Outcome of shared care for pediatric cardiac transplantation between two nations with different health care systems

Simmonds, Jacob; Murchan, H.; James, Adam; Crispino, Gloria; O’Brien, John A.; Crumlish, Kathleen; Franklin, Orla; Fenton, Matthew; Burch, Michael; McMahon, Colin J.

doi:10.1016/j.healun.2014.12.010

Cited by 4 publications

(4 citation statements)

References 16 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…EBV-specific CTLs are taken from a partially HLA-matched EBV seropositive donor and then infused into the patient in order to reconstitute the immune response to EBV which is the driving force of the PTLD. This is the first reported case of CTL therapy in a paediatric patient post cardiac transplant in a shared care program 7 , although it has been reported following other solid organ transplants in children with 80% remission rate and minimal toxicity 8 .…”

Section: Discussionmentioning

confidence: 85%

Post-transplant lymphoproliferative disorder presenting as supraglottitis following pediatric heart transplantation treated with EBV-specific cytotoxic T-lymphocytes

Duignan

O’Marcaigh

Russell

et al. 2022

The Journal of Heart and Lung Transplantation

Self Cite

View full text Add to dashboard Cite

Section: Discussionmentioning

confidence: 85%

Post-transplant lymphoproliferative disorder presenting as supraglottitis following pediatric heart transplantation treated with EBV-specific cytotoxic T-lymphocytes

Duignan

O’Marcaigh

Russell

et al. 2022

The Journal of Heart and Lung Transplantation

Self Cite

View full text Add to dashboard Cite

“…The rarity of patients and donors' availability justifies the creation of a supra-national, continent-wide network to gather patients to dedicated centers. At a more local level, sharing care of pediatric cardiac transplantation between two close European countries has achieved good outcomes [6]. Moreover, the fact that most critical care physicians identified congenital disorders as the main transplant indications increases the need for the creation of such a network, since these disorders typically evolve towards intractable respiratory failure within a relatively short course.…”

Section: Discussionmentioning

confidence: 99%

Lung transplantation in neonates and infants: ESPNIC survey of European neonatologists and pediatric intensivists

et al. 2020

View full text Add to dashboard Cite

Lung and heart & lung transplantations in neonates and infants are extreme treatments offered for some life-threatening conditions especially in some North-American centers with promising results. These transplantations are rarely performed in Europe, and we set up a continent-based survey to describe the attitude of European neonatologists and pediatric intensivists on the subject and identify the main indications for this transplantation and the obstacles for the realization of a European lung transplantation program. Conclusion:The main indications for lung transplantation program for neonates and infants are represented by congenital disorders, and physicians indicate as main obstacles the donors' availability. European neonatologists and pediatric intensivists are interested to create a European network to overcome this problem and realize a lung transplantation program for neonates and infants. What is Known:• Lung transplantation in neonates and infants seems to slowly increase, and some North-American centers accumulated a relevant experience. What is New:• European neonatologists and pediatric intensivists are interested in creating a European network for a lung transplantation program for neonates and infants. • The main indications for lung transplantation program for neonates and infants are represented by congenital disorders and main obstacle to lung transplantation is the donors' availability Keywords Lung . Transplantation . Neonate . Infant Abbreviations ACD Alveolar capillary dysplasia and related disorders CASP Congenital anomalies of surfactant proteins PPHN Persistent pulmonary hypertension of the neonate CHD Congenital heart defects CDH Congenital diaphragmatic hernias

show abstract

“…13 This type of shared care model has been in place in several countries with different geographical and population stratifications. 14,15 Sharing care for children and young people between a specialist centre and health providers closer to home has been demonstrated around the world to be a useful model for the management and treatment of conditions such as cystic fibrosis, 16 ADHD, 17 obesity, 18 cardiac transplantation, 19 general paediatric care 20,21 and children with complex needs. 22 Shared care had the same 16,19 or improved outcomes including patient comfort levels, and decreased emergency and day-only admissions.…”

Section: What Is Already Known On This Subjectmentioning

confidence: 99%

“…14,15 Sharing care for children and young people between a specialist centre and health providers closer to home has been demonstrated around the world to be a useful model for the management and treatment of conditions such as cystic fibrosis, 16 ADHD, 17 obesity, 18 cardiac transplantation, 19 general paediatric care 20,21 and children with complex needs. 22 Shared care had the same 16,19 or improved outcomes including patient comfort levels, and decreased emergency and day-only admissions. 17,18,21,22 Care was more accessible, sustainable and supportive, 18 there were reduced costs to the family and health system 21,22 and better quality of life for the children.…”

Section: What Is Already Known On This Subjectmentioning

confidence: 99%

Fifteen years of shared care for paediatric oncology, haematology and palliative patients across Queensland: The role of Regional Case Managers

Slater

Hastings

Nicholson

et al. 2022

Australian J Rural Health

View full text Add to dashboard Cite

Objective A shared care model was implemented in 2006 in Queensland to facilitate paediatric oncology, haematology and palliative care patients receiving care as close to home as possible. Following initial diagnosis, care planning and treatment at the tertiary children's hospital, appropriate local care was coordinated by Regional Case Managers (RCMs) established at each of 10 Shared Care Units (SCUs). This enabled safe and quality regional care supported by a statewide network providing clinical governance and education. This paper examines learnings from 15 years of this shared care. Setting Ten hospitals throughout Queensland facilitated a statewide model of shared care for paediatric oncology, haematology and palliative care patients, supported by a tertiary hub in Brisbane. Participants Regional Case Managers in Shared Care Units and their supporting staff. Design Staff from SCUs were surveyed and focus group interviews conducted. Results The paper reviews the attributes, knowledge and experience required for RCMs. Standards of care were supported through education workshops, clinical placements, chemotherapy credentialing, guidelines and standards. RCMs facilitated communication and information sharing with the tertiary centre, advocated for their cohort of patients locally and streamlined and supported the family's experience of care. Conclusion The RCM role provided invaluable clinical leadership for the care of paediatric oncology, haematology and palliative patients across Queensland. As new treatments evolve, the expertise and coordination provided by the RCMs will be even more critical. Achieving high‐quality shared care outcomes is underpinned by the RCMs drive to achieve statewide safety and support for this cohort of children.

show abstract

Outcome of shared care for pediatric cardiac transplantation between two nations with different health care systems

Cited by 4 publications

References 16 publications

Post-transplant lymphoproliferative disorder presenting as supraglottitis following pediatric heart transplantation treated with EBV-specific cytotoxic T-lymphocytes

Post-transplant lymphoproliferative disorder presenting as supraglottitis following pediatric heart transplantation treated with EBV-specific cytotoxic T-lymphocytes

Lung transplantation in neonates and infants: ESPNIC survey of European neonatologists and pediatric intensivists

Fifteen years of shared care for paediatric oncology, haematology and palliative patients across Queensland: The role of Regional Case Managers

Contact Info

Product

Resources

About