Operationalising the capability approach for outcome measurement in mental health research

Simon, Judit; Anand, Paul; Gray, Alastair; Rugkåsa, Jorun; Yeeles, Ksenija; Burns, Tom

doi:10.1016/j.socscimed.2013.09.019

Cited by 170 publications

(199 citation statements)

References 25 publications

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“…Comparisons with other capability measures developed for social care (ASCOT) [64] and mental health (OxCap-MH) [65] or with other measures of HrQoL will contribute toward gaining further understanding of their psychometric properties. Previous evidence has indicated that a shift from HrQoL to capability-wellbeing would prioritise funding for those suffering from depression and other severe illnesses [66].…”

Section: Discussionmentioning

confidence: 99%

Measuring Health and Broader Well-Being Benefits in the Context of Opiate Dependence: The Psychometric Performance of the ICECAP-A and the EQ-5D-5L

et al. 2016

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2 Key points What is already known about the topic? Treatments for substance use disorders aim at improving health and, most importantly, broader wellbeing. Health-related measures of quality of life may not adequately capture the broader wellbeing benefits associated with such complex interventions. Comprehensive evidence on the validity and responsiveness of these measures in this context is lacking. When broader capability-wellbeing benefits are expected, NICE recommends the parallel use of an ICECAP measure but their measurement properties in this context are yet unknown. What does the paper add to existing knowledge? This is the first study exploring the psychometric properties of the EQ-5D-5L and ICECAP-A measures in the context of drug addiction. The results indicate that the ICECAP-A is a promising measure for capturing both health and broader wellbeing benefits in this context. 3 ABSTRACT Background:Measuring outcomes in economic evaluations of social care interventions is

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Section: Discussionmentioning

confidence: 99%

Measuring Health and Broader Well-Being Benefits in the Context of Opiate Dependence: The Psychometric Performance of the ICECAP-A and the EQ-5D-5L

et al. 2016

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“…In the health sector, there is a growing sense that narrow measures of health gain may not be sufficient for evaluating the benefits of social care (Ryan, Netten, Skatun, & Smith, 2006), care for older people (Grewal et al, 2006), and mental health care (Simon et al, 2013). This has led to interest in operationalising Sen's capability approach.…”

Section: Introductionmentioning

confidence: 99%

Do capability and functioning differ? A study of U.K. survey responses

Al‐Janabi

2017

Health Economics

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SummaryA core feature of the capability approach is that a person's capabilities (what they are able to do and be in their life) can differ from their functionings (what they actually do and are in their life). However, the degree to which capability and functioning differ in practice is unclear. This paper investigates this issue, focusing on capability and functioning differences (CFD) across different aspects of life and different individuals. In the study, the ICECAP‐A capability questionnaire was modified to measure both functionings and capabilities and was completed by U.K.‐based convenience sample of 943 people. Around one third of people reported CFD in at least one area of their life, most commonly in terms of their “achievement.” People were more likely to report CFD when they had a degree‐level education and when they had impaired health. An additional finding was that capability varied more with education whereas functioning varied more with health status. This finding needs further examination, but it suggests that the choice of evaluative space may influence how priorities are set for public spending.

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“…matters of reproduction), 663 but such questions could be re-introduced if other researchers regarded them as important. A 664 recent example of adaptation is the refinement of OCAP-18 for use with patients with mental 665 illness (Simon et al 2013). The researchers identified four questions that needed 666 modification given the patient group: discrimination at work, meeting socially with work 667 colleagues, life expectancy, love and support -because they weren't relevant, caused distress 668 or were not easily interpretable.…”

Section: Discussion 643mentioning

confidence: 99%

Operationalising the capability approach as an outcome measure in public health: The development of the OCAP-18

Lorgelly

Lorimer

Fenwick

et al. 2015

Social Science & Medicine

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5There is growing interest in operationalising the capability approach to measure quality of 6 life. This paper reports the results of a research project undertaken in 2007 that sought to 7 reduce and refine a longer survey in order to provide a summary measure of wellbeing and 8 capability in the realm of public health. The reduction and refinement of the questionnaire 9 took place across a number of stages, using both qualitative (five focus group discussions and 10 17 in-depth interviews) and quantitative (secondary data analysis, N=1,048 and primary data 11 collection using postal surveys and interviews, N=45) approaches. The questionnaire was 12 reduced from its original 60+ questions to 24 questions (including demographic questions). 13Each of Nussbaum's ten Central Human Capabilities are measured using one (or more) of the 14 18 specific capability items which are included in the questionnaire (referred to as the OCAP-15 18). Analysis of the questionnaire responses (N=198) found that respondents differed with 16 respect to the levels of capabilities they reported, and that these capabilities appear to be 17 sensitive to one's gender, age, income and deprivation decile. An index of capability, 18 estimated by assuming equal weight for each capability question, found that the average level 19 of capability amongst respondents was 12.44 (range 3-17.75). This index was found to be 20 highly correlated with a measure of health (EQ-5D) and wellbeing (global QoL), although 21 some differences were apparent. This project operationalised the capability approach to 22 produce an instrument to measure the effectiveness (and cost effectiveness) of public health 23 interventions; the resulting OCAP-18 appears to be responsive and measure something 24 supplementary to health and wellbeing, thus offers a promising addition to the current suite of 25 outcome measures that are available. Sen's Capability Approach (Sen 1985;1993) would appear to provide a possible solution to 77 the limitations of QALYs, as it expands the evaluative space (so it can include non-health 78 outcomes like empowerment, participation, housing, and crime) to consider whether a 79 programme/policy/intervention enhances an individual's capability (Lorgelly et al. 2010). 80Previous evaluative approaches focus on subjective-wellbeing (utilitarism) or the availability 81 5 of means for a good life (resourcism). The alternative paradigm of the capability approach 82 instead suggests that the focus of wellbeing should be a set of valuable 'beings and doings' 83 (for example being in good health or having loving relationships), which can be measured by 84 opportunities (capabilities) or outcomes (functionings) (Sen 1992). Sen desires that policies 85 ought to promote the "capabilities of persons to lead the kind of lives they value -and have 86 reason to value ' (Sen 1999, p.18). Of interest in its application to public health is the 87 evaluative space; it diverges from narrow utility space, which is concerned with the pleasure 88 obtained from...

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Operationalising the capability approach for outcome measurement in mental health research

Cited by 170 publications

References 25 publications

Measuring Health and Broader Well-Being Benefits in the Context of Opiate Dependence: The Psychometric Performance of the ICECAP-A and the EQ-5D-5L

Measuring Health and Broader Well-Being Benefits in the Context of Opiate Dependence: The Psychometric Performance of the ICECAP-A and the EQ-5D-5L

Do capability and functioning differ? A study of U.K. survey responses

Operationalising the capability approach as an outcome measure in public health: The development of the OCAP-18

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