Older people's perspectives on living in integrated housing and care settings: the case of extra care housing

Cameron, Ailsa M; Johnson, Eleanor; Evans, Simon

doi:10.1108/jica-09-2019-0040

Cited by 7 publications

(27 citation statements)

References 16 publications

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“…Two articles were based on a research study conducted in assisted living settings in Missouri, USA (Aud, 2002, 2004). Two articles were based on the Provision of Social Care in Extra Care Housing study (ECHO) conducted in England, UK (Cameron et al., 2020; Evans et al., 2020). Two articles were based on the Technology‐Enriched Supported Accommodation study conducted in Northern Ireland, UK (Rondon‐Sulbaran, Daly‐Lynn, McCormack, Ryan, & Martin, 2020, 2021).…”

Section: Resultsmentioning

confidence: 99%

“…Articles reporting a small amount of data (e.g. where people with dementia were a subgroup of the total sample) contributed least to the synthesis, regardless of methodological quality (Cameron et al., 2020; O’Malley et al., 2018; Stewart‐Archer et al., 2016). These articles still contributed meaningfully to the synthesis, as their participants included people with dementia (O’Malley et al., 2018; Stewart‐Archer et al., 2016) and their supporters (Cameron et al., 2020), with a limited amount of data available for these participant groups in the included articles.…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Living with dementia in supported housing: A systematic review and thematic synthesis of qualitative research

Smith

Brown

Ritchie

et al. 2021

Health Social Care Comm

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Supported housing has been highlighted as a potential way to facilitate independent living for people with dementia by integrating housing with support or care services.However, the benefits and challenges of living with dementia in supported housing are not fully understood. This systematic review and thematic synthesis sought to understand how living in supported housing influences the lives of people with dementia, from the perspectives of people with dementia, their supporters, health and social care professionals. Seven databases were searched for qualitative research, date range: 1 January 2000-31 July 2021. Eleven published articles were included in the thematic synthesis. One core theme was generated, Maintaining Independence and Autonomy, divided into three subthemes -Support and Care, Social Relationships and the Physical Environment. Factors like person-centred care, social interaction and good environmental design contributed to the maintenance of independence and autonomy. Barriers like low staff ratios, stigma and limited access to the community led to a loss of independence and autonomy -often leading to people with dementia being referred or managed out of the settings. Although the articles acknowledged the importance of maintaining independence and autonomy for people with dementia, it appeared that supported housing settings often lacked the resources and facilities to make this a reality. More high-quality research is needed, particularly from the perspectives of people with dementia and their supporters, to understand if supported housing can delay care home admission, promote independence and autonomy and facilitate social networks and community connections for this population.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Living with dementia in supported housing: A systematic review and thematic synthesis of qualitative research

Smith

Brown

Ritchie

et al. 2021

Health Social Care Comm

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“…In particular, further investment in provision and more understanding of how to balance the expectations of residents with different needs will be necessary to support increasing levels of physical and cognitive frailty. Otherwise, extra care housing may become unviable for residents receiving publiclyfunded social care (Cameron et al, 2020a).…”

Section: Discussionmentioning

confidence: 99%

Extra Care Housing: The Current State of Research and Prospects for the Future

Darton¹

2021

Social Policy and Society

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Extra care housing aims to meet the housing, care and support needs of older people, while maintaining their independence in self-contained accommodation. Evidence from several studies suggests that it has benefits for residents in terms of costs and outcomes, and can provide a supportive environment for people with dementia, although the benefits for residents with greater care needs are less clear. Budgetary pressures and increasing eligibility criteria are altering the balance of care between residents and resulting in more task-focused, less personalised care. An increasing shortfall in provision and incentives for developers to concentrate on ‘lifestyle’ provision raise questions about the long-term viability of the model for supporting local authority-funded residents. Responses to the coronavirus pandemic also raise questions about future housing and care arrangements, and these need to be addressed in the government’s long-delayed plans for social care.

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“…This study also investigated the profile of care staff working in AL SIH facilities, and found that despite residents having considerable care needs, 60% of staff had limited formal training in caring for older people with complex needs. Cameron et al's (2020) qualitative study of residents' experiences of living in EC SIH agreed, concluding that many residents, as well as staff, were concerned that staff could not cope with some of the additional needs that residents often experienced as their health and function declined over time. This precipitated moves to more intensive care support.…”

Section: Health and Wellbeing Characteristics Of Older People While Living In Sihmentioning

confidence: 99%

“…most SIH facilities) struggle to adequately address the needs of residents with complex health challenges and high dependency. Cameron et al's (2020) qualitative study of residents' experiences of living in EC SIH agreed, concluding that many residents, as well as staff, were concerned that staff could not cope with some of the additional needs that residents often experienced as their health and function declined over time. This precipitated moves to more intensive care support.…”

Section: Factors Influencing Moves Out Of Service-integrated Housingmentioning

confidence: 99%

Evidence assessment and narrative synthesis of the key characteristics of older people living in service-integrated housing facilities, and their ‘accommodation journey’

Thompson

Hill

Bainbridge

et al. 2021

HCS

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Purpose This paper aims to provide an evidence assessment and narrative synthesis of literature regarding the key characteristics of older people living in service-integrated housing (SIH) facilities and their “accommodation journey”. Design/methodology/approach A rapid evidence assessment was conducted: 22 research publications met the inclusion criteria and were analysed using narrative synthesis. Findings The quality of studies in this area is low, but consistency across components of the results of studies included in the review is apparent. Results suggest key characteristics of older people that drive moves into SIH are a decline in health, increased dependency, increased health service use and carer burden. Suggested key characteristics of SIH residents are high levels of health problems, dependency and health service use, but high self-reported health and well-being. Results indicate that the key driver for older people leaving SIH is a lack of workforce competency to manage further declines in health and dependency status. Research limitations/implications Current policy may not realise or account for the complex health and care needs of SIH residents. Investment into integrated care, robust community health services and workforce development to facilitate a comprehensive assessment approach may be required to support residents to remain in SIH and live well. Further longitudinal studies are required to map the progression of SIH residents’ health status in detail over time to provide an understanding of preventative and enablement support, development of care pathways and workforce planning and development requirements. Originality/value This evidence assessment is the first to consider the accommodation journey of older people residing in SIH.

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Older people's perspectives on living in integrated housing and care settings: the case of extra care housing

Cited by 7 publications

References 16 publications

Living with dementia in supported housing: A systematic review and thematic synthesis of qualitative research

Living with dementia in supported housing: A systematic review and thematic synthesis of qualitative research

Extra Care Housing: The Current State of Research and Prospects for the Future

Evidence assessment and narrative synthesis of the key characteristics of older people living in service-integrated housing facilities, and their ‘accommodation journey’

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