On the Cutting Edge

Abstract

Myelomeningocele is a complex medical diagnosis that, when discovered prenatally, allows for the option of maternal–fetal surgery aimed at improving long-term outcomes. Significant advancements have been made in prenatal myelomeningocele surgical techniques that reduce morbidity and mortality for the pregnant person and their child. The pathway to prenatal surgery consists of in-depth obstetric and fetal assessment partnered with intense family education and counseling. Fetal care centers provide specialized care of families undergoing assessment, diagnosis, and prenatal and postnatal treatment of spina bifida. The counseling process in a fetal care center is unique, comprehensive, and directed to ensure families receive multidisciplinary care and support that is individualized to their specific needs and concerns.

Needs of Parents of Children With Spina Bifida

“…In-utero surgery to close the external lesion of SB is a parental choice, and the surgery is done after informed consent and maternal medications to prevent labor induction (Corroenne et al, 2021; Rimbos, 2023). Fetoscopic or open repair through an open hysterotomy for large lesions may be performed, and the baby will be followed up at birth.…”