Older Patients’ Experiences of Heart Failure—An Integrative Literature Review

Falk, Hanna; Ekman, Inger; Anderson, Ruth A.; Fu, Michael; Granger, Bradi B.

doi:10.1111/jnu.12025

Cited by 74 publications

(83 citation statements)

References 53 publications

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“…In contrast, a systematic review conducted in 2010 concluded that the effects of contextual factors such as age, marital status, education, among others, need to be further studied (14) . More recently, an integrative literature review, in order to verify reported symptoms, experience with the disease and self-care in elderly patients with heart failure, suggests that the poor quality of life and frequent contact with severe symptoms make them more dependent elderly caregivers, indicating inadequate self-care (15) . As the ideal instrument for self-care assessment in hospitalized patients, the correlation between the scores of both scales used was low to moderate.…”

Section: Discussionmentioning

confidence: 99%

Associação entre autocuidado e reinternação hospitalar de pacientes com insuficiência cardíaca

2016

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Association between self-care and hospital readmissions of patients with heart failure ABSTRACT Objective: to assess the association between self-care and the number of hospital readmissions of patients with heart failure (ADHF) and test the applicability of two self-care assessment tools. longitudinal study, performed in a cardiology reference hospital in southern Brazil. Method: it included 82 patients with a mean age of 61.85±12.33 years, 57.3% male. The mean score of self-care assessment found the scales European Heart Failure Self-care Behavior Scale and Self-care Scale for Patients with Heart Failure was unsatisfactory. Results: it was observed an average of 2.57±1.66 rehospitalization last year for decompensated heart failure. There was a correlation between self-care scores with the number of hospital readmissions for decompensated HF. Education and age were associated to selfcare of HF patients. Conclusion: both scales assess self-care in a relevant way, and correlated their indexes. Descriptors: Heart Failure; Self-Care; Hospitalization; Nursing; Chronic Disease. RESUMO Objetivo: verifi car associação entre o autocuidado e o número de reinternações hospitalares de pacientes com diagnóstico de insufi ciência cardíaca (IC) descompensada, bem como testar a aplicabilidade de dois instrumentos de avaliação de autocuidado. Estudo longitudinal, realizado em um hospital de referência cardiológica do sul do Brasil. Método: foram incluídos 82 pacientes, com idade média de 61,85±12,33 anos, 57,3% do sexo masculino. O escore médio da avaliação de autocuidado encontrado pelas escalas European Heart Failure Self-care Behavior Scale e a Escala de Autocuidado para Pacientes com Insufi ciência Cardíaca foi insatisfatório. Resultados: foi verifi cada uma média de 2,57±1,66 reinternações hospitalares no último ano por descompensação da IC. Houve correlação entre os escores de autocuidado com número de reinternações hospitalares por IC descompensada. Escolaridade e idade mostraram-se associadas ao autocuidado dos pacientes com IC. Conclusão: ambas as escalas avaliam o autocuidado de forma relevante, sendo correlacionados os seus índices. Descritores: Insufi ciência Cardíaca; Autocuidado; Hospitalização; Enfermagem; Doença Crônica. RESUMEN Objetivo: evaluar la asociación entre el autocuidado y el número de reingresos hospitalarios de pacientes con insufi ciencia cardíaca (ICAD) y probar la aplicabilidad de los dos instrumentos de evaluación de autocuidado. estudio longitudinal, realizado en un hospital de referencia de cardiología en el sur de Brasil. Método: se incluyó a 82 pacientes con una edad media de 61,85±12,33 años, el 57,3% hombres. La media de puntuación de la evaluación de autocuidado encontró el escalas insufi ciencia cardiaca Self-care Escala de Conducta Europeo y de la Escala sobre el cuidado personal para pacientes con insufi ciencia cardíaca fue insatisfactoria. Resultados: se observó un promedio de 2,57±1,66 rehospitalización año pasado para la insufi ciencia cardíaca descompensada. Hubo una correlación en...

