On an equal footing: adults’ accounts of the experience of using assistive devices for standing

Nordström, Birgitta; Näslund, Annika; Ekenberg, Lilly

doi:10.3109/17483107.2012.678031

Cited by 6 publications

(15 citation statements)

References 15 publications

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“…This has not been studied to any extent. There is some research, though, and the results show that standing alters a person's sense of self, signals his or her availability to the world, strengthens social interplay, and changes motivation and expectation over time (Nordström, Näslund, and Ekenberg 2013). From a medical point of view, it is well establish that people who are unable to stand and/or walk because of different impairments benefit from the standing posture.…”

Section: Introductionmentioning

confidence: 99%

The Lived Body – Both the Vehicle and the Message: A Longitudinal Case Study

Flodin

2018

Scandinavian Journal of Disability Research

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From early childhood, Hanna, born with Spinal Muscular Atrophy II, has adhered to a standing posture for all her independent locomotion. Aim: To investigate why Hanna in childhood chose to stand and the meaning that standing holds for Hanna as an adult. Method: Single case study of a single person, Hanna, based on her contemporary statements as an adult about her lived experience from childhood, introduced in a phenomenological context and analysed using hermeneutics. Result: Standing gives Hanna access to bodily comfort in an active posture, influences how the world presents itself to her, how she presents herself to the world, and improves interacting with others. Conclusion: Although just a single case study, the findings may stimulate further research on the possible benefits of standing combined with independent locomotion from early childhood and the meaning it can hold for people with SMA II.

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Section: Introductionmentioning

confidence: 99%

The Lived Body – Both the Vehicle and the Message: A Longitudinal Case Study

Flodin

2018

Scandinavian Journal of Disability Research

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“…[4][5][6][7] Spending several hours every day sitting in a wheelchair is strenuous on the body, 27 as noted in an interview-based study where participants mentioned that standing offers them a way to straighten their bodies out. 4 Interrupting sedentary time with low-intensity activities such as standing appears to have positive effects on health. 8 When goalsetting is considered in rehabilitation services, patients emphasize activities and participation, whereas professionals report goals that are mainly related to body functions and structures.…”

Section: Extent Of Usementioning

confidence: 99%

“…A third limitation is that the questionnaire was designed from a professional perspective, although the questions were developed based on individual interviews with people who used standing devices and were intended for use with this group. 4 …”

Section: Extent Of Usementioning

confidence: 99%

“…This finding may reflect the fact that, for these people, standing devices were not prescribed with the single aim of correcting or compensating for physical limitations, but also to provide the users' with the experience of a lived body. 4 According to Scherer and Glueckauf, 25 the use of assistive technologies is most effective when the goals and needs of the clients and their care providers are known. It is also important to consider environmental factors for the user.…”

Section: Extent Of Usementioning

confidence: 99%

“…2 Using a standing device can provide opportunities to connect with the outside world, enhance memories from the past, and promote hope for the future. 3,4 Our study is an attempt to add to existing knowledge about people who use standing devices, and the circumstances and experiences related to their use.…”

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confidence: 99%

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The Impact of Supported Standing on Well-Being and Quality of Life

Nordström

Näslund

Eriksson

et al. 2013

Physiotherapy Canada

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Purpose: To identify the characteristics of people who use standing devices and to explore their degree of device use, experiences with and reasons for standing, and perceived impact of the use of standing devices on well-being and quality of life (QOL). Method: Anyone with a current prescription at the time for the study in any of five counties in Sweden (n ¼ 545), according to a national register of prescribed devices, was invited to participate in a descriptive survey; the questionnaire was mailed to respondents for self-rating. Results: People between 2 and 86 years old were represented among respondents. Standing time decreased with increased age. Respondents who were totally dependent for mobilization or who had received their standing device more than 5 years earlier used their device most frequently. The most common reasons given for standing were to improve circulation and wellbeing and to reduce stiffness. Conclusion: It is important to pay attention to the experiences of standing for this vulnerable group of people, as the use of a standing device has a positive impact on well-being and QOL.

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“I’m in a very good frame of mind”: a qualitative exploration of the experience of standing frame use in people with progressive multiple sclerosis

Dennett

Hendrie²,

Jarrett

et al. 2020

BMJ Open

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ObjectivesThe study aim was to explore the experiences of people with progressive multiple sclerosis (MS) and their standing assistants during their participation in Standing Up in Multiple Sclerosis, a randomised controlled trial (RCT) of a home-based, self-managed standing frame programme.DesignA qualitative approach, using audio diary methodology was used to collect data contemporaneously. Diary data were transcribed verbatim and analysed using thematic analysis.SettingParticipants were recruited from eight healthcare organisations in two regions of the UK. The intervention was home-based.ParticipantsAs part of the RCT, 140 participants were randomly allocated to either usual care or usual care plus a standing frame programme. Using a sampling matrix 12 people with progressive MS (6 female, aged 35–71 years, Expanded Disability Status Scale 6.5–8.0) and 8 standing assistants (4 female) kept audio diaries of their experiences.InterventionThe standing frame programme involved two face-to-face home-based physiotherapy sessions to set up the standing frame programme, supplemented by educational material designed to optimise self-efficacy. Participants were encouraged to stand for at least 30 min, three times a week for the 36-week study period.ResultsFour main themes were identified: “Feeling like the old me”; ‘Noticing a difference’; “I want to do it right” and “You have a good day, you have a bad day”.ConclusionsSupported standing helped people with progressive MS feel more like their old selves and provided a sense of normality and enjoyment. People noticed improvements in physical and psychological symptoms, which were often associated with increased participation in activities they valued. Provision of support from a physiotherapist and recognition of the variable nature of the condition were highlighted as factors to consider when establishing a standing programme.Trial registration numberISRCTN69614598.

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On an equal footing: adults’ accounts of the experience of using assistive devices for standing

Cited by 6 publications

References 15 publications

The Lived Body – Both the Vehicle and the Message: A Longitudinal Case Study

The Lived Body – Both the Vehicle and the Message: A Longitudinal Case Study

The Impact of Supported Standing on Well-Being and Quality of Life

“I’m in a very good frame of mind”: a qualitative exploration of the experience of standing frame use in people with progressive multiple sclerosis

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