Outcome Measures Used in Studies of Rehabilitation in Pulmonary Hypertension

Abstract

6) (ICF) is a dynamic multi-dimensional classification of health and health-related domains. It is designed to support clinicians and health policy makers to examine and understand the health of individuals and populations, not simply in terms of diagnoses, but also reflecting the impact of disease on individuals and the lives that they are able to live. The ICF considers: i) Body Functions/Structures i.e. aspects of physiology and anatomy, ii) Activity i.e. actions and tasks undertaken by individuals, iii) Participation i.e. involvement in life situations, and iv) the environmental and personal factors which affect these experiences.To understand the impact of rehabilitation on patients with PH, outcomes used in studies of rehabilitation need to capture the influence of those interventions across all domains of health. This study uses the WHO ICF model as a framework to examine the literature of rehabilitation interventions in patients with PH. MethodsThis systematic review comprised comprehensive searching of the literature and combined tabular and narrative synthesis(7). It was prospectively registered on the PROSPERO database (CRD42019127590). Research AimCharacterisation and clinical meaning of outcome measures in studies of rehabilitation in patients with pulmonary hypertension. Search StrategyA comprehensive search was conducted of the following electronic databases: MEDLINE (EBSCO); CINAHL Complete (EBSCO); Cochrane Central Register of Controlled Trials (Wiley); Scopus (Elsevier); ASSIA (Proquest). Searches were conducted in February 2019 and databases were monitored for updates until September 2019. The strategy included searches for words and phrases relating to pulmonary hypertension and exercise or rehabilitation. The Boolean operators AND and OR were used, alongside phrase, proximity and truncation operators. The search syntax was adapted accordingly for each information source and controlled vocabulary terms used where available.Where indicated, author and citation searches were undertaken of papers included in the review. Searches were conducted for conference proceedings to identify full articles if they had been published. Search strategies for each database are detailed in Appendix 1. 2 Study selectionSelection of studies was undertaken by one author (CK) and a sample was checked at each stage of selection by a second author (MHG). Disagreement was resolved by discussion and consensus involving a third author (KS) as necessary.Articles from all databases were combined and duplicates removed before title and abstract were screened; if studies were considered to be eligible, then full-text was reviewed. Studies were included if they met the following criteria; quantitative studies of any design, which included primary data; peer reviewed protocols of planned studies; originating from any time period. Studies were excluded if they were: abstract-only papers; single case studies (case series were included); review papers (although references were checked for primary data sources); non-English langua...

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