Operationalization of Community-Based Participatory Research Principles: Assessment of the National Cancer Institute's Community Network Programs

Braun, Kathryn L.; Nguyen, Tung T.; Tanjasiri, Sora Park; Campbell, Janis; Heiney, Sue P.; Brandt, Heather M.; Smith, Selina A.; Blumenthal, Daniel S.; Hargreaves, Margaret; Coe, Kathryn; Grace, X.; Kenerson, Donna; Patel, Kushal; Tsark, JoAnn U.; Hébert, James R.

doi:10.2105/ajph.2011.300304

Cited by 64 publications

(74 citation statements)

References 24 publications

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“…As background, CBPR has developed from both the action research of anthropology and sociology as well as the social justice traditions, which recognize "the unique strengths and perspectives of community partners…to produce tangible benefits for communities participating in research" (Braun et al 2012(Braun et al , p. 1195Israel et al 2003;Minkler 2010;Wallerstein and Duran 2010). This orientation to research, based on principles of community engagement, co-learning, and equitable power and control of studies and resources (Minkler and Wallerstein 2003), is uniquely suited for research to address disparities in topics related to inclusion of diverse populations in clinical and genetic research.…”

Section: Introductionmentioning

confidence: 99%

Engaging diverse populations about biospecimen donation for cancer research

et al. 2014

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Clinical research increasingly relies upon the availability of appropriate genetic materials; however, the proportion of biospecimens from racial/ethnic minority patients and healthy controls are underrepresented, which preclude equitable research across all patient groups for cancer treatment. National Cancer Institute-funded Community Network Program Centers in California, Florida, and New York collaborated with local community partners to conduct three independent formative research studies with diverse (African American, Asian American, Hispanic, and White) participants to explore their knowledge, attitudes, and beliefs about biobanking, and their experiences with the donation of biospecimens. Our findings demonstrated similarities in overall low knowledge and understanding about the use of biospecimens for research. This was exacerbated for nonEnglish speakers. Racial and ethnic groups differed with regard to a number of factors that are obstacles for participation, e.g., continuing medical mistrust (African Americans), lack of benefit (Hispanics), apprehension about the physical toll of donating (Vietnamese), usage of biospecimen for research (Hmong and Chinese), and suspicion of exploitation by corporate entities (Whites). However, participants uniformly reported general interest and willingness to participate in biobanking for altruistic purposes, particularly to benefit future generations. This interest was framed with a strong admonition that donations should be accompanied by transparency about study sponsorship and ownership, distribution and use of biospecimens, and study information that fit participants' backgrounds and experiences. This cross-cultural regional analysis offers significant insights into the similarities and variations in opinions and perceptions about biobanking and the collection of biospecimens for use in cancer research.

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Section: Introductionmentioning

confidence: 99%

Engaging diverse populations about biospecimen donation for cancer research

et al. 2014

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“…The Detroit CNP was a multi-year effort funded by the National Cancer Institute (NCI; U01CA114583) (e.g., [30]) to build partnerships and collaboration among community-based organizations in Detroit to reduce cancer disparities among older African American adults residing in the metropolitan area. The goals were to develop and implement education, training and pilot research efforts to address the cancer burden disproportionately affecting the population.…”

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confidence: 99%

Modeling the sustainability of community health networks: novel approaches for analyzing collaborative organization partnerships across time

Manning

Bollig‐Fischer

Bobovski

et al. 2013

Behav. Med. Pract. Policy Res.

