Outcome measures used in clinical studies on neonatal brachial plexus palsy: A systematic literature review using the International Classification of Functioning, Disability and Health

Abstract

There was a high variability among the outcome measures used, with measures within the ICF component Body Functions being most common. These results underscore the need for the development and usage of outcome measures representing all domains of health status in patients with NBPP.

Outcome assessment for Brachial Plexus birth injury. Results from the iPluto world‐wide consensus survey

“…This is the first attempt to reach worldwide consensus on outcome measures for BPBI, with the aim to overcome the limitations of the current use of many different evaluation methods. 3,4 Different evaluation methods for children with BPBI have been summarized in a number of reviews in the recent years. AlQattan describes different methods to assess motor power.…”

“…These were mostly binary questions (yes/no) to evaluate items that were extracted from the systematic review. 4 In addition, participants were asked to add missing items to be included in subsequent rounds of the surveys. Additionally, details concerning the composition of their treatment team and annual patient load were asked.…”

“…An attempt to pool data from different patient series showed resulting difficulties and inconsistencies 2. Two recent systematic reviews established that many different outcome measures have been used 3, 4…”

“…2 Two recent systematic reviews established that many different outcome measures have been used. 3,4 In an effort to improve comparability of research outcomes, the iPLUTO project, international PLexus oUtcome sTudy grOup, was initiated. The goal of iPluto was to define a universal dataset for the evaluation of upper limb function of children with BPBI.…”

Contribuições articulares do complexo do ombro e coluna cervical de crianças com paralisia obstétrica do plexo braquial durante tarefas de alcance

“…Children with NBPP have the perception that limited range of motion and reduced strength affects their performance of certain movements in sports or school activities (K. W. Chang et al, 2017; Kirjavainen, Remes, Peltonen, Helenius, & Po, 1998; Sarac et al, 2015). These children related difficulties to perform the movement putting their arm above their head or they find it hard to reach for something (Sarac et al, 2015). The speed difference between groups is possibly related to these difficulties and limited range of movement.…”