Online Dissemination of Resources and Services for Parents of Children with Autism Spectrum Disorders (ASDs): a Systematic Review of Evidence

Hall, Cristin M.; Culler, Erica D.; Frank-Webb, Anne

doi:10.1007/s40489-016-0083-z

Cited by 28 publications

(22 citation statements)

References 47 publications

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“…Parents play a major role in selecting interventions for their children. When parents are faced with challenges such as those associated with ASD (e.g., speech impairment or challenging behaviors), they often turn to social media to identify potential interventions (Grant et al, 2016;Hall et al, 2016). Grant et al (2016) have found that parental choice of intervention is highly influenced by opinions or shared experiences of others.…”

Section: Discussionmentioning

confidence: 99%

“…Parents can seek information on potential treatments from a diversity of sources such as health professionals, books, newspapers, other parents, and the internet (Miller et al, 2012). Advances in technology and increased accessibility to the internet make the latter an important source of knowledge acquisition for parents of children with ASD (e.g., Grant et al, 2016;Hall et al, 2016;Pham et al, 2019). While Gibson et al (2017) found that parents prefer obtaining information relating to ASD from local resources (e.g., pediatricians, teachers, and local organizations), results from other studies have suggested that the internet is increasingly used as parents' primary source of information (Grant et al, 2016;Hall et al, 2016).…”

Section: Accuracy and Tone Of Posts In An Internet Forum On Autismmentioning

confidence: 99%

“…Advances in technology and increased accessibility to the internet make the latter an important source of knowledge acquisition for parents of children with ASD (e.g., Grant et al, 2016;Hall et al, 2016;Pham et al, 2019). While Gibson et al (2017) found that parents prefer obtaining information relating to ASD from local resources (e.g., pediatricians, teachers, and local organizations), results from other studies have suggested that the internet is increasingly used as parents' primary source of information (Grant et al, 2016;Hall et al, 2016). A recent study by Shepherd et al (2020) found that nearly 45% of the parents in their sample reported using social media for caregiving-related support.…”

Section: Accuracy and Tone Of Posts In An Internet Forum On Autismmentioning

confidence: 99%

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Perceptions of Behavior Analysis in La Francophonie: Accuracy and Tone of Posts in an Internet Forum on Autism

Turgeon¹,

Lanovaz²

2020

Preprint

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Applied behavior analysis (ABA) remains highly contested and under-utilized in many countries for the treatment of individuals with autism. One country where ABA remains particularly difficult to access is France. One potential problem is that parents often rely on online resources such as social media to identify interventions for their child. These sources of information may not accurately portray ABA or even openly disapprove of the approach. To examine this issue, we used data mining methodology to extract, categorize, and analyze 897 messages on ABA published in a popular French internet forum based on their type, tone, and accuracy. Although messages were generally accurate and approving of ABA, our results showed that one in three messages fully or partially disapproved of the approach and one in four messages contained some inaccurate information. Our analyses also indicated that parents were more likely to approve of ABA than individuals with an autism spectrum disorder. Finally, we found that the number of approving messages published in the internet forum decreased with time, especially over the last five years. Together, these results support the relevance of developing system-level approaches to dispel misconceptions about ABA in languages other than English.

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Section: Discussionmentioning

confidence: 99%

Section: Accuracy and Tone Of Posts In An Internet Forum On Autismmentioning

confidence: 99%

Section: Accuracy and Tone Of Posts In An Internet Forum On Autismmentioning

confidence: 99%

See 1 more Smart Citation

Perceptions of Behavior Analysis in La Francophonie: Accuracy and Tone of Posts in an Internet Forum on Autism

Turgeon¹,

Lanovaz²

2020

Preprint

View full text Add to dashboard Cite

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“…Furthermore, online websites with information on developmental disabilities were found to be differing in content and terminology, lacking consistency necessary for clarity (Reichow, Gelbar, Mouradjian, Shefcyk, & Smith, 2014). Even websites with resources that appear to be of high quality such as .gov or .org websites have been found to be avoided by some parents as they can be perceived as more complicated or confusing than helpful (Hall, Culler, & Frank-Webb, 2016).…”

