Optimizing Participation of Older Adults with Cognitive Deficits Post-stroke: Types of Help and Caregiver Burden

Viscogliosi, Chantal; Desrosiers, Johanne; Belleville, Sylvie

doi:10.1017/s0714980818000521

Cited by 9 publications

(7 citation statements)

References 32 publications

(40 reference statements)

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“…Furthermore, a key factor for successful methods optimizing learning implementation is the caregivers' involvement in the intervention. Use of approaches and methods that promote engagement in activities (teaching, task modi cation, cognitive and psychological support, supervision, and stimulation) by caregivers who value promoting self-esteem and maintaining capabilities (Viscogliosi et al,2019), in the context of cognitive de cits present following a stroke, are not linked to their perception of a negative impact on their social life.…”

Section: Trial Registrationmentioning

confidence: 99%

Accompany Caregivers to Optimize Learning With People Living With a Major Neurocognitive Disorder: a Qualitative Study

Viscogliosi

Dame

Roy

et al. 2023

Preprint

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Background For caregivers of people living with major neurocognitive disorders (MNCD), adapting methods optimizing learning to a specific situation can be challenging. These methods based on preserved cognitive skills such as procedural memory and implicit recuperation process include errorless learning, spaced retrieval, motor encoding and vanishing cues. This study aimed 1) to obtain a better understanding of factors influencing caregivers’ use of methods optimizing learning, 2) codevelop workshops, a decision tool and accompanying material to support the method’s application based on caregivers needs 3) evaluate the perceived effects of workshops on the application of these methods. Methods The first version of the workshops consisted of five - 2 hours meetings. A qualitative methodology with semi-structured individual interviews was adopted. In addition, individual written and collective verbal feedback were collected after each of the group workshop meetings to continuously improve the workshops. A total of 11 caregivers and three healthcare workers gave feedback after each workshop and were interviewed after the last workshop. All the interviews were recorded and transcribed verbatim for the analysis. Thematic content analysis was conducted. Results The results showed many facilitators (e.g., ability of the teacher to adapt methods to specific real situations, help to identify person’s capabilities) and barriers (e.g., fluctuation of MNCD symptoms, caregivers' precarious health status) for caregivers’ understanding and utilization of the methods. A decision tool for the utilization of methods optimizing learning was developed and adjusted based on feedback from the participants. Also, positive effects of the workshops were found on caregivers’ everyday life, their preparedness and their relationship with the person living with MNCD. Conclusion This study provided a comprehensive understanding of factors influencing caregivers’ understanding and utilization of methods optimizing learning. According to our findings, providing workshops and co-constructed tools to caregivers generate perceived benefits and support their utilization of methods optimizing learning to help them maintain the autonomy of their loved one living with MNCD. Trial registration This study was approved (MP-31-2-19-3211) by the Research Ethics Committee of the Centre intégré universitaire de santé et des services sociaux (CIUSSS) de l’Estrie – Centre hospitalier universitaire de Sherbrooke (CHUS).

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Section: Trial Registrationmentioning

confidence: 99%

Accompany Caregivers to Optimize Learning With People Living With a Major Neurocognitive Disorder: a Qualitative Study

Viscogliosi

Dame

Roy

et al. 2023

Preprint

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“…For example, survivors’ cognitive status can predict caregiver burden in most developed countries, such as Canada. [ 17 ] However, survivors’ cognitive status has not been found to affect caregiver burden in certain developing countries, such as Brazil. [ 8 ] Similarly, there is no consensus in the literature on whether survivors’ age, gender, physical function, mental health, and their relationship with caregivers are correlated with increased caregiver burden.…”

Section: Introductionmentioning

confidence: 99%

A survey of caregiver burden for stroke survivors in non-teaching hospitals in Western China

Cao

Tang²,

Xia

et al. 2022

Medicine

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The social factors that moderate stroke caregiver burden have been found to be culture- and gender-specific. We examined the factors that influence the social support and self-efficacy of caregivers of stroke survivors and the burden of caregiving in China. To determine the caregiver burden of stroke survivors, their social support, and their self-efficacy. A total of 328 stroke survivors and their caregivers were recruited from 4 tertiary medical centers to participate in this cross-sectional study. The sociodemographic and stroke-related characteristics of the participants were obtained. Perceived social support and self-efficacy were assessed using the Social Support Rating Scale and General Self-efficacy Scale, respectively. Caregiver burden was assessed using the Zarit Burden Interview Scale. Relationships between the variables were assessed using Pearson’s correlation, the chi-square test, and a paired t test. A total of 27.4% of the caregivers reported receiving adequate social support, while 20.7% reported high levels of self-efficacy. A total of 67.1% of the caregivers experienced varying degrees of care burden, while the remaining 32.9% felt no burden. Participants’ sociodemographic characteristics (age, daily care time, self-rated health, and financial situation) were significantly related to caregiver burden, social support, and self-efficacy (P < .001). The findings indicate an inverse relationship between caregiver burden, social support and self-efficacy. Adequate social support and self-efficacy can reduce stroke caregivers’ burden. Hospital departments should provide assistance to stroke caregivers through educational programs and group training to increase their social support and self-efficacy, thereby alleviating their burden.

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“…Leisure activities may also become affected due to a reduced ability to initiate or plan activities. These problems in everyday life can indicate a need for support from others such as, family members [5]; this reduces a person's independence as well as having an impact on their perceived health-related quality of life [6].…”

Section: Introductionmentioning

confidence: 99%

An interactive digital calendar with mobile phone reminders (RemindMe) for people with cognitive impairment: A pilot randomized controlled trial

Andreassen

Danielsson

Hemmingsson

et al. 2021

Scandinavian Journal of Occupational Therapy

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Background: People with cognitive impairment often need support to perform everyday-life activities. Interventions are available, but evidence-based interventions are lacking. Aim: This pilot RCT aimed to investigate use of an intervention with an interactive digital calendar with mobile phone reminders (RemindMe) in relation to change in outcomes and impact on occupational performance, independence, health-related quality of life, and psychosocial impact of the support for people with cognitive impairment. Method: The study design was a multi-centre parallel-group pilot RCT [ClinicalTrails.gov, identifier: NCT04470219]. Fifteen participants from primary rehabilitation centres in Sweden were recruited and randomly assigned to intervention group (n ¼ 8) receiving the intervention with RemindMe, or control group (n ¼ 7) receiving usual treatment by an occupational therapist. Data were collected at baseline, after two-and four months, and analysed using descriptive and nonparametric statistics. Result: The Canadian Occupational Performance Measure (COPM), and the Functional Independence Measure (FIM item n-r) showed significant differences. There were no significant differences in health-related quality of life nor in the psychosocial impact of the used support. Conclusion: Plausible changes in outcome measures were found in COPM and FIM (items n-r). These instruments indicate change in outcome measures and impact on occupational performance and independence.

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Optimizing Participation of Older Adults with Cognitive Deficits Post-stroke: Types of Help and Caregiver Burden

Cited by 9 publications

References 32 publications

Accompany Caregivers to Optimize Learning With People Living With a Major Neurocognitive Disorder: a Qualitative Study

Accompany Caregivers to Optimize Learning With People Living With a Major Neurocognitive Disorder: a Qualitative Study

A survey of caregiver burden for stroke survivors in non-teaching hospitals in Western China

An interactive digital calendar with mobile phone reminders (RemindMe) for people with cognitive impairment: A pilot randomized controlled trial

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