Open communication between caregivers’ and terminally ill cancer patients about illness and death: The role of gender - A correlational study

Carmel, Sara; Singer, Yoram; Yosef-Sela, Nili; Bachner, Yaacov G.

doi:10.1016/j.ejon.2020.101828

Cited by 12 publications

(16 citation statements)

References 37 publications

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“…In the literature, it has been emphasized that developing a personal relationship with a patient with a terminal illness risks being emotionally depressed, which can result in unresolved grief and reduce the nurse's ability to work later 20 . Therefore, avoidance attitude negatively affects both the patient and the nurse 21–23 . Open communication with terminally ill patients about illness and death is an important aspect of caregiving, but significant emotional barriers stemming from personal characteristics, cultural values, and existential needs lead to avoidance attitudes in communication 3,24 …”

Section: Discussionmentioning

confidence: 99%

The effect of death anxiety in nurses on their approach to dying patients: A cross‐sectional study

Üstükuş

Eskimez

2021

Perspect Psychiatr Care

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Purpose This study was conducted to determine death anxiety levels in nurses and to examine its effect on their approach to dying patients. Design and methods The study was conducted with 240 nurses. Study data were collected by Personal Information Form, Thorson–Powell Death Anxiety Scale, and Approach to Death and Dying Patients Attitude Scale. Findings According to the total scores of the nurses included in the study, it was determined that they experienced mild death anxiety and exhibited a moderate attitude of avoidance towards death and dying patients. Conclusion This study showed that as the death anxiety of nurses increased, their avoidance attitudes towards dying patients decreased.

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Section: Discussionmentioning

confidence: 99%

The effect of death anxiety in nurses on their approach to dying patients: A cross‐sectional study

Üstükuş

Eskimez

2021

Perspect Psychiatr Care

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“…A body of literature [ 70 , 83 , 84 , 98 , 100 – 107 ] consider four main topics about this subject: (1) communication improvements [ 16 , 43 , 89 , 100 , 108 , 109 ], (2) supportive care guidance [ 16 , 43 , 84 , 100 , 102 , 108 ], (3) caregivers support and families’ unmet needs identification [ 12 , 16 , 17 , 84 , 89 , 100 , 102 – 106 , 109 ], and (4) caregiver burden [ 12 , 16 , 17 , 83 , 85 , 89 , 98 , 100 , 102 , 104 , 107 , 108 ]. The latter had the largest expression in our study (76.2%).…”

Section: Discussionmentioning

confidence: 99%

Patient reported outcomes in oncology: changing perspectives—a systematic review

Silveira

Sequeira

Gonçalves

et al. 2022

Health Qual Life Outcomes

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In public health context, oncology is associated with severe negative impact on patients and on their relatives’ quality of life. Over the last decades, survival has remained at 50% worldwide for some tumor locations. Patient reported outcomes (PROs) assessment and, the corresponding use in clinical practice, help establishing patient individualized profiling involving caregivers. The purpose of this systematic review was to examine critical success factors for PROs assessment in daily clinical oncology practice. Additionally, we investigated how PROs collection can change oncology perspectives for patients and caregivers. According to PRISMA guidelines, 83 studies were included in this systematic review, whether related with implementation in daily clinical practice or associated with its use in oncology. PROs assessment gathers multi-professional teams, biomedical and clinical expertise, patients, families and caregivers. Institutional involvement, first line for caregiver’s adherence, team continuous formation, encompassing training and support, design of clear workflows, continuous monitoring, and data analysis are crucial for implementation. PROs measures are decisive in oncology. Several items were improved, including caregiver–patient–physician communication, patient risk groups identification, unmet problems and needs detection, disease course and treatment tracking, prognostic markers, cost-effectiveness measurement and comfort/support provision for both patients and caregivers. Routine assessment and implementation of PROs in clinical practice are a major challenge and a paradigm transformation for future.

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“…That may be explained by female patients showing higher levels of open communication about illness and death. 66 The finding uncovered clinicians might encounter gender disparities noted in diagnostic and therapeutic responses, 67 indicating the importance to identify preferences about life-sustaining care to provide gender-specific care.…”

Section: Discussionmentioning

confidence: 99%

Symptomatic Features and Factors Associated With Do-Not-Resuscitate Consent in Advanced Cancer Patients Admitted to Palliative Care Ward

Fan

Yang

et al. 2022

Am J Hosp Palliat Care

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This study aimed to conduct a retrospective cross-sectional study to investigate the prevalence of symptoms and symptom clusters on sociodemographic and disease characteristics, as well as factors associated with Do-Not-Resuscitate (DNR) consent. Advanced cancer patients were enrolled between 2018 and 2020 with available data. Demographic and clinical data were obtained for analysis from Hospital Information System (HIS) in China. Symptom clusters were extracted by hierarchical cluster analysis. Chi-square test and multiple logistic regression were conducted to investigate the prevalence characteristics of symptoms and influencing factors of DNR consent, respectively. 798 advanced cancer patients were enrolled. The most prevalent symptoms were pain (93%), anorexia (36.5%), and sleep disorders (34.2%). High heart rate was associated with poor performance status and more symptoms. Three clusters were extracted: fatigue-related, respiratory-circulatory system, and digestive system symptom clusters. The incidence of symptoms was statistically significant in age, gender, education level, residence, BMI, performance status, distress score, ADL, and primary pain level. The DNR signature rate was 15.5%. Female, distant metastasis, in-ward rescue, and appearance of dyspnea were independent influencing factors of DNR signature. Chinese hospitalized cancer patients had more symptoms burden that were influenced by various demographic characteristics, especially pain and fatigue-related symptoms. Concerning the trajectory of vital signs is important among advanced cancer patients. The DNR signature rate was lower and our finding indicating an urgency to accurately assess the prognosis and give more palliative care education to enhance DNR rates and early signing in Chinese context.

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Open communication between caregivers’ and terminally ill cancer patients about illness and death: The role of gender - A correlational study

Cited by 12 publications

References 37 publications

The effect of death anxiety in nurses on their approach to dying patients: A cross‐sectional study

The effect of death anxiety in nurses on their approach to dying patients: A cross‐sectional study

Patient reported outcomes in oncology: changing perspectives—a systematic review

Symptomatic Features and Factors Associated With Do-Not-Resuscitate Consent in Advanced Cancer Patients Admitted to Palliative Care Ward

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