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Sustainability is important if community health organizations are to be effective in collaborating to achieve long term health goals. We present a multimethod set of longitudinal analyses examining structural markers applied to a group of organizations brought together to reduce cancer disparities among older African American adults. At the overall network level, sustainability was seen in the growth of outgoing connections and multiplexity. Results of hierarchical clustering analyses identified distinct patterns of collaborative activation over time at the relationship level. Growth modeling indicated the effects of continuing network membership and participation in collaborative events on several structural markers of sustainability. Results of these analyses provide longitudinal indicators for how collaborations among partner organizations impacted their likelihood of continuing in the community network program. The strategy presented here introduces novel methods to assist with planning and evaluation of future community based public health endeavors. KEYWORDSCommunity, Networks, Partnerships, Sustainability, Hierarchical cluster analysis, Growth modeling Establishing and mobilizing collaborative partnerships (i.e., networks) among community health organizations that are brought together to achieve mutual goals is essential to broadening the impact of public health initiatives [1][2][3][4]. In practice, however, sustaining such collaborative networks can be challenging, particularly given competing demands and constraints on the time and resources of the members of the various organizations in the network [5][6][7][8]. Given the potential risk of investment loss if collaborative network partnerships dissolve before goals can be achieved, researchers are calling for more in-depth studies of "network sustainability" [9,10]. That is, researchers want to know what is necessary for networks of community organizations to continue working together over time.One problem with conducting such studies has been that conceptual and operational definitions of network sustainability are somewhat inconsistent in the literature. Various conceptual definitions include the continuation of program benefits, institutionalization/ routinization of the network and network programs, building of community capacity, and continuation of network programs following termination of external funding [6,[11][12][13][14][15][16]. Perhaps most useful in considering a theoretical and operationalizable conceptualization of sustainability are Israel et al. 's [6] criteria of what is necessary for sustainable networks-specifically, "(1) sustaining relationships and commitments among the partners involved, (2) sustaining the knowledge, capacity and values generated from the partnership, and (3) sustaining funding, staff, programs, policy changes and the partnership itself". In the case we present here, our conceptualization of sustainability is exemplified by continuing partner relationships in an Implications Practice: Capitalizing on co...

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“…Table 4 shows that 13 CNP networks (#1, 4,6,7,11,12,13,16,18,19,21,23,24) reported that their education and information policy activities, often in conjunction with a broader coalition, resulted in decision-makers either changing policies or affecting a change in the policy agenda. Eight CNPs worked on smoke-free policies (#1, 4,7,11,13,16,18,19), three CNPs worked on allocation of funds for tobacco control programs and research (#6, 19, 23), four CNPs educated policymakers on implementing comprehensive tobacco control (#11, 18,19,21), and one CNP (#24) worked on a city ordinance for storefront advertising.…”

Section: Domain 2: Reducing Tobacco Use and Related Diseasesmentioning

confidence: 99%

“…13 The CNPs selected cancer topics of their choice, which depended on the needs and interests of the specific population represented. An additional objective of the CNP was to train researchers who will continue to reduce disparities in communities; this occurred mainly through the use of pilot project grant awards.…”

Section: Introductionmentioning

confidence: 99%

Working to Eliminate Cancer Health Disparities from Tobacco: A Review of the National Cancer Institute’s Community Networks Program

Tong¹,

Fagan²,

Cooper³

et al. 2015

NICTOB

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Introduction: In 2005, the National Cancer Institute funded the Community Networks Program (CNP), which aimed to reduce cancer health disparities in minority racial/ethnic and underserved groups through community-based participatory research, education, and training. The purpose of this study was to describe the CNP model and their tobacco-related work in community-based research, education, and training using a tobacco disparities research framework. Methods: We conducted a comprehensive review of the CNP tobacco-related activities including publications, published abstracts, research activities, trainee pilot studies, policy-related activities, educational outreach, and reports produced from [2005][2006][2007][2008][2009]. Two authors categorized the tobaccorelated activities and publications within the framework. Results: Although there was no mandate to address tobacco, the CNPs produced 103 tobaccorelated peer-reviewed publications, which reflects the largest proportion (12%) of all CNP cancerrelated publications. Selected publications and research activities were most numerous under the framework areas "Psychosocial Research, " "Surveillance, " "Epidemiology, " and "Treatment of Nicotine Addiction. " Thirteen CNPs participated in tobacco control policymaking in mainstream efforts that affected their local community and populations, and 24 CNPs conducted 1147 tobacco-related educational outreach activities. CNP activities that aimed to build research and infrastructure capacity included nine tobacco-related pilot projects representing 16% of all CNP cancer-related pilot projects, and 17 publications acknowledging leveraged partnerships with other organizations, a strategy encouraged by the CNP.

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Operationalization of Community-Based Participatory Research Principles: Assessment of the National Cancer Institute's Community Network Programs

Cited by 64 publications

References 24 publications

Engaging diverse populations about biospecimen donation for cancer research

Engaging diverse populations about biospecimen donation for cancer research

Modeling the sustainability of community health networks: novel approaches for analyzing collaborative organization partnerships across time

Working to Eliminate Cancer Health Disparities from Tobacco: A Review of the National Cancer Institute’s Community Networks Program

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