Outcomes and patients’ perspectives of transition from paediatric to adult care in inflammatory bowel disease

Bennett, Alice; Moore, David; Bampton, Peter A.; Bryant, Robert V.; Andrews, Jane M.

doi:10.3748/wjg.v22.i8.2611

Cited by 35 publications

(26 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…To our knowledge, only one previous study has described the outcome of transition in IBD care . Non‐adherence rates were in accordance with our cohort, but higher rates of hospitalisation and disease complications were found after transfer.…”

Section: Discussionsupporting

confidence: 90%

Self‐efficacy did not predict the outcome of the transition to adult care in adolescents with inflammatory bowel disease

et al. 2018

View full text Add to dashboard Cite

show abstract

Section: Discussionsupporting

confidence: 90%

Self‐efficacy did not predict the outcome of the transition to adult care in adolescents with inflammatory bowel disease

et al. 2018

View full text Add to dashboard Cite

show abstract

“…However, the differences found were not statistically significant (likely due to the low response rates in the survey study). Also, literature suggests that young people prefer professionals of both paediatric and adult care be present at the same time in consultations (joint consultations) 25. The evaluated TC provided separate consultations, however, and providing joint consultations may possibly elicit more positive experiences.…”

Section: Discussionmentioning

confidence: 97%

Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation

et al. 2020

View full text Add to dashboard Cite

ObjectiveDeveloping and evaluating effective transition interventions for young people (16–25 years) with inflammatory bowel disease (IBD) is a high priority. While transition clinics (TCs) have been recommended, little is known about their operating structures and outcomes. This study aimed to gain insight into the value of a TC compared with direct handover care.DesignControlled mixed-methods evaluation of process outcomes, clinical outcomes and patient-reported outcomes.SettingTwo outpatient IBD clinics in the Netherlands.ParticipantsData collection included: semistructured interviews with professionals (n=8), observations during consultations with young people (5×4 hours), medical chart reviews of patients transferred 2 to 4 years prior to data collection (n=56 in TC group; n=54 in control group) and patient questionnaires (n=14 in TC group; n=19 in control group).OutcomesData were collected on service structures and daily routines of the TC, experienced barriers, facilitators and benefits, healthcare use, clinical outcomes, self-management outcomes and experiences and satisfaction of young people with IBD.ResultsAt the TC, multidisciplinary team meetings and alignment of care between paediatric and adult care providers were standard practice. Non-medical topics received more attention during consultations with young people at the TC. Barriers experienced by professionals were time restrictions, planning difficulties, limited involvement of adult care providers and insufficient financial coverage. Facilitators experienced were high professional motivation and a high case load. Over the year before transfer, young people at the TC had more planned consultations (p=0.015, Cohen’s d=0.47). They showed a positive trend in better transfer experiences and more satisfaction. Those in direct handover care more often experienced a relapse before transfer (p=0.003) and had more missed consultations (p=0.034, Cohen’s d=−0.43) after transfer.ConclusionA TC offer opportunities to improve transitional care, but organisational and financial barriers need to be addressed before guidelines and consensus statements in healthcare policy and daily practice can be effectively implemented.

show abstract

“…[ 17 ] A summary of studies that have investigated the effect a well-structured transition strategy might have on IBD disease outcomes is summarized in Table 5 . [ 18 19 20 21 22 23 24 25 ] Such reported impacts of structured transitioning on disease outcomes warrant further investigations on a national scale in developing countries.…”

Section: Discussionmentioning

confidence: 99%

A cross-sectional survey of Saudi gastroenterologists: Transition strategies for adolescents with inflammatory bowel disease

Al-Jahdali

Mosli

Saadah

2017

Saudi J Gastroenterol

View full text Add to dashboard Cite

Outcomes and patients’ perspectives of transition from paediatric to adult care in inflammatory bowel disease

Abstract: Transition did not appear to adversely affect disease or psychosocial outcomes. Current transition care processes could be optimised, with better psychosocial preparation and agreed transition plans.

Cited by 35 publications

References 38 publications

Self‐efficacy did not predict the outcome of the transition to adult care in adolescents with inflammatory bowel disease

Self‐efficacy did not predict the outcome of the transition to adult care in adolescents with inflammatory bowel disease

Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation

A cross-sectional survey of Saudi gastroenterologists: Transition strategies for adolescents with inflammatory bowel disease

Contact Info

Product

Resources

About