Oncology healthcare professionals’ knowledge, attitudes, and practices regarding young carers

Justin, Pauline; Dorard, Géraldine; Baudry, Valentine; Untas, Aurélie

doi:10.1016/j.pec.2022.01.014

Cited by 6 publications

(4 citation statements)

References 40 publications

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“…Furthermore, low drop-out rates and low numbers of 18 Enhancing HCPs in their knowledge and self-efficacy around child-and family-related themes may support early identification of specific needs and facilitates referral to family-support offers for affected families. 9,32,33 Our results indicate comparable preliminary effectiveness of both training formats as overall F2F participants do not show higher improvements compared to EL participants. However, higher dropout rates and participants' feedback indicate higher preference for the F2F format (cf.…”

Section: Discussionsupporting

confidence: 51%

“…Since analyses revealed positive intervention effects in knowledge, self‐efficacy and communication behavior, training might contribute to reduce barriers of HCPs (e.g., lack of knowledge and self‐efficacy) and promote a proactive and patient‐oriented communication with affected parents 18 . Enhancing HCPs in their knowledge and self‐efficacy around child‐ and family‐related themes may support early identification of specific needs and facilitates referral to family‐support offers for affected families 9,32,33 …”

Section: Discussionmentioning

confidence: 99%

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Effectiveness of a training program for healthcare professionals on parental cancer: Results of a randomized controlled pilot‐study

Johannsen,

Frerichs,

Philipp

et al. 2023

Psycho-Oncology

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ObjectiveCancer patients parenting minor children face specific burden and supportive needs, which are often not adequately addressed by their healthcare professionals (HCPs), due to a lack of knowledge, self‐efficacy and competencies. Therefore, we developed a 3‐h intervention enhancing HCPs' competencies in caring for these patients. We pilot‐evaluated the intervention's feasibility and efficacy, assuming intervention group participants reveal higher improvements over time compared to non‐trained participants.MethodsWe conducted a 3‐armed randomized controlled pilot‐trial (RCT), comparing face‐to‐face training (F2F), e‐Learning (EL), waitlist‐control group with three measurements (baseline, post‐training, 3‐month follow‐up). Primary outcome was the competency to approach child‐ and family‐related themes; secondary outcomes were knowledge, self‐efficacy in (specific) communication skills. Intervention effects were analyzed using linear mixed models.ResultsParticipants (n = 152) were mostly female (89%) and psychologists (38%; physicians 26%; nurses 18%). F2F and EL participants reported high training satisfaction. Analyses did not reveal any significant differences on the primary outcome between groups, but indicate positive intervention effects over time regarding secondary outcomes including knowledge and self‐efficacy in communication skills.ConclusionsThis is the first pilot‐study evaluating a training for HCPs in oncology on parental cancer using a 3‐armed RCT. The 3‐h training program is a feasible approach and findings indicate to increase HCPs' knowledge and self‐efficacy in caring for cancer patients with minor children. Further research is needed to verify preliminary findings of this pilot study. The study was pre‐registered within the German Clinical Trial Register (DRKS‐00015794).

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Section: Discussionsupporting

confidence: 51%

Section: Discussionmentioning

confidence: 99%

Effectiveness of a training program for healthcare professionals on parental cancer: Results of a randomized controlled pilot‐study

Johannsen,

Frerichs,

Philipp

et al. 2023

Psycho-Oncology

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“…However, YCs' work affects them on a personal level 10 . Studies show that caring for a family member, particularly ones with cancer, has many effects on the caregiver's physical and mental health 7,8,11 . Negative effects on health are more prominent in YCs than in those who face the disease without actively supporting their family member 10 …”

Section: Introductionmentioning

confidence: 99%

“…10 Studies show that caring for a family member, particularly ones with cancer, has many effects on the caregiver's physical and mental health. 7,8,11 Negative effects on health are more prominent in YCs than in those who face the disease without actively supporting their family member. 10 Studies have reported that healthcare professionals are not fully aware of the existence of YCs.…”

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confidence: 99%

Encountering young caregivers: Attitudes and practices of healthcare professionals caring for cancer patients

2023

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Introduction Cancer and its treatments severely limit patients' daily lives. Relatives of patients may provide caregiving assistance to help patients cope with these limitations. Many children and adolescents—referred to as young caregivers (YCs)—provide support for patients. However, healthcare professionals do not always recognize YCs, and when they do, healthcare professionals are unsure how to support them. Objective This study aimed to explore healthcare professionals' attitudes toward and practices when encountering YCs and to compare these aspects according to their experiences with YCs. Methods In total, 395 oncology healthcare professionals (mean age 43.3 years; 84.8% females) participated in the study and completed an online survey. Results Only 1 in 2 professionals reported ever meeting a YC. The majority identified YCs by YCs' frequent presence in the department. No significant difference in attitudes was observed between professionals who had met a YC and those who had never met one. The support provided by professionals to YCs generally consisted of vigilance and exchanges. However, many professionals expressed a need to know where they can refer YCs for assistance. Conclusions These findings underline the importance of improving the practices of healthcare professionals to help them better identify and support the YCs they meet.

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Young carers supporting a relative with cancer: What is the healthcare professionals' knowledge in France? An exploratory study

Justin,

Dorard,

Leu

et al. 2024

European Journal of Oncology Nursing

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Oncology healthcare professionals’ knowledge, attitudes, and practices regarding young carers

Cited by 6 publications

References 40 publications

Effectiveness of a training program for healthcare professionals on parental cancer: Results of a randomized controlled pilot‐study

Effectiveness of a training program for healthcare professionals on parental cancer: Results of a randomized controlled pilot‐study

Encountering young caregivers: Attitudes and practices of healthcare professionals caring for cancer patients

Young carers supporting a relative with cancer: What is the healthcare professionals' knowledge in France? An exploratory study

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