Oral health-related quality of life, and satisfaction with treatment and treatment outcomes of adolescents/young adults with cleft lip/palate: an exploration

Munz, Stephanie M.; Edwards, Sean P.; Inglehart, Marita R.

doi:10.1016/j.ijom.2011.03.002

Cited by 45 publications

(43 citation statements)

References 20 publications

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“…Several studies have used the CEP [5,6,7,8,9,10] and overall comparisons indicate very similar results, and are also in line with the more recent Cleft Care UK study [19]. Most parents in the present study (88.7%) had scores indicating they were satisfied with treatment and their child's appearance, compared to 75% in Noor and Musa's study [8].…”

Section: Parents' Satisfaction With Cleft-related Features and Appearsupporting

confidence: 87%

“…A range of studies have explored this issue as assessed by professionals, lay-persons, patients and parents [5,6,7,8,9,10,11]. Studies comparing parent, patients, and professionals' satisfaction with cleft-related features report contradictory findings (for a review, see [10,12]), which may partly be explained by different methodological approaches, in addition to a significant diversity in the choice of concepts and outcome measures [13].…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

Feragen

Semb

Heliövaara

et al. 2017

Journal of Plastic Surgery and Hand Surgery

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Results:The results indicated that the majority of parents were satisfied with cleft-related features of their child's appearance. Further, most children coped well with treatment according to their parents. Nevertheless, 17.5% of the children showed minor or short-term reactions after treatment experiences, and 2% had major or lasting difficulties. There were no significant relationships between parent perceptions of treatment-related problems and the occurrence of post-surgical medical complications. Conclusions:Most parents reported satisfaction with their child's appearance. However, treatment-related problems were described in some children, urging cleft centres to be aware of potential negative emotional and behavioural reactions to treatment in some young children, with a view to preventing the development of more severe treatment-related anxiety.

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Section: Parents' Satisfaction With Cleft-related Features and Appearsupporting

confidence: 87%

Section: Introductionmentioning

confidence: 99%

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

Feragen

Semb

Heliövaara

et al. 2017

Journal of Plastic Surgery and Hand Surgery

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“…Individuals with NSOC commonly have facial disfigurement due to craniofacial diseases and conditions, treatment of which can have significant consequences for these patients' lives [4].…”

Section: Introductionmentioning

confidence: 99%

“…Moreover, patients may experience anxiety, depression [4], low self-esteem, dissatisfaction with their appearance [5], difficulties in pronouncing some phonemes [4], reduced cognitive function, limited academic achievement, and parental stress [6,7]. The Rosenberg Self-Esteem Scale (RSES) is one of the self-esteem measures most widely used in research.…”

Section: Introductionmentioning

confidence: 99%

Impact of Cleft Lip and Palate on Oral Health-Related Quality of Life (OHRQOL) in Brazilian Patients

Rivaldo¹,

Russomano²,

Vargas‐Ferreira³

et al. 2017

Pesqui. bras. odontopediatria clín. integr.

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Objective: To evaluate self-esteem, satisfaction with facial aesthetics and the impact of oral health on the quality of life of patients with cleft lip and palate aged from 12 years treated at the Hospital for Rehabilitation of Craniofacial Anomalies (HRAC), Brazil. Material and Methods: A cross-sectional study was conducted with patients (n=94) with cleft lip and palate, aged 12 years and older, treated at the Hospital for Rehabilitation of Craniofacial Anomalies, University of São Paulo, Brazil. The instruments used in this study were: Rosenberg's Self-Esteem Scale, the Oral Health Impact Profile-14 (OHIP), and a visual analogue scale of self-perceived facial aesthetics were applied, and socioeconomic and contextual data were collected from all patients. The statistical analysis included Poisson regression with robust variance (RR -rate ratio) and it was performed to evaluate the association between predictors and the outcome oral health related-quality of life. Results: Worse OHRQoL was reported by female patients (RR 1.21; 95%CI: 1.09-1.35) and older individuals (RR 1.25; 95%CI:1.13-1.39). Conclusion: The presence of cleft lip and palate has a negative impact on OHRQoL. Females and older individuals reported worse qualify of life.

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“…Experienced members of the cleft palate team including maxillofacial surgeon, oral surgeon, orthodontist, speech therapist and psychiatrist from University Hospital Dubrava, Zagreb, Croatia studied many generic questionnaires that examine the quality of life such as: Child Perceptions Questionnaire for 11-to 14-year-old children (CPQ11-14) (Locker et al 2005), Michigan Oral Health-Related Quality of Life (MOHRQoL) (Munz et al 2011), Youth Quality of Life Instrument-Facial Differences module (Edwards et al 2005) etc. First, a literature review was made through PubMed and MEDLINE for the keywords: "quality of life and clefts","quality of life adolescents", "quality of life questionnaires cleft" etc.…”

Section: Methodsmentioning

confidence: 99%

Development of a Valid and Reliable Instrument for the Assessment of Quality of Life in Adolescents With Clefts - Detection of Potential Mental Health Issues

et al. 2017

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Oral health-related quality of life, and satisfaction with treatment and treatment outcomes of adolescents/young adults with cleft lip/palate: an exploration

Cited by 45 publications

References 20 publications

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

Impact of Cleft Lip and Palate on Oral Health-Related Quality of Life (OHRQOL) in Brazilian Patients

Development of a Valid and Reliable Instrument for the Assessment of Quality of Life in Adolescents With Clefts - Detection of Potential Mental Health Issues

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