Organizing ventilation at home

Henderson, J. Gordon; Beckley, Sarah; England, Kaye; Booth, William; Fleming, Peter D.

doi:10.1054/cupe.1999.0064

Cited by 3 publications

(3 citation statements)

References 3 publications

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“…The number of children requiring long term mechanical ventilation support which is a treatment option for children with chronic respiratory failure is increasing (1). This is a consequence of advancements in neonatal and pediatric intensive care services and technology that have led to the longer survival rates of critically ill patients as well as the development of medical equipment suitable for using at home.…”

Section: Introductionmentioning

confidence: 99%

“…Using mechanical ventilators at home allows patients with chronic respiratory failure to be discharged from hospital (2). Ventilation at home not only reduces bed occupation in intensive care units, but also helps to decrease hospital infection rates, and health expenditures, while helping to increase the patient's physical and psychological functions and QoL (1,3). Home care is a preferable alternative for children who are medically stable and require long term mechanical ventilation support.…”

Section: Introductionmentioning

confidence: 99%

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Clinical Evaluation of Invasive Home Mechanical Ventilation Dependent Pediatric Patients

et al. 2017

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Objectives: With the advancements in neonatal and pediatric intensive care services and technology, the number of children requiring long term mechanical ventilation support is increasing. Home mechanical ventilators enable discharge of patients with chronic respiratory failure from hospital and allows children to grow in natural environment. The objective of this study was to define clinical characteristics and follow up results of pediatric patients who are dependent on invasive home mechanical ventilation support. Methods:This retrospective study included a total of 61 patients discharged from pediatric intensive care unit while on mechanical ventilation (HMV). Results:The median age of patients was 8.5 (2 -196) months with 60% of them being younger than 12 months. The decision for HMV was made after median 38 ± 37.2 days of mechanical ventilation in hospital. The most common reason of dependency on invasive HMV was found as central nervous system and neuromuscular diseases by 94%. The median duration of follow up was 11 months (4 days-7.5 years). HMV was no longer necessary in 12% of patients ventilated for neurological reasons and 50% for chronic pulmonary diseases. Anthropometric measures were observed to be improved in 69% of the patients. Mortality rate attributed to complications of tracheostomy was 15% and overall mortality was found as 46.7%. Conclusions:HMV enables ventilator dependent patients to be discharged and allows patients to develop and grow in their natural environment which helps them to catch up their growth potentials. The survival and quality of life (QoL) of these patients can be improved by family education and with the support by nutrition and care rehabilitation programs.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Clinical Evaluation of Invasive Home Mechanical Ventilation Dependent Pediatric Patients

et al. 2017

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“…The number of children receiving long-term ventilation in the UK has increased over the past 20 years. This can be ascribed to a number of factors including technological advances in diagnosis, suitable medical equipment for use at home, and improved outcomes from critical illnesses [6,8].…”

Section: Introductionmentioning

confidence: 99%

Increasing prevalence of domiciliary ventilation: changes in service demand and provision in the South West of the UK

et al. 2011

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We examine the incidence and prevalence of domiciliary ventilation in the South West region of the UK, assess trends over 15 years, and describe patient outcome. We conducted a retrospective review of all patients below 18 years receiving domiciliary ventilation in the South West region of the UK between January 1994 and August 2009. Children who received long-term ventilation solely in hospital were excluded from the study. Information was obtained from a locally held database, medical notes, and hospital administration systems. One hundred-six patients were identified. Prevalence has increased since 1994 from 0.2 to 6.7 per 100,000 children. The incidence of both invasive and non-invasive ventilations has increased with a trend towards more non-invasive therapy. The commonest underlying disorders were airway pathology (37 patients), neuromuscular disease (34 patients), and central congenital hypoventilation disorder (17 patients). Sixty-seven patients had significant co-morbidities. Of 38 non-current patients, 19 were transferred to adult ventilation services, 11 died, and 6 were successfully weaned from ventilatory support. In conclusion, there has been a 30-fold increase in the prevalence of paediatric domiciliary ventilation, in the South West region of the UK, since 1994. Co-morbidities are common. Very few children discontinue long-term ventilation, and increasing numbers of ventilated children are transferred to adult services.

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Parental experience of services when their child requires long‐term ventilation. Implications for commissioning and providing services

Margolan¹,

Fraser

Lenton³

2004

Child

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There were significant delays in discharge from hospital largely caused by an inability to organize and fund provision in community settings. A wide variation in provision, not related to needs, was observed between families. Effective early discharge from hospital was more likely to be achieved where community children's nursing teams were already in existence. Adequate respite care was rarely available for these families.

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Organizing ventilation at home

Cited by 3 publications

References 3 publications

Clinical Evaluation of Invasive Home Mechanical Ventilation Dependent Pediatric Patients

Clinical Evaluation of Invasive Home Mechanical Ventilation Dependent Pediatric Patients

Increasing prevalence of domiciliary ventilation: changes in service demand and provision in the South West of the UK

Parental experience of services when their child requires long‐term ventilation. Implications for commissioning and providing services

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