Online Transgender Health Information Seeking: Facilitators, Barriers, and Future Directions

Augustaitis, Laima; Merrill, Leland; Gamarel, Kristi E.; Haimson, Oliver L.

doi:10.1145/3411764.3445091

Cited by 47 publications

(26 citation statements)

References 70 publications

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“…This diverse repository of solution framing can be valuable. Prior studies found people turn to YouTube to seek and learn health knowledge [1,13]. Experts and professional counselors shared their experiences and solutions on YouTube to advise addicts' behavior change.…”

Section: Youtube As a Place For Addiction Educationmentioning

confidence: 99%

“…There is an urgent need for solutions and resources to combat the increase in addictions and overdoses. After the U.S. Department of Health and Human Services declared a nationwide emergency in 2017, 70,630 people died from a drug overdose, and 10.1 million people misused prescription opioids in 2019 1 . Many researchers have paid attention to social media such as Twitter and Facebook as new venues to study drug addiction issues and spread resources and solutions [4][5][6]8].…”

Section: Introductionmentioning

confidence: 99%

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Investigating Drug Addiction Discourse on YouTube

McKim

Mai

Hess

et al. 2021

Companion Publication of the 2021 Conference on Computer Supported Cooperative Work and Social Computing

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Drug addiction has become one of the most severe social problems in the United States. Recent research has turned attention to the possibility of using social media to detect opioid usages and offer interventions. However, most prior studies focus on textual and networking-based social media such as Twitter and Facebook. There is limited understanding of how video-based platforms, such as YouTube, allow creators to share drug addiction-related videos and discourse addiction problems. This work is an initial step to fill this knowledge gap by analyzing 166 YouTube videos. We found that YouTubers leverage videos to disclose personal addiction experiences, provide professional recommendations, and express addiction-related opinions and lifestyles. Therefore YouTube videos discuss more of the risks, blames, and solutions of drug addiction. *Trigger warning: this paper contains substance abuse, addiction, and mental illness.

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Section: Youtube As a Place For Addiction Educationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Investigating Drug Addiction Discourse on YouTube

McKim

Mai

Hess

et al. 2021

Companion Publication of the 2021 Conference on Computer Supported Cooperative Work and Social Computing

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“…Owing to stigma and discrimination when seeking health care, TGD community members often turn to health and medical information on the web [ 20 , 21 ]. Documented examples of insensitive health care include gender insensitivity in which individuals were misgendered (using “he” when a “they” pronoun was requested) or forced care where some patients felt they were forced to do unnecessary examinations or dismissed as “psych cases” [ 22 ].…”

Section: Introductionmentioning

confidence: 99%

Co-design of the Transgender Health Information Resource: Web-Based Participatory Design

Morse¹,

Soares²,

Ytell³

et al. 2023

J Particip Med

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Background There is an urgent and unmet need for accessible and credible health information within the transgender and gender-diverse (TGD) community. Currently, TGD individuals often seek and must find relevant resources by vetting social media posts. A resource that provides accessible and credible health-related resources and content via a mobile phone app may have a positive impact on and support the TGD population. Objective COVID-19 stay-at-home orders forced a shift in the methods used in participatory design. In this paper, we aimed to describe the web-based participatory methods used to develop the Transgender Health Information Resource. We also described and characterized the web-based engagement that occurred during a single session of the overall design process. Methods We planned and conducted web-based design sessions to replace the proposed in-person sessions. We used web-based collaborative tools, including Zoom (Zoom Video Communications), Mural (Mural), REDCap (Research Electronic Data Capture; Vanderbilt University), and Justinmind (Justinmind), to engage the participants in the design process. Zoom was used as an integrated platform for design activities. Mural was used to perform exercises, such as free listing, brainstorming, and grouping. REDCap allowed us to collect survey responses. Justinmind was used to create prototypes that were shared and discussed via Zoom. Recruitment was led by one of our community partners, One Colorado, who used private Facebook groups in which web-based flyers were dispersed. The design process took place in several workshops over a period of 10 months. We described and characterized engagement during a single design session by tracking the number of influential interactions among participants. We defined an influential interaction as communication, either verbal or web-based content manipulation, that advanced the design process. Results We presented data from a single design session that lasted 1 hour and 48 minutes and included 4 participants. During the session, there were 301 influential interactions, consisting of 79 verbal comments and 222 web-based content manipulations. Conclusions Web-based participatory design can elicit input and decisions from participants to develop a health information resource, such as a mobile app user interface. Overall, participants were highly engaged. This approach maintained the benefits and fidelity of traditional in-person design sessions, mitigated deficits, and exploited the previously unconsidered benefits of web-based methods, such as enhancing the ability to participate for those who live far from academic institutions. The web-based approach to participatory design was an efficient and feasible methodological design approach.

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“…4 At the same time, trans people are also often innovators and active adopters of new technologies for peer support and information exchange, especially digital and networked technologies (Haimson et al, 2021; Whittle, 1998). Online, trans people find, create and circulate health- and voice-related information in various ways, from sharing text-based documents that describe vocal exercises to fostering more interactive communities where trans people have real-time discussions, exchange audio recordings and host live training sessions (see: Ahmed, 2018; Augustaitis et al, 2021; Kowalchuk, 2020).…”

Section: Introductionmentioning

confidence: 99%

‘This app can help you change your voice’: Authenticity and authority in mobile applications for transgender voice training

Ahmed

Levin

Hoffmann

2022

Convergence: The International Journal of Research into New Med

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Mobile applications for transgender voice training seek to help trans people alter their speaking voices, often with the goal of alignment with one or another pole of binary gender expression (i.e., voice ‘feminization’ or ‘masculinization’). These apps offer instruction, audio tools and feedback mechanisms that allow users to record, evaluate and track their progress relative to a desired – and gendered – goal. As with digital technologies generally, however, these apps draw on and reproduce particular ideas of both the needs and capacities of imagined users and broader social and political phenomena – in this case, voice, gender expression and gender transition. In the following paper, we undertake a critical discourse analysis of five mobile voice training apps for transgender people. We find that rather than offering expansive or open-ended conceptions of gender, these apps reproduce ideals of gender as not only binary but also white, affluent and able-bodied. We also offer a critique of the apps’ characterization of transition as reifying the normative authority of clinical and technoscientific knowledge and conditioning ‘authenticity’ on an ability to conform to (racialized, classed and ableist) binary gender norms.

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Online Transgender Health Information Seeking: Facilitators, Barriers, and Future Directions

Cited by 47 publications

References 70 publications

Investigating Drug Addiction Discourse on YouTube

Investigating Drug Addiction Discourse on YouTube

Co-design of the Transgender Health Information Resource: Web-Based Participatory Design

‘This app can help you change your voice’: Authenticity and authority in mobile applications for transgender voice training

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