Opportunities for Disease State Management in Prostate Cancer

Pickard, A. Simon; Hung, Shih Ying; McKoy, June M.; Witt, Whitney P.; Arseven, Adnan; Sharifi, Roohollah; Wu, Zhigang; Knight, Sara J.; McWilliams, N.; Schumock, Glen T.; Bennett, Charles L.

doi:10.1089/dis.2005.8.235

Cited by 6 publications

(3 citation statements)

References 35 publications

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“…1-4. It encompasses a wide range of highly specific clinical interventions, from treatments addressing diagnosed conditions (such as depression and anxiety) to the provision of routine support. [5][6][7][8][9] Psychosocial support should be provided on a daily basis and address a range of needs, [10][11][12][13] including quality of life, emotional wellbeing, safety, and a sense of hope.…”

Section: Introductionmentioning

confidence: 99%

Observations of professional–patient relationships: A mixed-methods study exploring whether familiarity is a condition for nurses’ provision of psychosocial support

2013

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Background: There is a popular belief that the professional-patient relationship is a prerequisite in the provision of psychosocial support. Studies suggest that professionals must know, or be familiar with, a patient in order to effectively provide psychosocial support. Aim:To examine the association between familiarity and the provision of psychosocial care by professionals.Design: A mixed method study involving participant observation, interviews, organisational, and documentary analysis was conducted over eight months in an inpatient hospice setting.Participants: 38 nurses (registered and auxiliary) and 47 patients were included in a maximum variation sampling strategy. Data was analysed using both qualitative and quantitative techniques. Results:The data disconfirms the belief that familiarity is either a necessary or sufficient condition for the provision of psychosocial support. Nurses familiar with patients did not necessarily respond to patients' psychosocial needs, and nurses with no prior contact with the patient immediately dealt with psychosocial needs.Observations of professional-patient relationships: a mixed methods study exploring whether familiarity is a condition for nurses provision of psychosocial support. Hill et al 2013 2 Conclusion:Psychosocial support can be provided on a patient's first contact with a clinician and does not rely on building a professional-patient relationship. This suggests that high quality psychosocial care can be provided in the short timeframe available to palliative care clinicians.

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Section: Introductionmentioning

confidence: 99%

Observations of professional–patient relationships: A mixed-methods study exploring whether familiarity is a condition for nurses’ provision of psychosocial support

2013

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“…1 Family caregivers, particularly spouses, often have a major role with the patient and physician in shared decision making related to the management of localized prostate cancer. Management choices for localized prostate cancer include radical prostatectomy, watchful waiting, radiotherapy, and hormonal therapy, 2,3 and impact on health-related quality of life (HRQL) can be a determining factor in choosing between treatment options. 4,5 Not only do treatment alternatives for prostate cancer vary in their impact on the patient’s HRQL, 6–18 but these choices can also affect the caregiver’s quality of life.…”

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confidence: 99%

Proxy Assessment of Health-Related Quality of Life in African American and White Respondents With Prostate Cancer

Pickard¹,

Lin²,

Knight³

et al. 2009

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Objectives An emerging issue in the proxy literature is whether specifying different proxy viewpoints contributes to different health-related quality of life (HRQL) assessments, and if so, how might each perspective be informative in medical decision making. The aims of this study were to determine if informal caregiver assessments of patients with prostate cancer differed when prompted from both the patient perspective (proxy-patient) and their own viewpoint (proxy-proxy), and to identify factors associated with differences in proxy perspectives (ie, the intraproxy gap). Research Design and Methods Using a cross-sectional design, prostate cancer patients and their informal caregivers were recruited from urology clinics in the Jesse Brown Veterans Affairs Healthcare System in Chicago. Dyads assessed HRQL using the EQ-5D visual analog scale (VAS) and EORTC QLQ-C30. Results Of 87 dyads, most caregivers were female (83%) and were spouses/partners (58%). Mean difference scores between proxy-patient and proxy-proxy perspectives were statistically significant for QLQ-C30 physical and emotional functioning, and VAS (all P < 0.05), with the proxy-patient perspective closer to patient self-report. Emotional functioning had the largest difference, mean 6.0 (SD 12.8), an effect size = 0.47. Factors weakly correlated with the intraproxy gap included relationship (spouse) and proxy gender for role functioning, and health literacy (limited/functional) for physical functioning (all P < 0.05, 0.20 < r < 0.35). Conclusions Meaningful differences between proxy-patient and proxy-proxy perspectives on mental health were consistent with a conceptual framework for understanding proxy perspectives. Prompting different proxy viewpoints on patient health could help clinicians identify patients who may benefit from clinical intervention.

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“… 5 Treatment choices are inevitably influenced by three decision makers: the patient; the physician; and (when present) the patient's family (e.g., spouse/partner or caregiver). 6 In 2003, there were no known published prospective studies that examined the influence of this triad of decision makers on treatment decisions or prospectively explored how knowledge, preferences, and interactions among prostate cancer patients, caregivers, and treating physicians ultimately influence treatment choice, QOL, and treatment satisfaction.…”

Section: Introductionmentioning

confidence: 99%

Evolution of a CDC Public Health Research Agenda for Low-Risk Prostate Cancer

Hall

Smith

2015

American Journal of Preventive Medicine

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Men with prostate cancer face difficult choices when selecting a therapy for localized prostate cancer. Comparative data from controlled studies are lacking and clinical opinions diverge about the benefits and harms of treatment options. Consequently, there is limited guidance for patients regarding the impact of treatment decisions on quality of life. There are opportunities for public health to intervene at several decision-making points. Information on typical quality of life outcomes associated with specific prostate cancer treatments could help patients select treatment options. From 2003 to present, the Division of Cancer Prevention and Control at CDC has supported projects to explore patient information-seeking behavior post-diagnosis, caregiver and provider involvement in treatment decision making, and patient quality of life following prostate cancer treatment. CDC's work also includes research that explores barriers and facilitators to the presentation of active surveillance as a viable treatment option and promotes equal access to information for men and their caregivers. This article provides an overview of the literature and considerations that initiated establishing a prospective public health research agenda around treatment decision making. Insights gathered from CDC-supported studies are poised to enhance understanding of the process of shared decision making and the influence of patient, caregiver, and provider preferences on the selection of treatment choices. These findings provide guidance about attributes that maximize patient experiences in survivorship, including optimal quality of life and patient and caregiver satisfaction with information, treatment decisions, and subsequent care.

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Opportunities for Disease State Management in Prostate Cancer

Cited by 6 publications

References 35 publications

Observations of professional–patient relationships: A mixed-methods study exploring whether familiarity is a condition for nurses’ provision of psychosocial support

Observations of professional–patient relationships: A mixed-methods study exploring whether familiarity is a condition for nurses’ provision of psychosocial support

Proxy Assessment of Health-Related Quality of Life in African American and White Respondents With Prostate Cancer

Evolution of a CDC Public Health Research Agenda for Low-Risk Prostate Cancer

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