Online support for family caregivers of people with dementia: a systematic review and meta-analysis of RCTs and quasi-experimental studies

Etxeberría, Igone; Salaberría, Karmele; Gorostiaga, Arantxa

doi:10.1080/13607863.2020.1758900

Cited by 58 publications

(61 citation statements)

References 56 publications

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“…Despite limitations, the current study provides findings from a large sample of students attending colleges across the U.S. and shows that different stressful aspects of the pandemic are related to certain types of substance use, though the strength and significance of the associations varied. Efforts to address substance use during and after the pandemic may target these specific stressors, such as initiating anti-racism campaigns on campuses ( Ben et al, 2020 ), providing financial relief for students (see ideas on short-term and long-term measures to address food insecurity ( Nazmi et al, 2019 ), organizing online support systems for informal caregivers (see interventions for caregivers for dementia ( Etxeberria et al, 2020 ), and providing online/mobile Cognitive Behavioral Therapy and Mindfulness-based interventions to reduce COVID-19 concern ( Heber et al, 2017 ; Howell & Passmore, 2019 ; Spijkerman et al, 2016 ). Future research can evaluate whether these efforts to alleviate pandemic-related stressors can curb substance use.…”

Section: Discussionmentioning

confidence: 99%

Stressors experienced during the COVID-19 pandemic and substance use among US college students

Oh¹,

Leventhal²,

Tam³

et al. 2021

Drug and Alcohol Dependence Reports

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Section: Discussionmentioning

confidence: 99%

Stressors experienced during the COVID-19 pandemic and substance use among US college students

Oh¹,

Leventhal²,

Tam³

et al. 2021

Drug and Alcohol Dependence Reports

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“…In line with the third goal of the UN's Agenda 2030 for Sustainable Development "Ensure healthy lives and promote wellbeing for all at all ages" [28], we need to develop strategies to adapt and strengthen social and healthcare for the vulnerable elderly population such as people with dementia (PwD) and their ICs. These reasons, now more than ever, justify the use of Online Support Interventions for Family Caregivers of PwD [29]. For this reason, we conducted an updated narrative review of the effects that e-health training and SS interventions have on ICs of PwD.…”

Section: Introductionmentioning

confidence: 99%

Effects of e-Health Training and Social Support Interventions for Informal Caregivers of People with Dementia—A Narrative Review

Maciá

Bonete-López

Sánchez-Cabaco

et al. 2021

IJERPH

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Along with the burden commonly experienced by informal caregivers (ICs) of people with dementia (PwD), associated with the progressive decline that accompanies dementia, the lockdown due to the public health crisis has had a great negative impact on the emotional wellbeing, physical health, and social relationships of ICs. Support interventions through telemedicine represent an opportunity for ICs to learn the skills required for the care and maintenance of social networks. In this work, a narrative review of the effects of e-health training and social support interventions was carried out. A literature search was conducted using the ProQuest, Ovid, and Scopus databases. Information regarding social support (SS), psychological interventions, and training for the management of medications and behavioral changes was extracted. One hundred and nine studies were included in this review. Forums and training platforms were the main tools for ICs. The most effective platforms to improve SS include the participation of both ICs and health professionals. However, no significant improvements in objective caring skills were identified. Platforms developed specifically for ICs should be based in tools that ICs are familiar with, because many ICs have not yet incorporated Information and Communication Technologies in many activities of their daily lives. Education in the digitalization to ICs of PwD should be one of the priority objectives in telehealth interventions.

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Section: Introductionmentioning

confidence: 99%

“…(2) Recent systematic reviews and meta-analyses have found some evidence of positive effects of online interventions for caregivers of PwD, particularly for outcomes of caregiver stress, (4) self-efficacy, (4) burden, (5)(6)(7)(8)(9) and depression/anxiety. (4)(5)(6)(7)9,10) Multi-component interventions show the strongest effects. (6,(8)(9)(10) The purpose of this scoping review was to summarize the evidence on the effectiveness of existing online educational programs for caregivers of PwD on caregiver self-efficacy, depression, and stress/burden.…”

Section: Introductionmentioning

confidence: 99%

“…(4)(5)(6)(7)9,10) Multi-component interventions show the strongest effects. (6,(8)(9)(10) The purpose of this scoping review was to summarize the evidence on the effectiveness of existing online educational programs for caregivers of PwD on caregiver self-efficacy, depression, and stress/burden. To better understand how education programs with published evidence are structured and how they were developed, a secondary objective was to explore educational tool features and design approaches, including involvement of caregivers, interface usability, instructional design best practices, and accessibility in the context of technologic and cultural barriers in the aging population.…”

Section: Introductionmentioning

confidence: 99%

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Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review

et al. 2021

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Background Informal caregivers of people with dementia provide the majority of health-based care to people with dementia. Providing this care requires knowledge and access to resources, which caregivers often do not receive. We set out to evaluate the effect of online educational tools on informal caregiver self-efficacy, quality of life, burden/stress, depression, and anxiety, and to identify effective processes for online educational tool development. Methods We conducted a scoping review of articles on online educational interventions for informal caregivers of people with dementia searching CINAHL, MEDLINE, EMBASE, and PubMed from 1990 to March 2018, with an updated search conducted in 2020. The identified articles were screened and the data were charted. Results 33 articles that reported on 24 interventions were included. There is some evidence that online interventions improve caregiver-related outcomes such as self-efficacy, depression, dementia knowledge, and quality of life; and decrease caregiver burden. Common findings across the studies included the need for tailored, stage-specific information applicable to the caregiver’s situation and the use of psychosocial techniques to develop the knowledge components of the interventions. Conclusion We demonstrate the importance of having caregivers and health-care professionals involved at all stages of tool conceptualization and development. Online tools should be evaluated with robust trials that focus on how increased knowledge and development approaches affect caregiver-related outcomes.

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Online support for family caregivers of people with dementia: a systematic review and meta-analysis of RCTs and quasi-experimental studies

Cited by 58 publications

References 56 publications

Stressors experienced during the COVID-19 pandemic and substance use among US college students

Stressors experienced during the COVID-19 pandemic and substance use among US college students

Effects of e-Health Training and Social Support Interventions for Informal Caregivers of People with Dementia—A Narrative Review

Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review

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