Outcomes of the peer‐taught 12‐week family‐to‐family education program for severe mental illness

Dixon, Lisa B.; Lucksted, Alicia; Stewart, Bette; Burland, Joyce; Brown, Clayton H.; Postrado, Leticia; McGuire, Carson; Hoffman, Marcia A.

doi:10.1046/j.0001-690x.2003.00242.x

Cited by 116 publications

(109 citation statements)

References 20 publications

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“…The results of this study can be used to prospectively identify caregivers at risk for adverse health outcomes associated with caregiving and target them for a prevention-focused intervention. A number of peer and clinician-administered interventions for family caregivers of patients with bipolar and other serious mental disorders [e.g., The Family to Family program offered by the National Alliance for the mentally ill (Dixon et al, 2004);Multiple Family Group (McFarlane, 1983), Family Psychoeducation for bipolar disorder (Miklowitz, et al, 2000)] and other family interventions with demonstrated clinical efficacy, include material on caregiver self-care, and might be offered to caregivers with high burden profiles. …”

Section: Discussionmentioning

confidence: 99%

“…Although caregivers who internalize the devaluing views of society might be anticipated to experience a decrement in self-esteem, less adaptive coping, and inadequate health practices, a response of "righteous anger" may motivate them to take constructive actions to reduce the adverse impact of stigma, such as participating in consumer advocacy programs which promote empowerment and social support, and have been associated with improved caregiver health outcomes (Dixon et al, 2004).…”

Section: Stigmatized Caregiversmentioning

confidence: 99%

See 1 more Smart Citation

Caregiver Burden and Health in Bipolar Disorder

Perlick

Rosenheck²,

Miklowitz³

et al. 2008

Journal of Nervous &Amp; Mental Disease

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To identify caregivers at risk for adverse health effects associated with caregiving, the stress, coping, health and service use of 500 primary caregivers of patients with bipolar disorder were assessed at baseline, 6, and 12 months. K-means cluster analysis and ANOVA identified and characterized groups with differing baseline stress/coping profiles. Mixed effects models examined the effects of cluster, time, and covariates on health outcomes. Three groups were identified. Burdened caregivers had higher burden and avoidance coping levels, and lower mastery and social support than effective and stigmatized caregivers; stigmatized caregivers reported the highest perceived stigma (p < 0.05). Effective and stigmatized groups had better health outcomes and less service use than the burdened group over time; stigmatized caregivers had poorer selfcare than effective caregivers. Cluster analysis is a promising method for identifying subgroups of caregivers with different stress and coping profiles associated with different health-related outcomes. Copyright Caring for a relative with bipolar disorder poses both objective burdens such as increased expenditure of time and money, and emotional burdens such as worry, tension, and grief (Chakrabarti and Gill, 2002;Fadden et al., 1987;Perlick et al., 1999;Reinares and Vieta, 2004). Perlick et al. (2001) found that 93% of caregivers of patients with bipolar disorder reported a moderate or higher degree of caregiving strain when their relative was admitted to a psychiatric facility, and that 70% continued to report moderate or higher burden 15 months later.In addition to its impact on quality of life, caregiving strain has been associated with compromised health and mental health among caregivers of patients with major affective and other chronic mental disorders. For example, caregivers who report high levels of caregiving strain also report experiencing poorer general health and a higher number of chronic medical conditions relative to the general population (Gallagher and Mechanic, 1996), as well as increased primary care visits (Perlick et al., 2005), more sleep problems (Perlick et al., 2007), greater use of psychotropic drugs such as tranquilizers and antidepressants (Dyck et al., 1999), and increased risk of medical hospitalization (Gallagher and Mechanic, 1996). Finally, studies have shown that high levels of caregiving strain are associated with clinically significant levels of depressive symptoms (Coyne et al., 1987;Dyck et al., 1999;Struening et al., 1995).The causal links between caregiving strain, adverse health effects and increased service use have not been clearly elucidated. Studies have demonstrated an association between various forms of psychological stress and health complaints and/or use of primary care services (e.g., Katon, 1984;Olfson and Klerman, 1992;Salovey et al., 2000), and studies among caregivers have suggested that those who experience high levels of strain are low in coping self-efficacy or employ less effective coping strategies, whi...

