system performance assessment. General characteristics of the research networks (e.g., data sources, representativeness), quality assessment procedures, availability and accessibility of health data were collected through an ad hoc extraction form. Results Fifty-seven research networks, representative at national, international or regional level, were identified. In these networks, data are mainly collected through administrative sources, health surveys and cohort studies. Over 70% of networks provide information on quality assessment of their data collection procedures. Most networks share macrodata through articles and reports, while microdata are available from ten networks. A request for data access is required by 14 networks, of which three apply a financial charge. Few networks share data with other research networks (8/49) or specify the metadata-reporting standards used for data description (9/49). Conclusions Improving health information and availability of high quality data is a priority in Europe. Research networks could play a major role in tackling health data and information inequalities by enhancing quality, availability, and accessibility of health data and data sharing across European networks.

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Overcoming fragmentation of health research in Europe: lessons from COVID-19

Cited by 12 publications

References 3 publications

Safety of major reconstructive surgery during the peak of the COVID-19 pandemic in the United Kingdom and Ireland – multicentre national cohort study

Safety of major reconstructive surgery during the peak of the COVID-19 pandemic in the United Kingdom and Ireland – multicentre national cohort study

The European Health Union: European Union’s Concern about Health for All. Concepts, Definition, and Scenarios

Mapping European research networks providing health data: results from the InfAct Joint Action on health information

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