Oral histories of HIV/AIDS support group members, NGO workers and home-based carers in KwaZulu-Natal

Denis, Philippe

doi:10.2989/16085906.2015.1135297

Cited by 3 publications

(3 citation statements)

References 23 publications

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“…Many religions, including Christian faiths, focus on sexual morality and ethics when examining HIV and AIDS (Manda, 2011). More specifically, religious communities often view HIV and AIDS as a punishment from god (Denis, 2011; Manda, 2011) and believe that the primary way to deal with HIV is to return to the moral teachings of one’s religion (Manda, 2011). In the days following her HIV-positive diagnosis, Rita often questioned her own morality in an attempt to understand her HIV-positive diagnosis.…”

Section: Discussionmentioning

confidence: 99%

Sub-Saharan African immigrants living with HIV in Canada: a narrative inquiry

Cruz¹,

Caine²,

Mill³

2016

IJMHSC

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Purpose Canadian epidemiological data suggest an increasing number of HIV infections among people from HIV-endemic countries, including sub-Saharan Africa. Currently, there are few studies that focus on the lived experience of HIV illness among Canadian residents of African ancestry. The purpose of this paper is to study the lived experiences of African immigrants living with HIV in Canada, using narrative inquiry methodology. Design/methodology/approach This qualitative study focussed on the experiences of sub-Saharan African immigrants living with HIV in Alberta, Canada. Using the philosophical underpinnings of narrative inquiry methodology (Clandinin, 2013), three African immigrants living with HIV in Alberta contributed to this study over an extended period of time. Between five and six interviews were conducted with each participant, over a period of 12 months. Interviews were digitally recorded, transcribed, and negotiated with each participant during analysis to uncover the experience and meaning of living with HIV as African immigrants in Canada. Findings The researchers found several narrative threads related to: stigma, social, and family exclusion; as well as HIV illness as a complex personal, familial, and social experience. Also, narratives across different geographic and social spaces shaped the complex experience among African immigrants living with HIV in their new host country of Canada. Research limitations/implications The authors recognize that the sample size, though appropriate for narrative inquiry study, was small. The intention with this research was not to generalize findings to the broader African immigrant community that is affected by HIV illness in Canada. Rather, the intent was to demonstrate a deeper understanding of lived experience, among African immigrants living with HIV in Canada. Social implications The findings show the complex personal, familial, and societal factors that shape the experience of living with HIV and HIV-related stigma among African immigrants. It is important to understand such factors and the experience of HIV-related stigma because such experiences impact access to health and social services, as well as health and social outcomes of immigrants living with HIV. Originality/value This is the first Canadian study to examine lived experience of African immigrants living with HIV in Canada. This study demonstrates a deep understanding of lived experience, among African immigrants living with HIV in Canada. Complex personal, familial, and societal factors shape the experience of living with HIV and HIV-related stigma. Based on the findings of this study, further research is needed to: study more closely the familial contexts of African families affected by HIV in Canada; explore the social and political landscapes that impact the experience of HIV illness and related stigma in Canada, in the context of migration and settlement; and examine the relationship between these experiences and the health and social outcomes of African immigrants living with HIV in Canada.

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Section: Discussionmentioning

confidence: 99%

Sub-Saharan African immigrants living with HIV in Canada: a narrative inquiry

Cruz¹,

Caine²,

Mill³

2016

IJMHSC

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“…Several scholars (Denis, 2005;Denis & Ntsimane, 2008;Bhebhe, 2015;Nkala & David, 2015;Denis, 2016;Ngulube, 2016;Garaba, 2016) have conducted studies concerning oral history in the southern African context. However, very little has been written about preserving and accessing oral history, especially identifying digital preservation strategies in the African context.…”

Section: Introductionmentioning

confidence: 99%

Archiving the voices of the once voiceless: strategies for digital preservation of oral history at the KwaZulu-Natal Provincial Archives

Tembe

Nsibirwa

2023

Esarbica J

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With the urge for instant access to records resulting from the rapid development of technology, there is a need for the digital preservation of vulnerable oral history records. Oral history records are primary sources that confirm certain aspects of historical events and preserving oral history records is crucial to ensure societal memory. In the South African context, oral history has given a voice to the people who were voiceless in the past due to colonialism and the apartheid system. This study investigated possible digital strategies and techniques for preserving oral history records at the KwaZulu-Natal Archives and Records Service (KZNARS) Oral History Unit (OHU). A qualitative approach was used, and data were collected using semi-structured interviews from purposely selected members of the OHU staff. In addition, an observation guide was used to collect data regarding the current playback equipment, storage conditions and the state of the oral history records. Content and thematic analysis was used to analyse data. The findings revealed that the strategies and techniques used for the preservation and access to oral history records have been ineffective. Issues identified included legislation that does not provide for the preservation of oral history records in the contemporary digital era, the lack of policy, deficient strategies for preservation and access, and a shortage of resources, funding, and qualified staff. Various recommendations, stemming from the issues identified, are made.

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“…According to Refs. 18 and 19, there are different sources of support for caregivers: non‐governmental organizations (NGOs) 20,21 and immediate family 22,23 among others.…”

Section: Introductionmentioning

confidence: 99%

How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana

et al. 2023

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BackgroundCaring for children living with human immunodeficiency virus and acquired immunodeficiency syndrome (HIV/AIDS) is challenging and has a tremendous impact on the physical and psychological health of caregivers. Caregivers of children with HIV/AIDS need to adopt coping mechanisms to navigate these complexities as it influences the quality of care provided. The literature on coping strategies and support (formal and informal) available to caregivers of children living with HIV/AIDS is scant. This study aimed to explore the coping strategies and support systems for caregivers of children living with HIV/AIDS.MethodsA phenomenological study design was adopted. A total of nine participants across three hospitals in the Tamale metropolis were interviewed using purposive sampling. The interviews were audio recorded, transcribed verbatim and analysed using Colaizzi's approach.ResultsFour main themes emerged from the analyses: (1) coping strategies, (2) types of support activities, (3) support from informal institutions and (4) support from formal institutions. The caregivers navigated the caring process with much spiritual coping. The caregivers had little or no support from informal institutions such as immediate family, faith and community leaders. Non‐governmental organizations were not visible in support, and there were no support groups for caregivers.ConclusionSupport for caregivers and the active involvement of the immediate family in paediatric HIV care is imperative.

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Oral histories of HIV/AIDS support group members, NGO workers and home-based carers in KwaZulu-Natal

Cited by 3 publications

References 23 publications

Sub-Saharan African immigrants living with HIV in Canada: a narrative inquiry

Sub-Saharan African immigrants living with HIV in Canada: a narrative inquiry

Archiving the voices of the once voiceless: strategies for digital preservation of oral history at the KwaZulu-Natal Provincial Archives

How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana

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