Section: Online Information Seekingmentioning

confidence: 99%

“…To help fill the need for more information, school psychologists have been turning to social networking sites such as Pinterest (Mittal et al., 2014; Seaman & Tinti-Kane, 2013). However, whether the content being shared on Pinterest is supported by research and evidence-based practices is unclear (Di Pietro et al., 2013; Hall et al., 2016). To better understand the state of knowledge surrounding internalizing disorders on social media, the following two research aims will guide the present study.…”

Section: Present Studymentioning

confidence: 99%

How Pinteresting: An Analysis of Social Media Resources for Internalizing Disorders

Jose

Hall

Schaefer

et al. 2019

Journal of Educational Technology Systems

Self Cite

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Many efforts have been made to understand social media and the resources existing online. However, prior studies have not thoroughly assessed specific platforms and the content being shared. The present study examined Pinterest content sharing as a proxy for interest among school personnel. Using Hall, Breeden, and Giacobe's coding scheme, 657 pins from 499 randomly selected pinners following the National Association of School Psychologists' Pinterest account were coded by content area and assessed for level of evidence base. Significant associations were found in chi-square analyses between category of internalizing disorders, evidence base, and types of pins shared. In addition, the category of internalizing disorder and level of evidence base were found to have a significant interaction with the ease of implementation. Assessing the content shared on Pinterest may inform future evidencebased implementation difficulties in schools.

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A randomized parent‐mediated physical activity intervention for autistic children

Prieto,

Meera,

Barry

et al. 2023

Autism Research

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The purpose of this study was to examine the immediate and post effects of a parentmediated physical activity intervention on the fundamental motor skills of autistic children. We randomly assigned parent-child dyads (n = 31) of autistic children aged 4-11 years into three groups (workshop, an online, or control group). Each dyad participated in a 12-week intervention and was given adapted physical activity equipment and over 200 activities via a mobile application. Children were tested at the start and end of the intervention. The effect size (Cohen's d) of the control group for pre-post locomotor and ball skill scores were 0.12 and 0.06, respectively, indicating small effect size. The effect size of the online group for pre-post locomotor and ball skill scores were 49 and 0.26, respectively, indicating medium and small effect sizes. The effect size of the in-person group for pre-post locomotor and ball skill scores were 1.18 and 0.82, respectively, indicating large effect sizes. The outcomes of this physical activity intervention suggest that parents may facilitate the acquisition of fundamental motor skills of their autistic children. Although these results are positive, there is a need to further identify effective interventions for fundamental motor skill development in autistic children. Clinical Trials ID: NCT05159102. Lay SummaryAutistic children can benefit a lot from regular physical activity. Some of these benefits include being healthy and meeting new friends. Regular physical activity can also lead to being on sports teams. But most people agree that you need to be good at activities, like throwing, kicking, Parents can help their autistic children learn activities like throwing, kicking, and running, which are also known as fundamental motor skills. In this study, 31 families were randomly assigned to one group. Each family participated in either the workshop, the online, or the control group. Families in the workshop and online groups completed a 12-week physical activity program. Each participant received adapted physical activity equipment. They also received a mobile application with over 200 activities. The workshop group also attended four in-person workshops. The workshops focused on the needs of autistic children and their parents. The online group attended the workshops via Zoom. We tested children on their fundamental motor skills before and after the program. Parents of autistic children are their children's first teachers. Yet, they may not have the skills to teach their children how to do physical activity. So, our purpose was to focus on teaching parents of autistic children. As a result, children in this study improved their fundamental motor skills. This finding can help inform future programs for parents of autistic children.

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Online Dissemination of Resources and Services for Parents of Children with Autism Spectrum Disorders (ASDs): a Systematic Review of Evidence

Cited by 28 publications

References 47 publications

Perceptions of Behavior Analysis in La Francophonie: Accuracy and Tone of Posts in an Internet Forum on Autism

Perceptions of Behavior Analysis in La Francophonie: Accuracy and Tone of Posts in an Internet Forum on Autism

How Pinteresting: An Analysis of Social Media Resources for Internalizing Disorders

A randomized parent‐mediated physical activity intervention for autistic children

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