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Section: Discussionmentioning

confidence: 99%

Section: Stigmatized Caregiversmentioning

confidence: 99%

Caregiver Burden and Health in Bipolar Disorder

Perlick

Rosenheck²,

Miklowitz³

et al. 2008

Journal of Nervous &Amp; Mental Disease

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“…(35) Estudos realizados em diferentes países mostram que a psicoeducação fornece aos cuidadores níveis elevados de satisfação, diminui o cargo familiar, promove maior aderência e aceitação do paciente ao tratamento, reduz a preocupação e frustração do cuidador e diminui os níveis de recaídas e reinternações hospitalares. (16,(36)(37)(38)(39)(40) Apesar da sua natureza crônica e incapacitante e dos altos níveis de incidência populacional, ainda é escasso o número de estudos sobre participação familiar e apoio impactante no tratamento de pacientes com transtornos de ansiedade. Porém, resultados de pesquisas relacionados a sintomas compulsivo-obsessivos e estresse pós-traumático (41) confirmam que a participação familiar é eficaz no tratamento daqueles pacientes.…”

Section: Psicoeducação E Família: Visão Geral Atual E Perspectivas Deunclassified

Tratamento de fobia social em adultos: considerações a respeito da inserção da família em programas psicoeducacionais

Sztamfater

Savóia

2017

SMAD, Rev. Eletrônica Saúde Mental Álcool Drog. (Ed. port.)

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“…Each item was rated from 1 (not true at all) to 5 (very true), resulting in a sum score of 12 to 60, with higher scores indicating greater empowerment. This subscale has been shown to be sensitive to change in a study examining a family intervention [27]. Family members' perceived efficacy to carry out tasks targeted by the intervention was assessed with a 7-item measure, adapted from the initial Family of Heroes study [23].…”

Section: Methodsmentioning

confidence: 99%

Randomized controlled trial of a brief Internet-based intervention for families of Veterans with posttraumatic stress disorder

Interian

Kline

Perlick³

et al. 2016

J Rehabil Res Dev

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Abstract-Veterans with posttraumatic stress disorder (PTSD) and their families require resources to cope with postdeployment readjustment. Responding to this need, the current study examined a brief Internet-based intervention that provided Veterans' families with psychoeducation on postdeployment readjustment. Participants were 103 dyads of Veterans with probable PTSD and a designated family member/partner. Dyads were randomized to an intervention group, in which the family member completed the intervention, or to a control group with no intervention. Each member of the dyad completed surveys at baseline and 2 mo follow-up. Family member surveys focused on perceived empowerment, efficacy to provide support, and communication (perceived criticism and reactivity to criticism). Veteran surveys assessed perceived family support and communication. Results showed that Veterans in the intervention group reported decreases in reactivity to criticism but also decreased perceived family support. No significant differences were observed in outcomes reported by family members. This preliminary study provides an early understanding of this novel outreach program, as well as the challenges inherent with a very brief intervention. Future research can build on the current study by more closely evaluating the communication changes that occur with this form of intervention and whether greater intervention intensity is needed. Clinical Trial Registration: ClinicalTrials.gov; "The families of heroes: An evaluation of an online educational tool": NCT01554839; https://clinicaltrials.gov/ct2/show/NCT01554839?term=NCT01554839

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Outcomes of the peer‐taught 12‐week family‐to‐family education program for severe mental illness

Abstract: This study provides evidence that FFEP is helpful to relatives of persons with SMI by reducing subjective burden and worry, and increasing empowerment, knowledge about SMI, understanding the mental health system, and self-care.

Cited by 116 publications

References 20 publications

Caregiver Burden and Health in Bipolar Disorder

Caregiver Burden and Health in Bipolar Disorder

Tratamento de fobia social em adultos: considerações a respeito da inserção da família em programas psicoeducacionais

Randomized controlled trial of a brief Internet-based intervention for families of Veterans with posttraumatic stress disorder

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