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Section: Discussionmentioning

confidence: 99%

Associação entre autocuidado e reinternação hospitalar de pacientes com insuficiência cardíaca

2016

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“…For community-dwelling older people with chronic diseases life is filled with challenges as they try to manage everyday life and cope with symptoms of different origins. Multi-morbidity is a condition that may cause loss of autonomy, disability, social isolation (Falk et al 2013) and frailty (Le Reste et al 2013) if the diseases are not well managed. Even so, research has shown that older people tend to report fewer symptoms compared to younger people (Goldberg et al 2010).…”

Section: Introductionmentioning

confidence: 99%

To adjust and endure: a qualitative study of symptom burden in older people with multimorbidity

Eckerblad

Theander

Ekdahl

et al. 2015

Applied Nursing Research

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Context. Older people with multimorbidity are vulnerable and often suffer from conditions that produce a multiplicity of symptoms and a reduced health-related quality of life.Objectives. The aim of this study is to explore the experience of living with a high symptom burden from the perspective of older community-dwelling people with multi-morbidity.Method. A qualitative descriptive design with semi-structured interviews, including 20 community-dwelling older people with multi-morbidity and a high symptom burden. The participants were 79-89 years old with a mean of 12 symptoms per person. Data were analyzed using content analyses.Results. The experience of living with a high symptom burden revealed the overall theme, "To adjust and endure" and three sub-themes. The first subtheme was "To feel inadequate and limited". Participants reported they no longer had the capacity or the ability to manage and they felt limited and isolated from friends or family. The second sub-theme was "To feel dependent". This was a new and inconvenient experience, the burden they put on others caused a feeling of guilt. The final sub-theme was "To feel dejected". The strength to manage and control their conditions was gone, the only thing left to do was to sit or lie down and wait for it all to pass.Conclusion. This study highlights the importance of a holistic approach when taking care of older people with multi-morbidity. This approach should employ a broad symptom assessment to reveal diseases and conditions that it is possible to treat or improve.

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“…Previously published reviews offer a more general account of self-care in HF or the experience of living with HF [38][39][40][41][42][43], rather than care seeking decisions specifically, or do not go beyond summarizing what is already reported in the literature [44].…”

Section: Figmentioning

confidence: 99%

Care-seeking decisions for worsening symptoms in Heart Failure: a qualitative metasynthesis

Ivynian

DiGiacomo

Jha

et al. 2015

Heart, Lung and Circulation

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Purpose: Over 50% of heart failure (HF) patients delay seeking help for worsening symptoms until these reach acute levels and require emergency hospitalisation. This metasynthesis aimed to identify and explore factors influencing timely care-seeking in patients with HF.Methods: Electronic databases searched were Medline, EMBASE and CINAHL. Studies were included if they were peer reviewed journal articles written in English, and reported perspectives of HF patients following qualitative data collection and analysis. Forty articles underwent analysis following the approach of Thomas and Harden. Leventhal's self-regulatory model (SRM) was used to organise the literature.Results: Much of the literature fit within the SRM, however this model did not account for all factors that influence patients' care-seeking for worsening symptoms. Factors not accounted for included patients' appraisals of previous care-seeking experiences, perceived system and provider barriers to accessing care, and the influence of external appraisals. When added to factors already represented in the model, such as misattribution of symptoms, not identifying with HF diagnosis, cognitive status, lack of understanding information provided, adaptation to symptoms, and emotional responses, a more comprehensive account of patients' decision-making was revealed.Implications: This metasynthesis identified factors, as yet unaccounted for, in a prominent model, and has suggested a more comprehensive framework for addressing care-seeking in HF patients. This information can be used to tailor education, communication, and service initiatives to improve HF patients' responses to worsening symptoms, and target those most at risk of delay.

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Older Patients’ Experiences of Heart Failure—An Integrative Literature Review

Cited by 74 publications

References 53 publications

Associação entre autocuidado e reinternação hospitalar de pacientes com insuficiência cardíaca

Associação entre autocuidado e reinternação hospitalar de pacientes com insuficiência cardíaca

To adjust and endure: a qualitative study of symptom burden in older people with multimorbidity

Care-seeking decisions for worsening symptoms in Heart Failure: a qualitative metasynthesis

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